So This is New

When I first started entering the word Autism into Dr. Google it would typically come back with a few key signs….lack of eye contact, repetitive behavior, lack of imagination, etc. I was always tricked by the responses. My son has the eye contact, no repetitive behavior and zero imagination. I used to think it was ALL OR NOTHING. Nope. It’s a spectrum. Super Cooper has NEVER had a repetitive behavior. He’s too busy. Honestly, I’ve only seen him sit a few times and usually he is strapped into a booster seat. The…

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Asking the World to Change

I was at a retail store this past weekend and watched a mom struggling to manage her son during a meltdown. I started thinking about how not that long ago I would have never, ever, ever taken Cooper shopping. At least not on my own. He would run and shriek and I would sweat and cry and vow to never do it again. And finally, when Cooper was 1 1/2 or so I stopped. We stopped going to restaurants and events and whatever other places people go to. There is a…

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I Saw the Future

Our family spent the night at a water park on Sunday. Cooper comes alive in the water. It is the one and ONLY activity that he enjoys more than watching his movies. He puts his life jacket on and bobs around and swims. It’s pretty dang cute. And he is so independent in the water. That is wonderful to see. Usually I am the one talking about autism with people. So I was surprised when we sat down in the hot tub and I heard a women talking with Jamie…

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Loving Ourselves Through The Process

I’ve been getting to know a lot of other autism mama’s and as we share our stories there are always some common threads. One is the weight of autism. Wherever you are in the journey you can still feel the weight of having a special needs kiddo. And the weight of the unknown. Sometimes I can’t breathe because I am so scared. Another is the loneliness. And I don’t mean loneliness in the sense of physically being alone because I am never alone. Hell, I haven’t pooped alone in 4 years.…

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We Are Moving Forward.

If you talk with a parent of a special needs child they will talk about their journey. And the diagnosis. For some people they are shocked when the diagnosis comes. For others, it happens more slowly. It evolves I guess. Whichever path you are on there will ALWAYS be parts that hurt. Look at me. I am doing better every day. I really am. But I still have very lows moments and days. Moments where I cry in private. Moments where I watch Cooper closer than I’ve ever watched Sawyer.…

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The Sweetest Boy

I don’t know a lot about other autistic children. Hell, I often feel like I have the only nonverbal autistic child in the world. Which I know can’t be true. But it sure feels that way. When I think about a child having a disorder that affects socialization and language my logical (or ignorant) side always assumed they wouldn’t be sweet. Or crave love and affection. But that is the opposite of Cooper. Cooper is so unbelievably sweet. This kid physically doesn’t know how to be mean. Or how to…

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Fish Oil and Apraxia. Does it Work?

Morning all, I wanted to do a quick post on Fish Oil and Apraxia. I get quite a few emails about the brand and dosage that I give Cooper. Cooper hasn’t been diagnosed with Apraxia as of March 2014 but he does have ‘some’ of the symptoms and I feel that giving him Fish Oil can only help his overall well being. Apraxia, or Childhood Apraxia of Speech (CAS)is a developmental disorder that affects the ability to say sounds, syllables and words. Children with Apraxia often display problems with coordination,…

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Super Cooper is Growing Up

Something has changed with Cooper. Even as I type this I am hesitant. I haven’t even said it out loud to anyone but Jamie.  I’m scared if I say it too loudly it will disappear. So let’s pretend I am whispering. Last Friday we stopped giving Cooper his daily dose of Miralax. This was a huge step for him and we thought for sure it wouldn’t work. But it’s been over a week now and he is doing great. Thank God. We also started Cooper on a new dose of Fish Oil last week as well.…

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Cooper said Cow

Cooper said Cow. Twice actually. We were sitting on the floor playing last night with a push behind walking toy. It has numbers and buttons and shapes on it and plays music. And it has one animal on it…a cow. Jamie and I were sitting on the floor next to the boys and Cooper pushed the cow and plain as day said ‘cow.’ I looked right at him and said, ‘what did you say?’ He responds with ‘cow.’ As if I was asking a ridiculous question. Now for anyone that…

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