Posts Tagged ‘Parenting’
To the Autism Dads
There are so many types of wonderful dads to honor on Father’s Day. There are the dads who coach all the sports teams and take the kids to college football games. There are the dads who do science experiments with their kids, take them camping and on long nature hikes to explore wildlife. There are the energetic, playful dads who run around the yard playing hide and seek and flag football. There are also the dads who do all the chores around the house from laundry to cooking. And then…
Read MoreA Letter to my Son, High School Graduate of the Class of 2019
Dear Sean, Congratulations! You did it! My heart is filled with pride and happiness over all you have achieved and the amazing young man that you have become. Reflecting back as I look through old pictures and letters I have saved for you, brings back so many amazing memories I remember how you knew the names of all the Thomas trains and played with them for hours on end. You even took your favorite train to sleep every night! I remember the elaborate hot wheels tracks that you and your…
Read MoreRollercoaster of Love
When a friend asks me what parenting special needs is like I always try to be honest but I also hold a lot back. I want to share with them so that they can understand but also know that there are things they will never be able to wrap their minds around. Parenting a child with autism is a rollercoaster. A rollercoaster of emotions, of love, of off the wall stuff we don’t share and sometimes a loop de loop. It’s up, it’s down. It throws you in circles and…
Read MoreDon’t Cut the Highs or the Lows Short
When I look at the toughest times in my life… My miscarriage. When my son was diagnosed with autism. When I was struggling with my marriage. Occasional money troubles. Losing people I love. I see a few common themes. One…I had no one to talk too. And two…I tried to pretend I was fine. I tried to rush through the hard. I had no one in my life that was going through similar issues. Or if they were…I had no idea. Because I was too afraid to talk about my…
Read MoreI am One Lucky Mama
A few days ago I had an ITP meeting for Cooper at his ABA Center. We talked about behaviors, evaluations, speech, and goals. We talked about how great Cooper is doing. His overall behaviors are down but the duration is up. We talked about holds, and kicking, how his favorite thing to work for his colored paper, and how his SDQ and CASII scores have improved. We chatted about emotional problems, hyperactivity, peer problems and so on. These meetings are required for him to maintain services. They are important. They…
Read MoreSomething as Simple as a Haircut
Sometimes autism slaps you in the face and man does it sting. Today, was one of those days. Most days we are plugging along, going to therapy, school and work and although autism is always there (Franklin is 4 and nonverbal so believe me it’s always there) it’s background noise. Franklin and Scarlett are healthy and happy and so is our family. But then something as simple as a haircut, changes everything and autism is smack in your face, rearing its ugly head. We have been putting it off for…
Read MoreI Knew it would be Hard, Just not this Hard
When my son was diagnosed with autism five years ago, I knew we were in for a challenge. And I don’t just mean the fight for services or supports, I just knew my little guy was a pistol. At that time, he didn’t sleep. At all. He was up all night and started our day around 4 am. I also knew that he hated all foods. And refused to eat almost everything. I knew he couldn’t communicate. And refused to participate. I knew everything was a fight. He refused to…
Read MoreHow do I Explain Autism…
I’ve been thinking about this for a long time. How would I explain my autism world to someone with no experience with autism? I have two sons, ages 3 and 5. They both have moderate autism with severe communication delays. From a distance, or through filtered Instagram pictures, my sons look perfectly normal. Their disability appears discrete and insignificant to the untrained eye. How debilitating could it be? It’s absolutely devastating and almost invisible at the same time. My sons are verbal and I thank God for that. A verbal…
Read MoreI’m not Always Grateful
I sat there bouncing my baby on my knee. I was surrounded by people. I watched the group of children singing Jesus Loves Me. So casually. Standing in a line. The youngest was 4. The oldest was 8. A boy. Cooper’s age. I watched him specifically. He was wearing a tie. He was standing so still. Holding the microphone. Then he sang his name. Four words. ‘My name is Ben.’ He sounded like an angel. I realized in that moment I wasn’t breathing. I had stopped bouncing my baby. I…
Read MoreBeauty in the Broken-ness
The older he gets, I often find myself focusing on the things my son Benjamin struggles with. Because naturally, the older he gets, the harder things become for him. It is a knee jerk reaction to hone in on the difficulties he’s experiencing because as his mother I want to “fix it” for him; I don’t want him to continue to struggle with things most children his age have no problem with. But the fact of the matter is, he will always be blind, and he may or may not…
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