Posts Tagged ‘Special Needs Parenting’
A Conversation with a Stranger
Last week I helped a father while his daughter was in the middle of an autistic meltdown. We’ve all been there. As the parent your focus is safety and getting through the meltdown. This man needed an extra pair of hands. And I had no problem offering mine. After she calmed down we had a quick conversation that has stuck with me. Without knowing each other, or saying much more than an introduction, he said, ‘I didn’t know how hard it was going to be. And I really didn’t know…
Read MoreYou Are Describing Two Different Children
A few weeks ago I received a comment on one of my videos that said, ‘When you talk about your son it seems like you are describing two different children. Is he high functioning or severe? Which one is it? Is he loving and sweet or exhausting and violent? Your videos are hard to watch because you are always jumping back and forth.’ I had to laugh. This woman had perfectly described the emotional roller coaster that is autism. Not only do I feel like I am describing different children…
Read MoreI Thought You’d Be Over The Grief By Now
I had dinner with an old friend a few weeks ago and inevitably the conversation turned to autism and grief. It always does. My world is autism. The crazy roller coaster that it is. Over a much needed glass of wine I told her about the roller coaster of my life. I always preface by saying, it’s a lot. I swear I’m not exaggerating. I told her all about Cooper’s wins lately. I told her about his new autism center and how we are done with public education and emphasized…
Read MoreBehaviors, Business, Physical Care and Emotions
I’ve been doing the special needs parenting thing for seven years now. I’ve learned so much about myself, my son, autism, friends, family and life in general. Having a child with a disability changes everything. I’ve learned about exhausting, relentless behaviors. I’ve learned how demanding physical care can be. I’ve completed evaluations, made phone calls, and sent emails. I’ve felt the unique, confusing heartbreak that goes into raising a child with a disability. Some parts are great. I see beauty now that I never knew existed. Some parts are heartbreaking.…
Read MoreWhen the Super Mom Gets Depressed
There is a stigma around depression. A really, really ugly one. And I think there’s especially a stigma around mothers who have depression. If you’re depressed, you’re weak. Broken. You are medicated. You cry a lot. You sleep a lot. This isn’t true. At least not for me. I have a wonderful life. Two beautiful children. Three wild dogs. A wonderful and supportive partner. A beautiful home. I’m not weak. I am strong. I am freakishly independent. And I am not broken…at least not completely. I am not medicated. And on…
Read MoreAnd Just Like That, Hope Bubbles Up
There is a funny thing that happens when you have a child with autism. When I walked out of Cooper’s diagnosis appointment, I felt every single emotion possible. We waited for 7 months for that appointment. The day came. The appointment happened. We got the diagnosis. We left. I cried. Everything was immediately different yet exactly the same. I was not the same woman that I was just a few minutes prior. I was an autism parent. A special needs parent. I had a label. I was immediately different from…
Read MoreMy Greatest Fear As An Autism Mom
Raising a kiddo with an unknown future is tough. It takes a toll on a parent’s sanity and emotions. I have fears for my autistic son that I would never have for my typical son. And, I think it is important to say these fears out loud. When my son was diagnosed I just wanted to find someone that talked about autism realistically. I needed someone to say they were scared and that they were tired and worried. But I couldn’t find that person which in turn, made me feel…
Read MoreI Will Sit With You In The Dark
“When you can’t look on the bright side, I will sit with you in the dark.” Alice in Wonderland Hearing that your child has autism, or any neurological disorder, is so unbelievably scary. Maybe you knew deep down. Or maybe you were oblivious. It honestly doesn’t matter because in an instant everything is different. Same kid…different future. Different path. And not just for your kiddo. But for your whole family. For me I felt like a label was tattooed on my son’s forehead. And ultimately mine. I thought the label…
Read MoreThree Videos That Changed My Life
When my son was diagnosed with autism I spent hours, days, maybe even months, scouring the internet for information about autism. I wanted to know everything. I wanted to know the best diets, therapies, tactics and resources. This was the business side of me. I knew we needed help and I was going to find it. That part was relatively easy. The help is out there…you just have to find it. But as a mom, I also wanted to find stories of hope. I wanted to find out what autism…
Read MoreThe Dreaded Question: ‘Do You Medicate Your Son With Autism?’
I hate this question. I hate it so much that even typing the sentence ‘do you medicate your son‘ gives me anxiety. It’s not that I mind sharing the answer with you. I am an open book. I also firmly believe that as parents we can help our children even more by speaking opening and honestly about what’s working and what’s not. I remember years ago when Cooper was first diagnosed I just wanted someone to tell me what to do. Tell me the best course of action to help…
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