Posts Tagged ‘fish oil and apraxia’
Word Vomitting and Hating Yourself After
I said something really horrible about autism. And it wasn’t in the privacy of my own home after few glasses of wine like a good mother would do. It was a full blown word vomit in front of Cooper’s doctor. Sometimes I feel like I am the only mom in the world that has these thoughts. Or at least the only mom that shares them with the world. We brought Cooper to the doctor for his pre-op physical a few days ago. Per the usual Cooper tore that room apart. He gets in these…
Read MoreHaving the Only Autistic Kid at the Party
I want to tell you something I’ve learned. If you read my blog regularly you know that I talk mostly about my experiences raising an autistic child and how they make ME feel. I feel like I rarely ever give advice because I spend 95% of the time in survival mode. And autism is the biggest mystery in the world to me. But I try to help when I can. So I am pretty excited to say that I had an epiphany this weekend. I guess you could call it self growth.…
Read MoreI Saw the Autism in My Son
Most days I don’t think about Autism. Not the word or the disorder or anything to do with it. Cooper is just Cooper and he is who he is. And that’s that. Dare I say I was getting cocky. I may even say I let my guard down. Since we did the move and put Coops in intensive therapy there are parts of him that seem almost healed. Or normal. Or whatever PC word I’m allowed to say. Zero meltdowns, good transitions, improved skills, etc. Still no words but great…
Read MoreIt all Started with a Little Boy
Sometimes I get so caught up in the appointments and therapies and sadness and emotions that I actually forget Cooper is a 4 year old boy. An extremely sensitive, precocious, naughty little boy who is obsessed with hugs and holding hands. Who squeals every single day to be tickled and chased and thrown in the air. And a little boy who just mastered waving hello and goodbye and believes that when he waves to a person the situation should be over immediately. Sigh, my sweet boy…if only that were true.…
Read MoreA Little Good News…
I got a letter in the mail yesterday telling me that Coopers insurance benefits are reinstated. I breathed a sigh of relief that could have been heard cross country. And I instantly felt like a weight had been lifted. And then promptly drank a bottle of wine and watched The Girlfriends Guide to Divorce…my favorite show. And zoned the F out. I literally shut down for the whole night. I thought autism was heavy but it nowhere nears the stress of not being able to pay for the help he…
Read MoreRiding The Roller Coaster….
I got a call yesterday afternoon from Cooper’s school. It was a man asking me about our experience with Fraser. He said he didn’t have any specific questions and would like if I just spoke freely about our experiences. I told him an overview of our story and that we loved Fraser. It has changed our lives. He was the sweetest man and said he was at a loss for words at the love we have Cooper. He then went onto tell me that his autistic nephew is 11 and…
Read MoreAnd The Claws Came Out
I went to a seminar last week on navigating the Medical Assistance waters. It was pretty intense. Typically, those types of events make me sad. I hate that I need to be there. I am resentful. I am tired. Blah, blah, blah. But, I am glad I went. I am in a battle with the county over Cooper’s benefits. We moved our whole lives here so Cooper could attend a school that has the price tag of Yale. And we need help paying for it. Here is how the county…
Read MoreJust Give It Time
Cooper has a pooping problem. Or more specifically, a constipation problem. I’ve always felt that it has to do with his diet being so restricted. The kid eats right around 10 founds plus any carb type snack. I don’t believe he has eaten a vegetable since he was 9 months old. And as for fruit it’s only fresh strawberries. And trust me, I thank God that he at least eats those. I can actually remember the last time he ate a vegetable. I remember he was 11 months or so and eating peas because…
Read MoreMore Changes for Cooper
I was chatting with a friend today and she said to me….“I have never met a more resilient family. It’s like change doesn’t scare you.” I just smiled and nodded. It must appear that way to the outside world. Oddly enough I usually feel like I am standing in a room screaming and people are rushing by me. But, apparently from the outside, I appear to have my shit together. Score one for me and bring on more changes. Cooper is starting an autism preschool at the local elementary school on…
Read MoreMy Little Destructor
Cooper had a long couple weeks off from school. Rather, Cooper had a break from school and mom lost her mind. And so did dad. I think we were both actually excited to go back to work. And I see it more and more how much Cooper needs structure. I also need structure. Cooper would watch movies ALL DAY if we let him. And oddly enough there is an emotional strain on me when he does that. I feel like such a failure. I was looking through pictures getting ready for this…
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