Posts Tagged ‘ASD’
It’s Not About Blame
She paused mid-sentence, an empathetic tone intervening as she spoke words she’d probably uttered a thousand times before to parents throughout the years. She seemed to understand the importance, though…the nuance in her voice conveying the magnitude of her message, while she made certain to catch my gaze and connect, despite the limitations surrounding our telehealth appointment. “Even if we find that there is a genetic explanation for Leo’s Autism and epilepsy, it’s important to note that this isn’t about blame…” Startled by her candidness, I nodded, silently providing acknowledgement…
Read MoreA Christmas Wish from a Stranger
This holiday season we have been touched with the spirit of Christmas by friends and complete strangers. Christmas is a little different for us. My son, Johnny, who is almost 6 and on the autism spectrum, doesn’t ask for toys or say what he wants. He lacks communication skills and understanding. We can go to the store and he may look and touch and couple things, but never says he wants them or tries to take it with him. I’m sure that sounds amazing to many parents, but for me…
Read MoreChristmas; Another Day Passing Us By?
Holidays are fast approaching. And for the past few weeks, my mind has been filled with the excitement and longing for celebration and togetherness. In an ever-changing world that we are a part of, looking forward to something is a must these days. But as the first of the next few major holidays creeps up on our families, a new concept plagues my thoughts. In our area, holiday gatherings are not “banned” but discouraged, as we still reside within a worldwide pandemic. And there’s a very real chance that we…
Read MoreHis First Christmas Concert
I got to be a fly on the wall again today. For my son Rory’s first Christmas concert. I told him I would be there. I went over the day with him as I do. But he didn’t seem to have any understanding of what I was telling him. My girls, however, knew exactly what I was talking about. “Mum, I want to come to Rory’s Christmas concert! Mum what are his lines? Mum what song is he singing?!” The urgency in their excitement reminded me of just how different…
Read MoreA Zoom Visit With Santa
The three boys just had their zoom visit with Santa Claus. I’ll be honest, it was a loud, chaotic, mess and had me sweating and possibly even swearing internally. It was also adorable and cute. Which pretty much sums up all of our family experiences. Sawyer asked for a Nintendo Switch and followed that up with a dozen questions about the reindeer and how Santa is doing his job during covid. Then they exchanged ‘dad jokes’ and I laughed out loud. I love a good dad joke. The baby cried…
Read MoreThe Mind Versus the Heart
A few nights ago, my husband and I found ourselves driving around a picturesque town for 20 minutes or so…alone. We had no kids with us. There was no loud noise or fighting or voices from an iPad. It was just us, driving around looking at holiday lights, Christmas music playing softly. Eventually we found ourselves in the parking lot of what looked like a brand new apartment complex located right on the river. It was breathtaking. After looking at the sign, we saw it was for folks 55 plus.…
Read MoreIf It Makes Them Happy, Do It.
There is a quote that says, ‘don’t ever save anything for a special occasion. Every day you’re alive is a special occasion.’ My son Cooper reminds me of that quote every single day. The reason I’m sharing it with you is because someone recently commented on one of my posts, pointing out that we always have balloons in our house. And it’s true, they are everywhere. They drift through the house, from room to room. Birthday balloons. Dora balloons. Square. Round. All brightly colored. Some old. Some new. Why? Because…
Read MoreI Wasn’t Ready, But I’m Getting There
No one asked if I was ready… At 18 months old, my daughter Vivian was typically developing. She had always been “the last.” The last of the children of her age group that we knew to learn to crawl, the last to walk, the last to utter her first word, “dog.” But that was okay. She was still in the typical range. Then she began withdrawing. No one asked if I was ready to see my baby stop coming to me. I wasn’t. I wasn’t ready to watch as my…
Read MoreThe Sparkle of December and the Hope We Hold
There is something about the December month that brings with it a sparkle. With twinkling lights, colder weather, Santa, Christmas trees, and advent calendars. Each year I love more and more the quick turnaround from Thanksgiving to the Christmas season, turkeys to Christmas cookies. Maybe it’s the kids getting older, that I am getting older, or that I have just learned to appreciate the special December festivities. A sweet glimpse of time as we reflect on the year past and what it has given us. It feels like a season…
Read MoreWe Have Years Left
As I was tucking these two in the other night, Sawyer said to his brother and I…‘I’m going to sleep in my room tonight Cooper.’ Cooper popped up quickly and distinctly shook his head and said a very serious…’no.’ This is huge for a few reasons. For one, my now ten year old just recently learned how to shake his head no. Its a skill that takes motor planning and didn’t come naturally to my sweet boy. It’s also pretty cute. He also vocalized NO. That’s new. I sat there…
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