Videos
Four Pieces of Advice from the Mother of an Autistic Child
I’m often asked what bits of advice would I give to parents of newly diagnosed children. Or, what would I say to my younger self to make the autism journey easier. That question always makes me think. What would I say? It’s hard because I feel that so much of it we just have to go through. It’s almost a right of passage and a journey of self discovery. These are the four things I wish I could’ve told my younger self about relationships, behaviors, hope and challenging my child.…
Read MoreWhat Does Nonverbal Autism Really Look Like?
Before my son was diagnosed with autism at age three I had never heard the term, nonverbal autism. Not once. I had no idea that some children never learn to speak. Even to this day it still confuses me at times. My son is almost seven. He has no words. He is nonverbal. And I don’t know if he will ever learn to speak. I dread when people ask. I don’t know what to tell them. Throughout every step of the last four years all I have ever wanted is…
Read MoreMy Greatest Fear As An Autism Mom
Raising a kiddo with an unknown future is tough. It takes a toll on a parent’s sanity and emotions. I have fears for my autistic son that I would never have for my typical son. And, I think it is important to say these fears out loud. When my son was diagnosed I just wanted to find someone that talked about autism realistically. I needed someone to say they were scared and that they were tired and worried. But I couldn’t find that person which in turn, made me feel…
Read MoreMy Son’s Disability Isn’t Always Beautiful
A very nice woman approached me over the weekend and thanked me for talking about autism. She thanked me for being honest and not sugarcoating it. She thanked me for keeping it real. That conversation reminded me why I do what I do. I refuse to lie about my son’s disability or downplay it to make people feel better. When my son was first diagnosed I dove head first into helping him. I turned to other bloggers, Pinterest and Facebook groups because I couldn’t find anyone in real life that…
Read MoreThe Business Side of Autism
A good old fashioned Cooper and Kate video update with a whole lotta conversation around the business side of autism. https://youtu.be/5ChoHnXVIz8 When my son was diagnosed with autism at age three, I was prepared for it to be hard. I knew there would be struggles and challenges. I even suspected it would be stressful and confusing. I wasn’t that naive. And I definitely knew it would be an emotional ride with ups and downs. But what I was not prepared for was the never ending paperwork, phone calls and appointments.…
Read MoreWhy Do I Advocate for Disability Rights?
I have been asked more times than I can count why I advocate for people with disabilities. I’ve heard statements like ‘Why don’t you just buy the stroller yourself?‘ Or, ‘Why do you always seem to be fighting some battle around autism?‘ My answer is simple. It’s the right thing to do. I have the means, a voice, the ability and the passion. And I do it for the people that cannot. I advocate for the people that don’t have a voice and for people that can’t advocate for themselves.…
Read MoreAutism and Bed Stripping
My son Cooper has stripped beds since he was two years old. This means that he will remove the blankets, pillows, top sheet, bottom sheet, mattress pad and even the mattress. This also means that every single day of the week I make three beds from mattress up. Mine, Coopers and Sawyers. I want to tell you that of all the ‘behaviors’ that my son exhibits…bed stripping is the worst in my book.The behavior is exhausting and frustrating. I know he is doing it for sensory input. I understand that.…
Read MoreParents of non-verbal son tell story of winning Jimmy Fallon contest
COTTAGE GROVE, Minn. – For Kate and Jamie Swenson, raising 6-year-old Cooper can mean guessing games at snack time, perpetual train videos on the tablet, and bedtimes that sometimes seem to never come. “He screams one to two hours a night. When you hear me say one-two hours, you probably think I’m exaggerating. I’m not exaggerating,” Kate said. Cooper is severely autistic and is non-verbal. And his parents seem to take it in stride. “People are so afraid of the word Autism. And it really shouldn’t be so scary,” Kate…
Read MoreThe Emotions That Accompany Special Needs Parenting
One of the main reasons I started blogging about my life with an autistic child was to help other parents learn to talk about the emotions that go into raising a child with a lifelong disability. I knew what I was feeling and I knew I couldn’t be alone. Yet, it felt that way. The Roller Coaster If you are anything like me the whole thing feels like a rollercoaster. In the beginning you would’ve done anything for your child to not be on the spectrum. Maybe you were in denial.…
Read MoreWhat Having A Child With Autism Has Taught Me
When my son was first diagnosed on the spectrum I immediately dove into research. That’s the kind of mom I was. I wanted to be educated. I wanted to help my son in every way possible. Of course I took a few days to be really sad. I’m not scared to admit that. The diagnosis, although not unexpected, hit me like a ton of bricks. I remember I felt like the rug had been pulled out from under me. I didn’t know what to do, how to act, or where…
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