Archive for March 2021
You Have Time to Help Your Children
‘They grow up overnight.’ As parents, I think we’ve all heard that sentiment. ‘The days are long but the years are short.’ That one is my favorite. And it’s so true. I have three boys. Cooper is ten years old. I blinked and here we are. Sawyer is 8 and the little one is 2 going on 13. We are just your typical family. With the color of autism woven in. One of my goals is to talk about the things I’ve learned being a mom to a unique boy.…
Read MoreHe is the Expert Leading Me Through This Journey
I do not have autism. I am not autistic. But my son is. Being his mom in no way makes me expert. But I do my best. I try so hard to be the best mom I can possibly be to him. Autism feels confusing to me a lot of the times. I believe we live in a black and white world for the most part. And my son lives in color. Blues and reds and yellows and greens. We, his dad and I, have navigated autism for ten years…
Read MoreAwareness Days Shouldn’t be the Only Days We Talk About Disabilities
Today is World Down Syndrome Day. I am going to make a statement that I know is controversial. People may come at me in the comments. But anyone that knows me knows I am honest, sometimes to a fault. I hate disability awareness days. Wait. Before you take your shock and disgust to the comments, let me explain. I have built my career, my character, who I am and what I stand for, on advocating for those with disabilities. All individuals with disabilities. Not every disability has an awareness day.…
Read MoreDOWN SYNDROME & AUTISM: DUAL DIAGNOSIS
Fifth grade holiday concert. I found the perfect soft corduroy pants with a hidden elastic waistband and comfy red pullover that you will tolerate. We rehearsed the songs endlessly at home for weeks. You teacher assured me you have been practicing the song all week in the gymnasium and will have a para escorting you through the whole program. We anxiously wait in the audience – a sea of parents with cellular cameras and camcorders rolling. Maybe I can get a good shot of you to put on the holiday…
Read MoreKindness is the Most Important Thing to Me
See that boy on the left? The one in blue… He is 8 years old. He is in 2nd grade. At least once a week he tells me he can’t wait to be a grown up so he can ride dirt bikes and do whatever he wants. But he also reminds me he is never moving out. He plans to live in the backyard. We had his school conference last night. His teacher told us all about his test scores for math. We talked all about developing skills versus proficient…
Read MoreA Few Things I Have Learned About Motherhood
As I near my due date with my fourth baby, and slowly lose my mind daily with the three I already have, I find myself thinking a lot about mothering. And all that goes into it. Here are a few of the things I’ve learned along the way: 1. Having children is like having the worst roommates sometimes. They move your stuff, eat your food, and leave dishes all over the house. Try to remember though that messes clean up. 2. Your children can be just like you, or polar…
Read MoreThe Waiting Game
Caption this photo! We stayed in a cabin for a few days and the boys were absolutely fascinated and intrigued by this contraption. Also, the real reason I’m sharing this photo is to brag on this kid. Waiting is one of the most fundamentally important skills we learn as we age. Waiting is a skill that has never come naturally to Coops. Sitting. Standing still. All so important. For us, from the day Cooper could walk, he was running. He ran into streets. He ran out doors. He ran towards…
Read MoreTake a Chance on Me
There’s a viral article out that highlights a young man (Ryan Lowry) in Virginia on the autism spectrum who has penned his own letter to a future employer asking for an opportunity to work. He highlights the wonderful IT skills he has to offer any company. He also points out where he needs mentoring. But if given the opportunity, he knows he can contribute to any company willing to work with him. “I promise that if you hire me and teach me, you’ll be glad that you did. I will…
Read MoreSpring Break in Minnesota
People who follow me make a lot of assumptions about our family and these boys. It’s interesting, funny, even upsetting to read them. People assume that Cooper, and ultimately autism, is a hardship. People assume the younger two are neglected because they see Cooper get attention in a 4 minute video. I could go on and on. We are on a spring break two night vacation. Because flying isn’t an option for us we went to northern Minnesota. The day before we left it was 65 degrees. The day we…
Read MoreInspirational Boston Marathon Dad Dick Hoyt Dies at 80
I’ve heard countless stories from parents of adult disabled children about the prognosis and future predictions they were given. And not a lot of them were good. Parents were told to institutionalize their babies. Even, ‘go home, try again.’ And one, ‘forget about this one, have another.’ It was no different for Dick Hoyt and his wife Judy in 1962 when their son Rick was born. Rick was diagnosed as a spastic quadriplegic with cerebral palsy, as a result of oxygen deprivation to Rick’s brain at the time of his…
Read More