Posts Tagged ‘severe autism’
Balancing Two Different Worlds
Tomorrow is the 4th of July. A fun, typically outdoor, social, loud, hot holiday. It’s also a holiday that can be very challenging for families like mine. And put a lot of stress on us. See, our older son struggles with a lot of the parts that make up the fourth. He is scared of fireworks, although he loves to watch them on his iPad. The second he hears one, no matter how far away, he takes off running and hides in our pantry. Parties overwhelm him. Most noises are too…
Read MoreI Choose Gratefulness
It’s interesting to know how much my attitude plays into this whole mothering thing. When my oldest was diagnosed with autism six years ago, my focus was him and him only. He was the one who was struggling. I needed to help him. I learned after hitting my breaking point, that my mental health mattered too. I was exhausted. I was worn down. I felt the weight of hope firmly on my back. And my attitude was being affected. I was looking at things through a sad lens. A heartbroken one.…
Read MoreI’ve Been a Primary Caregiver for 30 Years. Here is What I Want you to Know:
Hi, my name is Kelly and I am the mother to an amazing young man named Steven. He was diagnosed with autism at age 2 and later apraxia. He recently turned 30 and is a dynamic, smart, interesting, funny young man. We share our story on Instagram at Growing Up Steven. Being a primary caregiver for the last 30 years has rewarded me with a few things: A panic disorder, depression, anxiety, excessive worry, marriage struggles, and at times, not the mom my kids deserved. I want you to learn…
Read MoreCaptain’s Log: Day 6, Social Distancing
I want to be crystal clear about something. Never once have I wondered what it would be like to spend 24 hours a day with my husband and beautiful children. Never have I considered homeschooling my children. Never have I considered moving out to a remote area, having a dozen more children, living off the land and singing songs like the Von Trapp family for fun. I like work. I love daycare and school. I love people and socializing. And I love Target. So, it’s safe to say this has…
Read MoreAutism and Anxiety
I have the most amazing son. He is 9-years-old. Almost double digits. He loves dancing and holding hands and Steve Harvey. He loves climbing in my bed at 1 am and carrying around 17 sheets of paper, all different colors of course. He smells like the wind. And he can find mud anywhere. He has autism. He is autistic. It is part of him like his blonde hair and ruddy eyes. He was nonverbal until he was 8-years-old. Today, he has 15 or so words. They come and go. He…
Read MoreCaptain’s Log: Day 5, Social Distancing
There are no rules during Corona. It seems we have entered into a reality where time doesn’t matter. Like a Las Vegas casino or the days in between Christmas and New Years Day. Or that movie Groundhog’s Day where every day is the same. Our calendar is wide open until July. Every planned event now with a red line through it. The weekdays are the same as the weekends. We wake up. Drink coffee. Eat breakfast midday. And again an hour later if you are my children. And then ask…
Read MoreWhen The World Isn’t Quite Right
I’m sitting here in my office (hiding), and thinking about how crazy the world is right now. In fact, I keep trying to explain to my children that this has never happened in mommy’s life and it will hopefully never happen again. They don’t seem to understand the severity of it and Sawyer keeps reminding me that last year we had the Polar Vortex and he missed a whole week of school. Which was also awful FYI. We couldn’t leave the house then either because our eyelids would freeze shut…
Read MoreCaptain’s Log: Day 3, Social Distancing
No one seems to be wearing pants anymore. One is in the hot tub at 8:30 am and is starting to resemble a Frat Boy. One is eating chocolate doughnuts. One is carrying a plunger around and hitting anyone who he comes in contact with. The remotes are missing. Every device is on max volume. Which is almost as annoying as my husband screaming, ‘turn it down, for the love of @#$’, every 30 seconds. The three little ones are always hungry. Always. But seem to hate every food I offer…
Read MoreMy 10 Novel, and Not So Novel, Tips for SUCCESSFUL Self Distancing (survival)
LOCK UP THE PANTRY: Yup, you read that right. If your children are anything like mine, they are always hungry. And on chaotic days with no real rhyme or reason, they tend to be even hungrier. I will find little hoard piles of food throughout my house and wrappers hidden in couch cushions. It makes me crazy. Remove the impulse and lock the food up unless it’s meal time. GET OUTSIDE: Go for a walk. Hunt for rocks or leaves. Set up a trampoline or a water table. Go for a…
Read MoreSometimes Autism Keeps You From Me
I’ve wondered, when did autism purloin you? Did it creep in one night, and snatch the words from your tongue? When did it show up, and make it so hard for you to look at me? I want to hold you. I want to hug you. I want to play with you and sing with you. I want to hear you say you love me… Autism. Sometimes it keeps you from me. You don’t always want to look at me. You don’t always want to be held, or hugged, or…
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