Posts Tagged ‘severe autism’
The Business Side of Autism
A good old fashioned Cooper and Kate video update with a whole lotta conversation around the business side of autism. https://youtu.be/5ChoHnXVIz8 When my son was diagnosed with autism at age three, I was prepared for it to be hard. I knew there would be struggles and challenges. I even suspected it would be stressful and confusing. I wasn’t that naive. And I definitely knew it would be an emotional ride with ups and downs. But what I was not prepared for was the never ending paperwork, phone calls and appointments.…
Read MoreHow Having an Autistic Child Affected My Marriage
To say our son was a challenging baby is an understatement. He didn’t sleep through the night for four years. We functioned in a constant state of exhaustion. He screamed most of his infancy. He struggled to eat. He struggled to poop. He was never content. He had never ending severe ear infections and multiple tubal surgeries. He missed milestones. He was even misdiagnosed a few times. Because of his delays and no real diagnosis the medical debt from therapy started piling onto the credit cards. Money got tight. And…
Read MoreWhy Do I Advocate for Disability Rights?
I have been asked more times than I can count why I advocate for people with disabilities. I’ve heard statements like ‘Why don’t you just buy the stroller yourself?‘ Or, ‘Why do you always seem to be fighting some battle around autism?‘ My answer is simple. It’s the right thing to do. I have the means, a voice, the ability and the passion. And I do it for the people that cannot. I advocate for the people that don’t have a voice and for people that can’t advocate for themselves.…
Read MoreMy Son, I’ve Failed You
My dearest son, Today, I failed you. I failed as your voice, your advocate, and your mother. Since you know me kid, if you could speak, you would probably say, ‘Oh, mama…You are too hard on yourself‘. And, maybe I am. I just love you so much and I cannot stand the thought of the world not giving you a chance. Or learning about your disability. I cannot stand the fact that they refuse to acknowledge the real you. You have autism kid. It’s okay to say that. It’s even…
Read MoreAutism and Bed Stripping
My son Cooper has stripped beds since he was two years old. This means that he will remove the blankets, pillows, top sheet, bottom sheet, mattress pad and even the mattress. This also means that every single day of the week I make three beds from mattress up. Mine, Coopers and Sawyers. I want to tell you that of all the ‘behaviors’ that my son exhibits…bed stripping is the worst in my book.The behavior is exhausting and frustrating. I know he is doing it for sensory input. I understand that.…
Read MoreAutism and Goals
I typically look at goals and progress in relation to my son’s autism in one of two ways. There is how far we’ve come and how far we have to go. Cooper is almost seven and I believe he is thriving. When he was first diagnosed we had no idea what the future held. Autism was and still can be a mystery. Add in words like nonverbal and medically complex and it’s even more confusing. We don’t have a crystal ball to tell us what his future holds but I…
Read MoreWho Are You Thankful For This November?
This November I want to honor the therapists, teachers, doctors, friends, children, spouses, ABA Centers, and family members that make a difference in your family’s life. This could range from the friend who sat with your child while you showered (for the first time in weeks!) to the doctor who finally listened to you. Or, the grandparent that took your other child to the park so they could get a break from their sibling’s disability to the therapist who puts in hour after hour teaching, modeling and praising your child.…
Read MoreFrequently Asked Questions About Autism
When my son was first diagnosed with autism I had a million and one questions. I thought that getting his diagnosis would be the hardest thing we would ever had to go through. I believed once we got that we would immediately get services in place and start to help Cooper. I thought it would all be uphill from there. I was wrong. We left the appointment and that was that. It was up to me as his mom to find the ‘right’ services for him, find the right doctors,…
Read MoreOur Autism Regression Plan
I remember thinking the following thoughts: Once we clean up his diet, start supplements, remove the junk, lessen his sugar intake, remove gluten and dairy, and increase his water he will start doing better. Then, this will be fine. Once we start ABA and find the perfect combination of therapy he will start doing better. Then, this will be fine. Once we get him potty trained and fix his constipation he will feel better. Then, this will be fine. Once we get him communicating with his speech device he…
Read MoreParents of non-verbal son tell story of winning Jimmy Fallon contest
COTTAGE GROVE, Minn. – For Kate and Jamie Swenson, raising 6-year-old Cooper can mean guessing games at snack time, perpetual train videos on the tablet, and bedtimes that sometimes seem to never come. “He screams one to two hours a night. When you hear me say one-two hours, you probably think I’m exaggerating. I’m not exaggerating,” Kate said. Cooper is severely autistic and is non-verbal. And his parents seem to take it in stride. “People are so afraid of the word Autism. And it really shouldn’t be so scary,” Kate…
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