A few weeks ago, I had the incredible opportunity to attend the Care for the Caregiver Retreat in Minnesota, put on by the More Than a Project and Finding Cooper’s Voice. It’s hard to put into words the sense of camaraderie and love I experienced during that time. When my son was diagnosed with Autism Spectrum Disorder three and a half years ago, I withdrew into myself. Even before the diagnosis, our family had become isolated. Going out in public became a challenge as I couldn’t bear the judgmental stares…
My sweet boy, It’s your old mom here. I have something I want to tell you. Something I want you to know. Years ago, during our hardest days, I made a promise to you Cooper. You didn’t know it. I made it late at night. One of those desperate internal conversations that happen at 3 AM in a scared mother’s mind. We were two years into your nonverbal autism diagnosis although I was nowhere near an expert. We had just said goodbye to kindergarten. It wasn’t working and you needed…
There is a memory I often share about Mother’s Day. In fact I think it’s even in my book. It impacted me so deeply. So much so that I’m still talking about it 10 years later. My son Cooper is the one who first made me a mom. Today he is 12 years old. He has a diagnosis of severe nonverbal autism. I like to tell the moms and dads of newly diagnosed children that it takes time. Every part. Acceptance. Understanding. Advocacy. It all takes time. Ten years ago,…
I’m raising two boys side-by-side. There is barely two years between them. When I found out I was pregnant with my second son all those years ago…I had plans. Big ones. Visions. Expectations. Best friends. Teammates. When the oldest was diagnosed with severe nonverbal autism it all changed. Ever so slightly at first. Than greatly over time. They didn’t play together. They didn’t even acknowledge each other. But time…it has a way of healing and growing. Understanding comes. Loyalty. Love. Devotion. And advocacy. Tonight I watched the one with no…
Tonight my older son Cooper and I went to his 10-year-old brother’s baseball game. We were armed with a blanket, a chair, an iPad, hotspot, snacks, a drink, and talk of a visit to the fire station this Saturday. And belief in a boy with autism. Belief in progress and hard work. See he is 12 years old. He doesn’t care much for sports. But he sure loves his brother. He stayed for 1 hour and 45 minutes. I saw almost every inning. I saw my son catch. I saw…
I want to tell you about a boy. He is ten years old and his name is Sawyer. In my book I say he saved me. The story goes onto share how my heart stopped beating during active labor with him. I came back for him. So he would be okay. I knew he needed me to live for him. But it’s more than that. He’s saved me countless times since then. I spent the last 72 hours with hundreds of moms. Moms like me. And Sawyer stood by my…
‘Brother doesn’t talk mama……’ That’s what he said to me a few months after he turned three. He was downstairs with his older brother. Eight years between them. The conversation one sided when I peeked in. The older brother dancing to the songs on his iPad. The younger brother playing dinosaurs. The moved around the room together. Clumsily. Interacting at times. But more often not. ‘Why doesn’t he talk mama?’ I did my best to explain autism to the tiny human who I know without a doubt will grow up…
I want to tell you about a boy. His name is Cooper. He is 12 years old. And he was diagnosed with severe nonverbal autism at age 3. When I heard those three words for the first time, severe-nonverbal-autism, associated with my son, it felt like everything shifted. Some things slightly. Some drastically. Everything that once was…was suddenly no more. I spent a lot of time googling, reading, researching, until I realized my best teacher was my own son. I say that because there is no text book on autism.…
‘What kind of autism does he have?’ I get that question a lot lately. It typically comes from someone new to my life. A fellow sports parent. A stranger at a party. A grandparent at the park. See when I tell people I have four kids, ages 1-12, people ask questions. What schools do they go too? What sports do they play? Do you know so and so? My son is 12 too! I tell them about each of my kids, with pride and love and humor. I share stories…
I have four kids. My older two are 12 and 10. Brothers. The oldest is 12. He loves trains and DVD cases and bright colored paper. He is part fish and would live in the water if I let him. He does not like sports. Not one bit. But he adores sitting in the sun with a queen sized comforter and a pillow. My 10 year old lives for a party. He plays hockey and baseball and anything competitive. He adores babies and puppies and asking me for Roblox. Talks…
