Posts by Kate Swenson
My Son, Keep Being You
My son, It’s been over 4 years since your mom and I found out we was going to have a baby. I remember when she told me. I was excited, but I was freaking out too. I always wanted a son or daughter. That was what I was excited about. I was nervous, because of the troubles your mother and I have had trying to have a baby. We had miscarriages, and we done testing. We did not know if having a child was in the cards for us. You…
Read MoreThe Battle of Perfectionism with a Physical Disability
Perfectionism, everyone has experienced it in some way. For certain people, it commonly occurs within academics, whereas for others, it can be apparent in their job or home. However, for people with disabilities, perfectionism can be heightened due to the need to prove society wrong, and turn the “can’ts” into “cans.” I am a graduate student, studying to be a mental health counselor. How does that statement alone make me unique? Well, I use a communication device due to cerebral palsy. I am the first person in my program to…
Read MoreThe Big Elephant in the Room
Recently, my son Stalen and I were getting groceries. The cashier was super nice and began talking to me as she scanned our stuff. She also tried to strike up a conversation with Stalen. When he didn’t respond to her she asked me if he was shy. I quickly told her that he has autism and is non-verbal. She asked, “will he ever talk”? I felt myself cringe and I could feel the lady in line behind me leaning in. It wasn’t the question that bothered me, it was the…
Read MoreWhy is he the Hardest One?
‘Mama, I want to get a bait caster. It’s for fishing. Then I can catch huge ones like dad.’ Pause. Silence. ‘Mama, when you chew gum and then drink water, does it feel weird in your mouth?’ ‘Sometimes I guess.’ ‘Yeah, I don’t like it one bit. Maybe I won’t chew gum anymore. But I like gum. Maybe I won’t drink water. Yes, that’s a better idea.’ Giggle. Pause. Silence. ‘Mama, what is 6 plus 6?’ ’12 buddy.’ ‘Oh, what’s 12 plus 6 because that’s how many bait casters that…
Read MoreI Will Not Miss my Son’s Life being Sad
There are a lot of things I allow on this page. Healthy debate for one. Constructive, respectful criticism for another. Why? Because that’s how we all learn. We only know what we know. And let’s be honest, most of us are living in parenting bubbles. I am not at an expert parenting level yet, even with three boys. But, there is one thing I do not allow. It’s pretty simple really. It’s criticizing the value of my child’s life. Or any other life for that matter. Autistic or not. Sick.…
Read MoreSawyer, My Brother and your Brother are Both Autistic
A few weeks ago, Sawyer received a handwritten letter in the mail from a boy named Dylan. He is 13. He has a brother with autism too. I sobbed when I read it. This little boy’s letter started a conversation I have been so desperately wanting to have with my son. Thank you Dylan and his mom. Take a read. Dear Sawyer, My name is Dylan and I am 13 years old and live in Texas. My mom watches your mom on the computer. She told me about you and…
Read MoreWho Wouldn’t Want a Brother like you?
To my son on his 3rd birthday: You’ve been through so much in your first three years of life. And no I’m not just talking about the eight surgeries you had before you were two years old. Or the daily therapy sessions and weekly doctor appointments. I’m talking about your relationship with your two siblings. Your brother has Autism and is sensitive to touch. Your sister prefers to be by herself and likes her space. I see you making friends everywhere we go. The park, the grocery store, restaurants, whoever…
Read MoreWhen People Stare at you
I used to get so upset when people stared at you. You’d be flapping. Or making happy noises. Screeches. Grunts. High pitched screams. One second you’d be on the floor and the next running only to drop to the ground, roll, laugh and pat the ground. Or you’d be melting down. Screaming. Either way it almost sounds the same. Loud. I’d look around. Make eye contact. And look away. I’d think in my head, stop. Stop Cooper. Stop drawing attention to yourself. To us. Everyone knows. But it’s not for…
Read MoreTell Them He’s Autistic Mama
We were swimming in the pool at the hotel. It was our fourth time in two days. My boys love water. It’s the one and only activity that the two oldest will actually do together. It’s also an activity that we can all enjoy. We would spend all of our time in the pool if we could. Sawyer is always drawn to other kids. He’s been that way his whole life. If he sees a little kid enter the water, he will be with him or her. Cooper, he’s oblivious.…
Read MoreTo the Mother with her Adult Son at Thomas the Train
To the mother with her adult son at Thomas the Train: You had the oldest child here. I’m guessing he was 25. Your son was tall. He was a man. He even towered over you. I saw him immediately when you arrived. He was practically levitating he was so excited. It was like he had an aura around him. His joy. It radiated. He ran in. Loud. Arms a moving. He ran right up to Thomas and started chatting to himself. Fingers stimming. Head down. Twisting back and forth like…
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