Posts

Trusting the Process

May 12, 2015

Cooper started Occupational Therapy last night. More therapy. More forms. More time. More time away from Sawyer. More everything. I want to be positive. I want to trust the process. I want to believe that it will work. But…. I kinda, sorta think I have the only kid that therapy won’t help. Less than a year ago we were doing speech 3 times a week and OT as well. We were doing social groups and ECFE and IEPs and parent groups. And it didn’t work. I think it actually did more…

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Mother's Day. Sigh.

May 11, 2015

This is the 4th year that I have been a mama. I spent a good chunk of yesterday thinking about Cooper’s past birthdays. About all the holidays. And Halloweens. God I hate Halloween now. Any event where Cooper has to participate is the devil to me. Expectations kill me. Valentines Day. No valentines for us. And Easter Egg hunts. And then I thought about the future. This kid is going to be five. He has no words. He has very little awareness. He is going to lose his first tooth soon. And…

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So This is New

April 28, 2015

When I first started entering the word Autism into Dr. Google it would typically come back with a few key signs….lack of eye contact, repetitive behavior, lack of imagination, etc. I was always tricked by the responses. My son has the eye contact, no repetitive behavior and zero imagination. I used to think it was ALL OR NOTHING. Nope. It’s a spectrum. Super Cooper has NEVER had a repetitive behavior. He’s too busy. Honestly, I’ve only seen him sit a few times and usually he is strapped into a booster seat. The…

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Asking the World to Change

April 27, 2015

I was at a retail store this past weekend and watched a mom struggling to manage her son during a meltdown. I started thinking about how not that long ago I would have never, ever, ever taken Cooper shopping. At least not on my own. He would run and shriek and I would sweat and cry and vow to never do it again. And finally, when Cooper was 1 1/2 or so I stopped. We stopped going to restaurants and events and whatever other places people go to. There is a…

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I Saw the Future

April 23, 2015

Our family spent the night at a water park on Sunday. Cooper comes alive in the water. It is the one and ONLY activity that he enjoys more than watching his movies. He puts his life jacket on and bobs around and swims. It’s pretty dang cute. And he is so independent in the water. That is wonderful to see. Usually I am the one talking about autism with people. So I was surprised when we sat down in the hot tub and I heard a women talking with Jamie…

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Loving Ourselves Through The Process

April 16, 2015

I’ve been getting to know a lot of other autism mama’s and as we share our stories there are always some common threads. One is the weight of autism. Wherever you are in the journey you can still feel the weight of having a special needs kiddo. And the weight of the unknown. Sometimes I can’t breathe because I am so scared. Another is the loneliness. And I don’t mean loneliness in the sense of physically being alone because I am never alone. Hell, I haven’t pooped alone in 4 years.…

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Coming out

April 2, 2015

Today is World Autism Day. Whoops. Dropped the ball on that one.  I didn’t even know there was such a thing. But I probably should know that…MOMMY FAIL. I am staring at Facebook right now and trying to decide if I want to post anything. If I do, then everyone knows that my son has autism. If I don’t, I feel like I am shaming it. Such an odd feeling. What if people look at it and feel bad for me. For our family. I don’t want that. But everyone should know…right? I’m not embarrassed.…

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We Are Moving Forward.

April 1, 2015

If you talk with a parent of a special needs child they will talk about their journey. And the diagnosis. For some people they are shocked when the diagnosis comes. For others, it happens more slowly. It evolves I guess. Whichever path you are on there will ALWAYS be parts that hurt. Look at me. I am doing better every day. I really am. But I still have very lows moments and days. Moments where I cry in private. Moments where I watch Cooper closer than I’ve ever watched Sawyer.…

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The Sweetest Boy

March 16, 2015

I don’t know a lot about other autistic children. Hell, I often feel like I have the only nonverbal autistic child in the world. Which I know can’t be true. But it sure feels that way. When I think about a child having a disorder that affects socialization and language my logical (or ignorant) side always assumed they wouldn’t be sweet. Or crave love and affection. But that is the opposite of Cooper. Cooper is so unbelievably sweet. This kid physically doesn’t know how to be mean. Or how to…

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Word Vomitting and Hating Yourself After

March 11, 2015

I said something really horrible about autism. And it wasn’t in the privacy of my own home after few glasses of wine like a good mother would do. It was a full blown word vomit in front of Cooper’s doctor. Sometimes I feel like I am the only mom in the world that has these thoughts. Or at least the only mom that shares them with the world. We brought Cooper to the doctor for his pre-op physical a few days ago. Per the usual Cooper tore that room apart. He gets in these…

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