Posts Tagged ‘ASD’
The Aftermath of an Autism Dignosis
“Mommy, wake up. I love you,” I hear Rhys’s raspy little voice say into the darkness as he holds my face in his hands. It’s before 6am and that champagne from last night is now wreaking havoc on my head. But I open my eyes and pop up to greet Rhys, fueled by this new milestone we’ve reached: saying “I love you.” Both proactively and in the appropriate context. Sure, as parents we all get melty when our children say “I love you.” But when Rhys says it, it’s magic.…
Read MoreDiagnosis Day
I know you are hurting. I know you are worried. I know your whole body is trembling, and clammy with sweat. I know, because I once heard the very words you heard today. Yes, it is Autism Spectrum Disorder. I heard them fifteen years ago, when I was a New Autism Mama. Now, I am an Old Autism Mama. Take a deep breath. Just breathe. It is a diagnosis, that’s all. Yes, it is life-changing. Yes, it is official, and important. It is also momentum, and possibility, and a chance…
Read MoreThe Shore
Being a special needs parent sometimes feels like being dropped in the middle of a turbulent ocean while a storm rages on. My family and I have been thrown in and are desperately trying to make it to shore. The shore is the promised land. It’s what we’ve always dreamed of. We should have never fallen into the ocean, we weren’t prepared for this. I don’t even know how to swim. Surely this must be some sort of mistake. But I keep telling myself that once we get to the…
Read MoreWishing On Stars
I’m trying not to obsess over signs that my daughter, Evie, is on the way to finding her own words. Not scripting, echoing or repeating; I mean her own feelings, her own thoughts, expressed in her own words. She’ll be five in November, and despite being a chatter box of sorts, she’s considered nonverbal. She isn’t able to communicate verbally outside of our home, with people who don’t know her like we do. Evie told me she loved me the month before last. Can you imagine my shock? Part of…
Read MoreI Blamed Myself For My Son’s Autism
When I found out I was going to be a father, I was beyond excited. My wife and I had been trying to conceive for years before she got pregnant. So when she told me I was going to be a father, I wanted to shout it from the rooftops! I made sure to call my wife everyday at work to make sure she ate lunch… I’m sure I annoyed the heck out of her. When we found out that we were having a boy, we started to plan everything.…
Read MoreA Gift I Will Never Take For Granted
I will never get over the gift of communication. Something so many take for granted. My newly two year old just told me he had an owie on his foot. He sat down. Took his sock off. And pointed to his injury. To so many outside the world of autism, this may sound so simple. His older brother is 9, nearly 10, and we work nonstop on communication of pain. For years, my sweet boy had ear infections that we didn’t know about. We didn’t know if his shoe was…
Read MoreTo My Special Son as You Approach Adulthood
I cannot believe how quickly the last seventeen years has flown by. When I glance over at you, intently focused on the television screen with unshaven stubble presently on your face, I can vividly picture my adorable, chubby cheeked toddler. I remember every minute of each therapy session you tolerated multiple days a week like it was yesterday – always working extremely hard to overcome significant motor delays, never giving up on hitting those many milestones, at your own pace. Your ability to invent creative solutions for…
Read MoreWinter
Hi. My name is Carrie. I am a wife, a yogi, a writer, a book-reader, and a mother of five. I am also Special Needs Mama with a Special Needs Kiddo. His name is Jack. He is sixteen years old. When you have a Special Needs Kiddo, the weekend can feel very, very long. I know, I’m not supposed to admit this. I’m supposed to tell you all the fun things I create for my son and I to do together—interesting outings with built-in lessons, long hikes through the autumn…
Read MoreBoth of My Children Are Normal
“Is your daughter normal?” the nurse asked. “So far she’s developing typically,” I replied, The conversation moved on but I couldn’t shake the word “normal.” The word swirled around my head and gave me a sinking feeling in the pit of my stomach. Normal. Compared to what? I looked down at Everett, my autistic two year old, watching Daniel Tiger on his kindle , wondering if he’d heard and then wondering if he understood. If he did, how did it make him feel? As a physician assistant, and medically speaking,…
Read MoreAdaptive Costumes are Changing Halloween for the Special Needs Community
“And what does Whitman want to be this year for Halloween?!” I usually roll my eyes as the words hang in the air. In his almost seven years of life my son Whitman has never really cared for Halloween. It isn’t from a lack of trying on our part. Every year we get numerous costumes. We attempt. We battle. What should be this amazingly fun time in your childhood is just stress and tears, more from me than anyone. I have tried to throw expectation out the window but I’m…
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