Posts Tagged ‘Special Needs Parenting’
What Word Describes you in 2019?
Here we are in the last month of 2019. Wow! Where did the year go? While doing a late-night Facebook scroll, I read a post from a lovely neighbor that read “what will be the word that describes you in 2019?” I thought about that intently. I am different than I was one year ago. Forever changed by one word. Acceptance. I have a horrible memory and often times can’t even remember why I opened the fridge! Although, there are moments over this past year that have been ingrained…
Read MoreGetting Help as a Special Needs Parent
I’ve been having some minor medical stuff going on. Nothing huge but still annoying. I finally broke down and went to the doctor. Which never happens. Simply put, I don’t have time. I explained my symptoms. A cold that never ends. A cough that keeps me up. Extreme fatigue. Exhaustion. Anxiety. Trouble sleeping. She asked if I was under stress. I laughed. Manically actually. I told her about my life. My job. About my 3 boys. Their ages. Their schedules and needs. I told her about my Cooper. About autism.…
Read MoreI’ll Try Harder to be Better
I haven’t been the best wife, daughter, friend, mom to you and…I’m sorry. You see, today my son’s therapist mentioned she noticed him biting his hand. ‘Self injuring’ was the exact term she used, and he did it five times within their three hour session. She told me to ‘keep an eye on it’ and to notify her if ‘the behaviors worsened’. That’s been on my mind all afternoon. Retracing every step leading up to every ‘behavior’. Wondering what could have set him off… Wondering what we could do differently tomorrow…
Read MoreHe’s Safe Mama
I was rushing to get out of the house. Helping Cooper with his shoes and wrestling the baby into his jacket. Filling up a bottle and grabbing snacks and drinks. Making sure the diaper bag was stocked and that I looked halfway presentable. You know, doing all of the things. Cooper was nonverbally letting me know that he was going to bring all hundred of his treasures. Sawyer was asking me for a bag because he wanted to bring his rollerblades to a place that didn’t allow rollerblades. The baby…
Read MoreI Don’t Know How You Do It…
Last night I shared a video on Instagram of my autistic son ripping paper and books. It’s a new behavior. It’s really loud. And messy. I shared it for a glimpse into the beauty and reality of our world. I could tell you why he does it. He wants to have all the pieces of the magazines and books in his hands. He’s a sensory seeker. He likes to see and touch. To spread the pages out. To line them up. It makes sense to him. It makes him happy.…
Read MoreWhen you Take the Lens Off
I am not new to the autism world, in fact, I’d like to think of myself as almost a professional autism mom. Many times, I am called in by a lot of my social media friends to be the one they connect to, when another mom has a child that is showing developmental delays, or behaviors that just don’t seem very typical for the age. My son is almost twelve, and we’ve been through so much since the day that 6-pound 13-ounce baby was placed into my arms. When he…
Read MoreWhat Are You Thinking Allowing Him To Wear A Dress
We sat on the couch in his living room. I hadn’t seen him in ages, so I was trying to catch him up on our life. I showed him photo after photo of our family. Sawyer hitting a baseball off a tee in the backyard. Cooper splashing in a pool. Sawyer holding his fishing pole. Jamie and I drinking beers at a baseball game. Sawyer and his cousin playing dress up. He was smiling and laughing but stopped suddenly. It’s been a while, years and years since this happened,…
Read MoreThe Power of Perspective
A recent conversation left me thinking about the power of perspective. While at a child’s birthday party with my daughter, a dear friend asked me how Jack is doing. Jack is my 12 year old son who has severe autism, developmental delay and cerebral palsy. I got excited to answer her question. “He is good!” I said. Gosh it felt great to finally say it. For the past five years when people asked me about Jack I would stop and think for a moment. Do I give them the real…
Read MorePlease Make Room For Us
Last Tuesday started like every other day. I woke up way too early, tried to coax my son Ben back to sleep for an hour and lost that battle. Then, I gave in, got up and got ready while trying to keep him entertained. I woke up Caleb and shuffled both boys off to daycare. It’s the story most working moms could tell every single day. It was my usual stress, the usual morning hustle, but then someone stopped me in my tracks, both figuratively and literally. The boys’ daycare…
Read MoreThe Hardest Thing You Will Ever Wait For
We all wait for things. Waiting is a normal part of every day life. Sometimes the waiting is fun and exciting. But sometimes, it’s agonizing. Maybe you are waiting to hear back from a college that you applied too. Or about a job interview. Maybe you are waiting for your partner to pop the question while every single one of your friends is getting engaged already. Maybe you are waiting until the time is right to have kids. Until everything is in order. Or maybe you are waiting month after…
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