Posts Tagged ‘Special Needs Parenting’
How Mothers of Handicapped Children are Chosen
I often wonder why my son has autism. Why him? Why me? Why our family? There are nights where I’ll agonize over everything I did when I was pregnant. There are days when I’ll agonize over whether I should be doing more. Some days I’ll dwell. Some days I won’t. I call this the roller coaster of special needs parenting. And some days, I just want to read a beautiful poem like this one by Erma Bombeck. Enjoy. The Special Mother by Erma Bombeck Most women become mothers by accident,…
Read MoreWhen your Search for Answers Brings Sadness
Hey friends. First, a huge thank you to everyone that emailed, commented and messaged me after my sad post a few nights ago. I read every word. Second, here is the video I know many of you have been waiting for. A few days ago we took our son Cooper for an appointment at the Mayo Clinic. This was the first of eight appointments over the next couple of months. It’s a big deal in our world. I finally found a doctor that will look at Cooper’s whole case….not just…
Read MoreThe Quest for Balance in the Midst of Chronic Chaos
Isolation. Special needs parenting is isolating for me. I know it’s my deal. I choose to give my daughter all I have. But I am also just doing what I know to do. I am admittedly exhausted. Burnt out even. People always ask, ‘How is Lexie doing?’ Sometimes, I really just wish they would ask how I am doing. With all of her multiple diagnoses and challenges in many ways she is doing better then her Mama. What do I do everyday? I cook because providing nutritious, delicious food is…
Read MoreI am my Autistic Son’s Person
I am my seven year old autistic son’s person. I have been since the day he was born. He looks for me in a crowd. He seeks me out in our home. He demands me. He is always touching me. If he is wandering he demands that I am the person that follows behind. If I take a break to relax than he is clinging to me until I get up. And until recently he never developed relationships with other people. He didn’t see the value. People in our lives…
Read MoreThis is My Life
Sometimes I still can’t believe that this is my life. My son is the one in whatever the number is now. I am that mom. That is our family. I still honestly believe he will surprise us all. He’ll be the one you hear about. The one where when they’re older you’d never know. I am not ashamed of my son, nor his disability. It is a part of him and makes him who he is. But what I wouldn’t give to just make things a little easier for him. …
Read MoreTo My Son with Autism: I’m Sorry Kid
Dear Son, I’m writing you this letter, a letter that I know you will most likely never read, mainly because I will probably hide it from you. I have so much that I want to tell you, but with you being only 7 years-old, I feel like this may be too much for you, so instead, I will share it with other parents, who, hopefully, will understand. There are things that, if I had the power, I would change to make your life better. But my job isn’t to change…
Read More9 Big Mistakes Parents of Autistic Children Can Avoid
I often think of my son’s autism as a journey. A journey that not only he is on, but our family as well. A journey with many, many challenges. And holes and cliffs. And of course it’s slippery. The hills have jagged rocks and most of the time I feel like I am hanging on for dear life. There is no safety harness or map. I typically don’t know if I am even going in the right direction. And perhaps at times I fear that I might be going backwards.…
Read MoreA Letter To My Son Noah
To my Noah-bug, “Sometimes I just stop and thank God, for having different plans for me than I had for myself. I have been blessed with a miracle.” Ten years ago, a sandy blonde hair, slate grey eyed six pound thirteen ounce bundle of all boy was born. Little did I know I was going to be thrown into a ride on a roller coaster I would have never expected. I thought having a child at 16 was one for the books through those moments and growing up way too…
Read MoreDoes Parenting A Child With Special Needs Get Easier As They Age?
Have you ever wondered that? I used to all the time. I would be at a particularly low point in our Autism journey and I would ask that question to my mom or a friend or a doctor. And no one would tell me the truth. I just needed to hear if it was going to get easier or get harder. I needed an honest answer. The problem was I was asking the wrong people. I’m not surprised I get asked this question every day by parents of newly diagnosed…
Read MoreThe Conversations Missed
Lately, I’ve been thinking a lot about my son talking. Or not talking. I want you to know that on the surface I’m okay with having a nonverbal son. And by okay I mean I can picture a future where my adult son does not speak to me. I don’t cry about it anymore. I haven’t for years. It wasn’t fair to him or me. I had to move on. I rarely dwell. I am even excited about his Speech Device and am hopeful that one day he will use…
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