A few days ago, Cooper had an event at his therapy center. This was the first event he has ever had. While many of you parents may have had different outcomes, Cooper was never included in any programs when he was in public education. Looking back I am pretty sad about it. But that’s a story for another day. Anyhow, today, he attends a full-time autism program. We made the decision to pull him from public education during his kindergarten year when it started to feel like he was being…
When you see a special needs child the focus often is placed on the hard things. The things she won´t accomplish, the struggles and the challenges. I consider this to be very unfair. Each child is a miracle, a marvel of life who deserves our respect. We should always focus on the possibilities. What they CAN do. What they WILL accomplish. What they ARE good at. We should see the glass half full and look at every child as a diamond in the rough who needs our help to shine…
As parents, we can play a vicious game of ‘why my kid.’ I’ve been there. When my son was younger I would look around and wonder why. I did everything right when I was pregnant. Why is my beautiful boy not meeting milestones? Why is he not talking? Why him? Why our family? I’d hear stories of mothers who did drugs or drank during pregnancy and had perfectly healthy children. And I’d wonder why him. Why our family. I’m human. And so are you. I’ve had countless mothers tell me…
It was unfathomable just a mere year or so ago that I would ever consider “sending my son away” for treatment. He’d be with people we didn’t know. We wouldn’t know what was happening on an daily basis. It seemed too hard, too cruel, too long. UNTHINKABLE. Yet here we are. We have tried EVERYTHING. Inpatient hospitalization, day treatment, shorter school days, EBD program with small class size and lots of support. Occupational therapy, crisis therapy in our home, intensive in home therapy, outpatient therapy. We have invited home skills…
This afternoon, on a beautiful Sunday, I found myself in my son Sawyer’s bedroom unpacking a box full of children’s books. Sawyer was sorta helping me. Chatting away nonstop while watching his Kindle, loading his Nerf Gun and reading a book. Every few minutes Cooper would appear. Sometimes he’d sit down next to me. Sometimes he’d grab my face and show me something on his Kindle or point to something outside. And then, like a flash he’d be gone. This is what Cooper does. He wanders. Always close. Never far.…
Today, I want to talk about the future. I want to talk about how we are preparing ourselves and Cooper to have success as he ages. For years I wondered what it looked like. Would Cooper talk? Would he live on his own? Would he be potty trained? Would he have self care? No one could tell me. And often, if I brought it up, people outside my world would say I was being negative. That I should stop thinking about the future. So, for a while I stopped. And…
Our world is completely different than it was less than a week ago. A week ago we lived in a neighborhood without any children. So, our five year old son Sawyer really depended a lot on mom and dad for entertainment. He had a bit more screen time than he probably should have. He often told me he was lonely. He wanted more friends. This week, we live in a new house in a neighborhood full of children. All kids Sawyer’s age. All wanting to play and have fun. On…
It was totally unexpected when it happened. June 23rd. The night my six year-old son realized he has autism. He didn’t know the exact word yet, but he knew viscerally what it meant to be “different.” It was the first weekend of summer break, and my two boys and I were visiting my best friend and her two boys. It was bedtime, and he was tired. As I was trying to convince him to go brush his teeth, he suddenly collapsed in bed beside me, groaning, his body convulsing. His…
As of Saturday our family is officially moved into our new home! I wanted give all you wonderful people an update. I know many of you genuinely care about our family and how Cooper is doing. Can I just say moving is hard with or without an autistic child. It’s exhausting. It’s so much work. It’s expensive. There are also so many variables that can go wrong and we actually had a few on the day of closing. It all worked out though. Thank goodness. If it hadn’t we would…
In this video I discuss how fantastic my son is doing right now. He is happy, healthy, and thriving in every area. Every day continues to be the best and happiest day of his life. Our family feels calm and relaxed. It’s been an amazing few months. But, we also realized that Cooper has literally only been going to and from therapy and to visit families houses. That is it. Otherwise, he is home. We want and need him to be able to have successful outings outside of our home.…
