Posts

My Son, I’ve Failed You

November 3, 2017

My dearest son, Today, I failed you. I failed as your voice, your advocate, and your mother. Since you know me kid, if you could speak, you would probably say, ‘Oh, mama…You are too hard on yourself‘. And, maybe I am. I just love you so much and I cannot stand the thought of the world not giving you a chance. Or learning about your disability. I cannot stand the fact that they refuse to acknowledge the real you. You have autism kid. It’s okay to say that. It’s even…

I’m Thankful For You: PaPa’s Story

November 2, 2017

(Editor’s Note: This article was provided by Mary Samaro and is part of Cooper’s, ‘I’m Thankful For You’ Campaign.) This November I would like to nominate and honor my Father-in-law; Mike Reedy Sr. Our son Greyson, aka “Goose,” was diagnosed with Autism in January. He will be three in a few weeks. It has been a whirlwind, roller coaster, tornado (and any other adjective you can think of) of emotions and decisions since his diagnosis. When he was diagnosed, I quit my job because I just could not figure out how…

I’m Thankful For You: Tom’s Story

November 1, 2017

(Editor’s Note: This article was provided by Lauren Abate and is part of Cooper’s ‘I’m Thankful For You’ Campaign.) This November I would like to nominate Tom Tipton who owns and operates the We Rock the Spectrum kids gym in Fenton, MO! Tom may not even realize the impact he has had on my family’s lives. He is one of those people that is just genuinely good. Hudson’s Story My son, Hudson, is 31 months old. He has always been a little delayed in meeting his milestones. It just took…

Autism and Bed Stripping

October 31, 2017

My son Cooper has stripped beds since he was two years old. This means that he will remove the blankets, pillows, top sheet, bottom sheet, mattress pad and even the mattress. This also means that every single day of the week I make three beds from mattress up. Mine, Coopers and Sawyers. I want to tell you that of all the ‘behaviors’ that my son exhibits…bed stripping is the worst in my book.The behavior is exhausting and frustrating. I know he is doing it for sensory input. I understand that.…

Autism and Goals

October 29, 2017

I typically look at goals and progress in relation to my son’s autism in one of two ways. There is how far we’ve come and how far we have to go. Cooper is almost seven and I believe he is thriving. When he was first diagnosed we had no idea what the future held. Autism was and still can be a mystery. Add in words like nonverbal and medically complex and it’s even more confusing. We don’t have a crystal ball to tell us what his future holds but I…

Who Are You Thankful For This November?

October 25, 2017

This November I want to honor the therapists, teachers, doctors, friends, children, spouses, ABA Centers, and family members that make a difference in your family’s life. This could range from the friend who sat with your child while you showered (for the first time in weeks!) to the doctor who finally listened to you. Or, the grandparent that took your other child to the park so they could get a break from their sibling’s disability to the therapist who puts in hour after hour teaching, modeling and praising your child.…

Let’s Talk About Hate

October 25, 2017

Hi there friend, My name is Kate. I am Cooper’s mom. First, thank you so much for watching my video and commenting. A view is a view! When you leave comments, it reassures me that people are watching. So, again, thank you! I love getting my message out there. When I first started doing videos, I remember thinking, ‘no one is going to watch a video of me talking about autism.’ Then, before I knew it, I had two videos go viral and my videos were everywhere. Crazy, right? I…

Frequently Asked Questions About Autism

October 18, 2017

When my son was first diagnosed with autism I had a million and one questions. I thought that getting his diagnosis would be the hardest thing we would ever had to go through. I believed once we got that we would immediately get services in place and start to help Cooper. I thought it would all be uphill from there. I was wrong. We left the appointment and that was that. It was up to me as his mom to find the ‘right’ services for him, find the right doctors,…

Our Autism Regression Plan

October 17, 2017

  I remember thinking the following thoughts: Once we clean up his diet, start supplements, remove the junk, lessen his sugar intake, remove gluten and dairy, and increase his water he will start doing better. Then, this will be fine. Once we start ABA and find the perfect combination of therapy he will start doing better. Then, this will be fine. Once we get him potty trained and fix his constipation he will feel better. Then, this will be fine. Once we get him communicating with his speech device he…

Parents of non-verbal son tell story of winning Jimmy Fallon contest

October 17, 2017

COTTAGE GROVE, Minn. – For Kate and Jamie Swenson, raising 6-year-old Cooper can mean guessing games at snack time, perpetual train videos on the tablet, and bedtimes that sometimes seem to never come. “He screams one to two hours a night. When you hear me say one-two hours, you probably think I’m exaggerating. I’m not exaggerating,” Kate said. Cooper is severely autistic and is non-verbal. And his parents seem to take it in stride. “People are so afraid of the word Autism. And it really shouldn’t be so scary,” Kate…