Posts Tagged ‘Mommy Blog’
I See You…Perfect For Today
I am so glad I saw this today. On the way to work this morning I was thinking about how hard it is to raise babies. It’s exhausting and challenging and tiring and wonderful and amazing. For any of you that know me you probably saw on Facebook that Sawyer put sand in my lawn mower gas tank last night. And then stripped down naked and ran around my front yard destroying plants. As I chased him around my yard screaming I had a silent chuckle at the neighbors watching…
Read MoreA Nonspeaking, Autistic Teenager, Wrote An Incredibly, Profound Letter Explaining Autism
I found another amazing article about autism! While I am struggling to write about our own journey it appears that autism is becoming more and more popular in society. YAY! Every time I open up Facebook I see another article or blog that is changing lives and perceptions. Gordy, a nonspeaking, autistic teenager, wrote an incredibly, profound letter explaining autism….one letter at a time. See his letter below. Here is a link to the full article. What touches me the most is how he talks about the reasons autistic people…
Read MoreNonverbal Autism
I say the words ‘nonverbal autism’ daily. Cooper isn’t just autistic…he is nonverbal. It adds another layer. A really difficult layer. It adds severe frustration. It adds yelling and screaming and sometimes scary, loud noises. It adds a lot of head hitting. And mostly it removes a lot of layers of simple every day interactions. I will spend minutes staring at Cooper and wonder what he is thinking. Wondering if he is happy. Wondering what he would say to me if he could. Wondering if he understands me. Talking devices…
Read MoreLearning to Say Yes…
I know I’ve been gone forever. I go through these droughts where I don’t know what to say about Cooper. Trust me I have hundreds of things I could write about but the words don’t seem to flow out. Maybe I am too tired. Or overwhelmed. I don’t really have an answer. We are still having major potty training struggles and successes. Cooper is pee trained but his pooping is worse than ever. We have made the decision to keep Cooper at Fraser day treatment for one more year. So…
Read MoreHaving a Child With Special Needs….
I received Cooper’s Kindergarten packet in the mail a few weeks ago and like it was planned….I promptly lost it. The packet actually came the exact day that we were moving to our new house. So, you can understand why it got lost. The chaos of moving was too much. And to be honest, I have been dreading that damn packet like the plague. I don’t want Cooper to go to a mainstream kindergarten. It makes me feel completely helpless and out of control.I remember when Cooper was 3 or…
Read MoreWhy Did I Stop Writing….
I get so many emails from people wondering where I am. Emails wondering if Cooper is ok. If I am ok? People that genuinely care about Cooper and his development reach out to me on a daily basis. These emails and messages warm my heart. And I am so thankful for them. It reminds me that Cooper’s journey is helping others. That is amazing. I can remember the blogs that got me through. I would read them from start to finish in a night while drinking a bottle or two…
Read MoreAsking the World to Change
I was at a retail store this past weekend and watched a mom struggling to manage her son during a meltdown. I started thinking about how not that long ago I would have never, ever, ever taken Cooper shopping. At least not on my own. He would run and shriek and I would sweat and cry and vow to never do it again. And finally, when Cooper was 1 1/2 or so I stopped. We stopped going to restaurants and events and whatever other places people go to. There is a…
Read MoreI Saw the Future
Our family spent the night at a water park on Sunday. Cooper comes alive in the water. It is the one and ONLY activity that he enjoys more than watching his movies. He puts his life jacket on and bobs around and swims. It’s pretty dang cute. And he is so independent in the water. That is wonderful to see. Usually I am the one talking about autism with people. So I was surprised when we sat down in the hot tub and I heard a women talking with Jamie…
Read MoreWhy is that Little Boy so Sad?
I brought Super Cooper to school today because the bus system can’t seem to get their shit together. Which is just awesome. But, the positive, I got an extra few minutes with Cooper. And something extraordinary happened. We were driving to school and I was rushed and going a million miles a minutes. The usual. I started to tell Cooper all about his day. Just like we had been doing since 6:30 am. I’m not sure if telling him about his day helps but we do it anyways. So, I…
Read MoreWhat If This Is It?
I’ve been really, really off lately. Irritable. Crabby. Most definitely not happy. I’ve even noticed that I am avoiding Cooper a little bit. It started after his birthday party on the 6th. That was a tough one. We changed our whole lives for Cooper. Every single thing is different now. And that’s fine. I have zero regrets. And every month we are told by Cooper’s therapists how amazing he is doing. Thriving they say. Better every single week. Amazing eye contact. Such a sweet boy. So engaged. Just a joy.…
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