Posts Tagged ‘marriage’
Husband, It Might Always Be This Hard
My husband and I are, in a sense, new to this role of being special needs parents. Both of our children have fragile x syndrome and although our boys were born with this genetic condition, we didn’t know how significant our 2 year old son’s delays were until this past summer when Caleb’s genetic results came back. A few months after receiving Caleb’s results, we got news of Ben’s diagnosis as well. Both of our boys have full mutations of fragile x syndrome which causes them to have significant developmental…
Read MoreMy Best Advice? Prioritize Time With Your Partner
Last week Jamie and I were sitting on the couch after a particularly long day. We had finally got the boys in their beds and had just sat down to watch television. Although, neither of us had the energy to turn it on quite yet. Finally, quiet. Our home is never quiet. Suddenly, Cooper burst out of his bedroom, buck naked, dancing to his Kindle. He twirled. Shouted. Laughed. At one point he realized that he was barefoot and marveled at the feel of the carpet on his feet. I’m…
Read MoreHow Having an Autistic Child Affected My Marriage
To say our son was a challenging baby is an understatement. He didn’t sleep through the night for four years. We functioned in a constant state of exhaustion. He screamed most of his infancy. He struggled to eat. He struggled to poop. He was never content. He had never ending severe ear infections and multiple tubal surgeries. He missed milestones. He was even misdiagnosed a few times. Because of his delays and no real diagnosis the medical debt from therapy started piling onto the credit cards. Money got tight. And…
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