Posts Tagged ‘diagnosis’
How to Deal with a Difficult Diagnosis
How to Deal with a Difficult Diagnosis When others hear we have a special needs son and a daughter with dyslexia we often get asked, “How to deal with a difficult diagnosis? How did we deal with it with it being our children?” How to Deal with a Difficult Diagnosis for my Child The day of a diagnosis is one of those events in your life that you remember every detail of. There was shock, fear, feeling scared, and so much more; all the feelings. There was a point where…
Read MoreThe End of ‘Wait and See’
“A diagnosis is not a prognosis,” a wise doctor once said to me, as I was deep in a panic about what Flynn’s life would be like. Over time, it became my mantra and it comforted me as we were transferred from specialist to specialist. “A diagnosis is not a prognosis,” I would repeat to myself often. After countless appointments and tests, I grew comfortable with the labels being thrown onto the table and gained medical knowledge, preparing myself for the day that we got the answers we were looking…
Read MoreDear Autism, Happy 3rd Birthday
Dear Autism, Happy third birthday. While it may have taken you 9-12 months to come around, when you finally reared your head, you made your point. You have brought us so much joy, and so much pain over these last three years. We cried when the doctor sat us in the chair in her office and said, “It’s autism.” Your dad and I held hands, separated by a small table housing a box of much needed tissues, and we stared not at each other, but directly at the doctor as…
Read MoreAutism is not a Dirty Word
In November 2016, my son, Jasper, had recently turned 4 years old and I finally decided to do it. If not for me, for him. My mother and other family members kept suggesting that something wasn’t right. I had already started him in speech therapy and preschool to work on his delayed language skills. Jasper’s teachers even suggested it could only help, not hurt. I thought he just had some learning deficits or was a slow starter and he just needed patience. I didn’t want it to be true. My…
Read MoreWaiting for a Diagnosis
Before we had our third baby we knew there was a chance. When I googled, it said something like a 25% chance. That number felt high. Really high. So high, that my husband and I fought about it. We cried about it. We debated. We rationalized. We prayed about it. One day I would say let’s go for it. And he would say…we can’t handle two kids with special needs. The next week I would be exhausted from therapies and behaviors and say…we can’t risk it. Two kids is perfect.…
Read MoreThe View From Here
At 9 months old, I knew there was something different about Zachary. At 17 months old I took it upon myself to get him started in feeding therapy, and then shortly after early intervention. At that early point in Zachary’s life everyone tells you, “he is fine” … “he is a boy, they take longer to do certain things” and all that extra fluff. As a nurse I knew differently, and as a mom I knew in my heart. Zachary will be 4 years old in April, which also means I have been a mom for that…
Read MoreSeeing Beyond the Label
Honestly, my husband and I went into the autism clinic thinking that we were going to rule out autism for our twins. I went in with our son Aki and my husband went in with our other son Yuri. For Aki, the doctor wanted to wait to see what the IEP said at the school. She wanted to know a little bit more about the social skills before she made a determination. When I got out my husband was still in the office with Yuri. I already knew. Autism spectrum…
Read MoreHaving ‘That Child’
This is an open letter of sort to those that say that they could never deal with “that child.” You hear a lot about people saying they could not or would not have “that type of child.” Let me tell you about “that child” and those that love and care for them. That child has a heart bigger than most. That child has been through more than most “typical children” in a short period of time. That child has had to go through more surgeries, tests and invasive things than…
Read MoreMy Most Precious Moment
It’s been 525,600 minutes since we last celebrated Mother’s Day. Has your child progressed as far as you hoped he would? Has he reached the goals you set for him? For those who have…congratulations! For those who haven’t, know that you are not alone. I remember a year when my daughter, Lizzie, came nowhere near reaching the goals I had set for her. Lizzie was diagnosed with autism days after her second birthday. She had every red flag…no functional language, no joint attention, no ability to communicate, and no awareness…
Read MoreI didn’t see it then, but I do now…
I’ve been feeling a lot lately like I need to get my words out, get my feelings out. It tends to happen when my husband is away at work, which is something that doesn’t happen often these days. We have gotten very used to him being here similar to how “normal” families operate. But when he is not here, I find that my weeks are filled with kids, work, and minimal adult conversations. And let’s face it, sometimes he does not want to listen to me babble! There is something…
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