Posts Tagged ‘autism’
Cooper's Talking Device
Hi all, I wanted to share a video of Cooper’s talking device. Cooper has been using it at school for a little over 3 months and we are just starting to use it at home. Much like everything else I find it to be a little overwhelming. Sometimes I feel like it’s just ‘another’ thing we are trying. But in saying that his speech therapists are RAVING about his successes with it. He can say up to 6 word sentences. An example would be: ‘I want to eat yogurt please.’…
Read MoreI See You…Perfect For Today
I am so glad I saw this today. On the way to work this morning I was thinking about how hard it is to raise babies. It’s exhausting and challenging and tiring and wonderful and amazing. For any of you that know me you probably saw on Facebook that Sawyer put sand in my lawn mower gas tank last night. And then stripped down naked and ran around my front yard destroying plants. As I chased him around my yard screaming I had a silent chuckle at the neighbors watching…
Read MoreA Nonspeaking, Autistic Teenager, Wrote An Incredibly, Profound Letter Explaining Autism
I found another amazing article about autism! While I am struggling to write about our own journey it appears that autism is becoming more and more popular in society. YAY! Every time I open up Facebook I see another article or blog that is changing lives and perceptions. Gordy, a nonspeaking, autistic teenager, wrote an incredibly, profound letter explaining autism….one letter at a time. See his letter below. Here is a link to the full article. What touches me the most is how he talks about the reasons autistic people…
Read MoreLearning to Say Yes…
I know I’ve been gone forever. I go through these droughts where I don’t know what to say about Cooper. Trust me I have hundreds of things I could write about but the words don’t seem to flow out. Maybe I am too tired. Or overwhelmed. I don’t really have an answer. We are still having major potty training struggles and successes. Cooper is pee trained but his pooping is worse than ever. We have made the decision to keep Cooper at Fraser day treatment for one more year. So…
Read MoreAutism Awareness Month
I think Cooper falls in a really weird place on the autism spectrum. In some ways he is severe. He doesn’t speak. He has zero self-care. And hardest of all he has no self-awareness. Cooper doesn’t know he is autistic. He doesn’t know he is different. He doesn’t know that he has no friends…He most likely doesn’t know what a friend is. But on the opposite side he isn’t violent. He isn’t mean. He is easy to care for. He smiles and laughs and requests hugs and kisses. And I…
Read MoreBeing Thankful For What Autism Has Given Me
Yesterday I spent the whole day with my boys. Alone. Stuck in the house. It was glorious and exactly what I needed to recharge my life. I chose to clean and paint and play and organize and do laundry and unpack. So, a very typical Sunday at my house. As I did each of my manic tasks my little Sawyerbean tagged along. Where ever I went…he went. He offered to help with every single chore I was doing. He made messes. He asked questions. He spent a good majority of…
Read MoreThis Will Forever By My Favorite
I was filling out Cooper’s application for the Minnesota Autism Center earlier this week and I had to write down his diagnosis. It kills me every time. He has multiple. Language Disorder, Autism Spectrum Disorder and the killer…lack of normal physiological development. And we could very easily add Apraxia in there. Sigh. It’s hard. It hurts. And I hate it. I hate it so much I could scream. Anyhow, I stumbled across this on Facebook today and it’s a damn good reminder of the power a parent can have. It…
Read MoreLoyal Dog Jumps on Hospital Bed to Comfort 9-Year-Old Boy With Autism
This story about the service dog that comforts an autistic boy made my whole morning. I’m not sure if it is because I am an insane dog person. My puppies are my babies. They are my children. Or, if it’s because Cooper will soon be having his fourth surgery. 3 sets of tubes, a tummy blockage and now adenoids. And if I was to rank some of the hardest days of my life those surgery days would be up there. I would give anything to provide comfort to Cooper. I…
Read MoreA Super Cooper Update
I haven’t given an old fashioned Cooper update in a long time. I remember reading updates when I used to follow a lot of autism blogs and comparing my kiddo to theirs. I would be like, Cooper can do that but wait, oh, shit, he can’t do that. It was good and bad. So, don’t do that. No comparing. Each kiddo is different. Language: No words at all. He doesn’t even have a sound for a word. Nothing consistent at all. That’s hard. I always wanted him to make a…
Read MoreA Good Reminder
When Cooper wakes up in the middle of the night and comes to my bed he touches my face. He usually rubs my forehead and lays his hand on my cheek. It is so gentle that sometimes it takes me a second to register he is even there. Although he struggles with social cues, emotions, showing love, controlling his anger, etc., he is hands down the sweetest child I have ever met. I can’t even summarize his innocence with words. I don’t know how people could give up. It’s just…
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