Guest Post
Our Family was Complete
My son was born on July 31st, 2015 along with his twin sister Aria. They were perfect and they were mine! It was one of the happiest days of my life. I waited so long to become a mother. Me and my husband had many losses until this pregnancy. I had never felt such joy and happiness. The feeling was incredible. I never realized I could love a person this much until this day. I couldn’t help but think of our future and how bright it would be with these…
Read MoreTo The Heroes Who Love Our Children
Along this journey of navigating autism you send the largest part of your heart out into the world and pray that they are loved and cared for. You also meet some of the most amazing heroes disguised as teachers and para-professionals. You see the blonde standing in the back? That’s our “Miss Kaci” and never have I felt such gratitude or such an instant connection for someone who was a complete stranger to us less than a year ago. To those who love our children despite challenging behavior. Who meet…
Read MoreDads, The Glue That Holds Us Together
I don’t post a lot about my husband, Steve. Today I want to talk about him because he is my rock. He is very much involved in everything we do for Henry. All of the decisions we make are equal. He went to all the doctor appointments and he’s around for most of Henry’s home therapy sessions. The day Henry was diagnosed, Steve was at the appointment with me. We knew the diagnosis was coming and we were able to console each other on the drive home. When we got…
Read MoreAn Unsung Hero Whispers ‘I Am Proud of You’
What is an unsung hero to you? Someone who quietly reaches out with a rescuing hand in time or need? Someone who gives you perspective before you have the chance to find it? When we started to have meetings with our son’s Montessori School about how our son wasn’t fitting into the school program, I began to feel something I was unfamiliar with. A feeling that sat and still sits quietly in the background. That feeling that things were on the horizon, as I felt a shift of worry from…
Read MoreThe Hero Who Helped Us Over Our Hurdles
I was a relatively new mom and had just experienced evaluations for speech, development, occupational, and physical therapy for my son Graham. But there was an even bigger hurdle…an Autism evaluation. I was told a referral was placed for the evaluation and that it could take time to get an appointment, so I was impatiently patiently waiting only to find out there was no appointment and there was no referral. Why? Because the facility the referral was sent to would not evaluate Graham due to him being under age three.…
Read MoreAutism Awareness Month Feels Different This Year
I helped my boy get dressed today, as I do each morning. “One foot in sweetheart,” I quietly instructed, going through the familiar motions. I checked the calendar for a quick run down of our day… April 1st. The start of Autism Awareness/Acceptance Month. Letting out a sigh, I hurried off to gather items for Leo’s therapy sessions, my mind wandering to those earlier days, when excitement was all abuzz, as April neared. When we’d wear a certain color to commemorate the day… And Facebook posts and videos depicting individuals…
Read MoreIn One Second
My son Stalen is almost 6 years old and on the autism spectrum. His safety is my priority, always. He has no sense of safety or danger. He elopes. He is a runner. He is an opportunist. As soon as he sees an opportunity he bolts. When these incidents occur, his strength and speed are super human. He has crossed beyond the tree line into the woods on me a couple of times. He has unlocked the door once and gone outside-luckily-into our fenced in backyard. He has bolted across…
Read MoreSuicide is 3X More Likely for those on the Autism Spectrum
Why does Autism awareness and acceptance really matter? There are many reasons, but let’s talk about one of the most important reasons… SUICIDE. Suicide is three times more likely for those on the Autism spectrum studies say. They say Autistics are more likely to have anxiety and depression which obviously leads to suicide. However, I think it’s important to discuss some other factors that weigh heavily into why Autistics have anxiety and depression beyond just Autism. You may be surprised to understand that the villain in this suicide story is…
Read MoreLessons I’ve learned About Marriage While Raising a Special Needs Child
We’ve spent so much of our time and marriage teaching our son how to communicate that somewhere along the way my husband and I forgot how to effectively do that with each other. Days are long, sometimes sleepless nights feel longer and the added stress of balancing therapy appointments, bills, insurance calls, and so on makes it harder to remember you’re on the same team. I’ll never say marriage is harder for those of us raising special needs children because I have no proof that’s true, but what I can…
Read MoreA Colorful Life
Children are survival pros. Immediately after birth, they usually come to their desired goal by screaming. I admit, the needs are still manageable and easily met: they are either hungry or thirsty, have a stomach ache or need a diaper change. As soon as the need is met and there is no longer an existential crisis, babies are relaxed. And so are the parents. When children get to the age in which screaming is no longer effective or has the opposite effect (“if you keep screaming, you won’t get anything!”), they change their tactics. Smart! They…
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