Posts Tagged ‘special needs mama’
The Stories We Share
We are just a few weeks away from celebrating the 6th anniversary Henry’s autism diagnosis. We celebrate now, but back then it was a different story. Six years ago, I was nervous and confused. I can admit it now, but I knew nothing about autism before his diagnosis. It’s hard to believe because autism is now my life and my work. But yes, at that point, I knew nothing more about it besides a few characters in TV and movies. Henry had a lot of the textbook signs back then:…
Read MoreA Special Needs Mama
A special needs mamaIs weary in her soulDay after dayHas taken its toll Years of sleepless nightsMany thankless jobsThe constant demandsAnd heart wrenching sobs The daily needs grind herAlmost to the boneThe exhaustion, the diapers,all of the unknown A son she prayed forWho’s unruly and wildA son she prayed forWho’s misunderstood as a child But wipe her tears she mustAnd get on with the dayFor duty calls againDuty – without pay The phone calls, the letters,She’s desperate for a breakWhy don’t they help?She thinks, for goodness sake She’ll make them…
Read MoreToday, I Failed
Today, I failed you. I yelled. You cried. I cried. As we were doing our normal morning routine, fighting about putting your jeans on, I was already anxious. Worried about how school drop offs would be, worried if you were going to get upset as I walked down the hall to leave the school… all the normal morning anxiety. After the jeans debacle, you were finally dressed. Not without a little negotiation, of course. “First jeans, then bunny socks!” Harper has some socks with a bunny on the side… he is…
Read MoreTo the Mama who Wonders Why
I’m giving you this baby. He won’t be like the other ones. Maybe you’ll know from day one. Maybe it will take time. But eventually, you come to realize that something is different. It’s going to be hard at first. Not the love part. That part will be easy. But the fight to figure out what and why. That part will leave you depleted in a way that feels almost impossible to explain. You will be pushed to your limits. You are going to question everything you’ve ever done and…
Read MoreMaybe I Just Want You to Understand Autism
It is 5 am at my house. I am up to get a head start on my day, catch an early yoga class. OK not really. It is not that evolved, progressive or interesting. I am up because my son woke up at 3 am. He woke up giggling and has been playing his keyboard on repeat. He has been running up and down the halls, flicking lights on and off, laughing, giggling and playing like it is the middle of the day. He is happy; this makes it feel…
Read More