I Knew it would be Hard, Just not this Hard

When my son was diagnosed with autism five years ago, I knew we were in for a challenge. And I don’t just mean the fight for services or supports, I just knew my little guy was a pistol. At that time, he didn’t sleep. At all. He was up all night and started our day around 4 am. I also knew that he hated all foods. And refused to eat almost everything. I knew he couldn’t communicate. And refused to participate. I knew everything was a fight. He refused to…

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Life is about Perspective

Life is all about perspective. And how you look at it. Having a son with severe, nonverbal autism has changed everything for me. I’m learning as I go. I’m getting stronger while giving myself grace to accept and grow. Sawyer and I just got home from the store. He spent his birthday money on a Lego set. He was so excited to go, choose (that’s half the fun!), and pay. He’s been anticipating our trip for days. He even did a few chores around the house today to earn extra…

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The Balancing Act of this (Autism) Life

It’s 9 a.m. and my toddlers are eating popsicles. They are content (even quiet?) in their car seats behind me as we drive to ABA therapy. We are going on year three of “potty training” (I could call it a lot of other things) with my son Wilson, who is almost five years old and on the autism spectrum. He really pulled one over on me this morning with the new potty sticker chart by managing to sit and pee in the toilet four times more often than he would…

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A Second Child Changed So Much

We’ve lived with autism for four years, some days it feels much longer. I’ve always wanted kids, wanted what you see on TV, in magazines and what your parents teach you. A boy and a girl. A perfect family. But what is perfect? Four years ago we had our first child, a gorgeous little boy that melted our hearts with his wonderful smile and infectious laugh. However, from a very young age things never felt right. He slept for an hour at the most at any one time, refused to…

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Autism Touches Every Part of Everything

I am not sure when the moment hit because I was so deep into autism, I did not even realize the epiphany I had. When Jayden was diagnosed just before age three I had so much hope, and do not get me wrong I am still filled with tons of hope for Jayden’s future. I just had some unrealistic expectations of life like ‘The Good Doctor type of autism’ instead of the autism that has a potty timer going off every thirty to forty-five minutes, depending on the day. Somewhere…

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I’m not Always Grateful

I sat there bouncing my baby on my knee. I was surrounded by people. I watched the group of children singing Jesus Loves Me. So casually. Standing in a line. The youngest was 4. The oldest was 8. A boy. Cooper’s age. I watched him specifically. He was wearing a tie. He was standing so still. Holding the microphone. Then he sang his name. Four words. ‘My name is Ben.’ He sounded like an angel. I realized in that moment I wasn’t breathing. I had stopped bouncing my baby. I…

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Beauty in the Broken-ness

The older he gets, I often find myself focusing on the things my son Benjamin struggles with.  Because naturally, the older he gets, the harder things become for him. It is a knee jerk reaction to hone in on the difficulties he’s experiencing because as his mother I want to “fix it” for him; I don’t want him to continue to struggle with things most children his age have no problem with. But the fact of the matter is, he will always be blind, and he may or may not…

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Please Allow Me to Feel the Hard Parts

Mother’s day has always been hard for me. Growing up with a single dad and a mother who was not a part of my life, (and when she was, caused a lot of heartache, confusion, and chaos) I always hated Mother’s Day. I have had some amazing women in my life step up and try to help take the place of an absent mother, but I’ll be honest and say that nothing ever fills that void. I thought becoming a mother would help though. I wanted nothing more than to…

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Sometimes I Forget

Sometimes I forget that my daughter has autism. This may sound strange because of all the private therapies we do, the targeted activities at home to encourage her development, her specialized preschool, and more. It is as if our whole world revolves around autism, and yet the autism fades because all we see is our daughter. Sometimes I Forget She is Behind Ruby has been doing so well with her school and therapies. Just in the last 9 months she has made tremendous growth. She went from saying 1-2 word…

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Take the Photo Dads

I realized today that even though I have 6,000 photos on my iPhone…I had zero of me and my three boys. I felt like I was wrangling cats, got a few sighs and protests, cleaned dirty chocolate mouths, said a few threats and told them to stop fighting a few times. But I got it. It only took 30 to get the good one Take the photo dads. These babies grow up over night. It feels like yesterday I was celebrating my first Mother’s Day. And now I have 8…

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