The Business Side of Autism

A good old fashioned Cooper and Kate video update with a whole lotta conversation around the business side of autism.

When my son was diagnosed with autism at age three, I was prepared for it to be hard. I knew there would be struggles and challenges. I even suspected it would be stressful and confusing. I wasn’t that naive. And I definitely knew it would be an emotional ride with ups and downs. But what I was not prepared for was the never ending paperwork, phone calls and appointments.

I thought the hardest fight I would have would be convincing myself that my son was autistic and that it was forever. I didn’t realize that once I got over the sting of that the real fight was getting benefits and help and ultimately keeping the benefits and help.

Every month I feel like I am needing to prove that my son has autism. Nope, it hasn’t gone away. Nope, we haven’t received a giant raise or lump sum of money. And nope, our life isn’t any easier. I understand due diligence.I truly do. And I understand checking boxes. But holy hell this is a lot of work. And it’s especially a lot of work to put on family with a disabled child.

I had no idea it was going to be like this. And I’m tired.

After that rant I touch on our visit to the Pediatric Dentist. It was a HUGE WIN. It also helped that the dentist was in a building that used to be a train station. Cooper knew instantly! He was pretty stoked. I finish up talking about the autism event we attended with the Washington County Police Department. Another HUGE WIN.

But with every win comes a struggle too. Cooper only wants me. He only needs me. He demands my time and 100% attention. At age six it’s getting harder and harder. And at so many times I feel like I am watching my other son from a distance. I miss so much with him. I see how independent it is making him too. Part of me is proud. Part of me is sad.

Welcome to the roller coaster friends.

 

 

0 comments
18 likes
Prev post: I’m Thankful For You: My Son ParkerNext post: The Dreaded Question: ‘Do You Medicate Your Son With Autism?’

Related posts

Leave a Reply

Your email address will not be published. Required fields are marked *

About Me
About Me

Hi, I'm Kate. I am the mother to a little boy with severe, nonverbal Autism. This is a glimpse into our heartwarming, sad, scary, funny, loving and secret world. Check out my video tab to hear me ramble about Autism.

READ MORE

FindingCoopersVoice
Sign up for Finding Cooper's Voice
* = required field

powered by MailChimp!
Latest Posts
Confessions of A Special Needs Parent
Confessions of A Special Needs Parent

“I’m not planning for college. Instead I’m planning a way to pay for his care for the rest of his life.”
READ MORE