Posts Tagged ‘ASD’
Different is Amazing
Parent: I wish my autistic child could talk to me. Parent: I wish my child with autism could communicate with me. Parent: I wish I knew what my nonverbal child was thinking. Parent: I wish I knew what my child loved. Child: Listen and I will show you in the most mysterious ways. Be prepared to wait. And to listen to more than just words. My son Cooper takes photos with his iPad. Hundreds and hundreds a day. I know because the iPad is linked to my iPhone and every…
Read MoreAlways Answer the Phone
‘Dad! Is everything alright?’ That’s what I said when ‘Dad Cell’ flashed on my phone this afternoon. I half expected it to be someone else. A relative. A nurse. Someone telling me something happened. My stomach felt sick as I waited the few seconds for a voice to respond. ‘Katie. Did you catch the game yesterday?’ I gasped. See my dad hasn’t called me in a really long time. He used to call me weekly and then he had a stroke and it changed him. It changed the way he…
Read MoreHe Taught Me How to Truly Listen
A few days ago I was driving myself and my three sons home from my mom’s house in Wisconsin. We had just celebrated Christmas and my SUV was packed to the brim with toys, leftovers, and love. The sky was dark as I navigated the backroads I’ve driven home for 30-some years. I remember being a little girl and dozing as my parent’s car bounced over the same bumpy roads. Only this time I was the parent, and I had two sleeping boys in the seat behind me, and one…
Read MoreA Love that People Dream Of
Last night, Sawyer had a tough time. He was overtired and overstimulated and the day just got too long for him. Christmas can be hard for little ones. When he gets like that, he doesn’t know what to do with himself. Instead of going to bed, he sat angrily in his room and yelled at anyone who dared to enter. It’s best to just let him cool off. Cooper was so confused as to why his brother wasn’t coming to bed with him though. He doesn’t understand Sawyer’s complicated emotions…
Read MoreA Colorful Christmas
When I share about my son’s autism’s, my hope is that I share the endearing parts with the world. The humor and the joy. The innocence and the determination. Because autism isn’t a dirty word. Not in this house. There are so many amazing parts that make him…him. For example… Last night I dressed all three boys in their matching Christmas jammies. An hour later, only two were wearing them. Cooper’s were off. This morning as I searched for them, I had to laugh. They were gone. Like gone-gone. I…
Read MoreWho Needs Words?
I check on my three boys every single night before I go to bed. I make sure they are breathing and covered up and safe. I’m pretty sure every mom does that. I even sometimes wonder at what age I will stop doing so… Anyhow, last night, I was positive this one was sound asleep as I bent down to kiss his perfect cheeks. As my lips made contact, he opened both eyes, but didn’t make a sound. What he did do was lift up his hand and wave his…
Read MoreAge is Just a Number
As we age, our interests change. They evolve. They grow with us. But what if they don’t? What if they stay the same year after year? In the real world, they call it age appropriate. It means teenagers shouldn’t be watching Barney or adults shouldn’t be believing in Santa. Someone once told me to turn off the cartoons and put on the National Geographic channel. I still laugh about that. They thought parents like me should be forcing interests. My son is 11. He’s amazing. And he loves Peppa, Barney,…
Read MoreFocus on the Color
I want to brag on this little boy for a minute. His dad and I just finished up his yearly assessment with the state. I know every country is different when it comes to autism. Heck, states and even counties are different in the USA. Services and supports vary. Some better than others. We live in a fantastic state for disabilities. Minnesota values people with additional needs and prioritizes their independence, goals, and dreams. We are blessed to get the supports and services that we need to help our son…
Read MoreI Have an Expert Leading Me Through
I do not have autism. I am not autistic. But my son is. Being his mom in no way makes me expert. But I do my best. I try so hard to be the best mom I can possibly be to him. Autism feels confusing to me a lot of the times. I believe we live in a black and white world for the most part. And my son lives in color. Blues and reds and yellows and greens. We, his dad and I, have navigated autism for ten years…
Read MoreThat’s Autism
Here is what I will tell you. We just went to a Christmas light show. One that you walk through with music and people and wind off the lake and the smells of campfire. It was amazing. And our family was there. We did it. See, our son Cooper wanted to go so bad. He asked us to go. We wrote it on the calendar. He was excited for all 37 sleeps as we waited to go. And as the day approached. And the night before. The morning of. The…
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