Posts Tagged ‘autism’
The Second Day of Kindergarten
When motherhood arrived, one of the many moments I looked forward to with warm cozy anticipation was the first day of kindergarten experience. I enjoyed collecting the kindergarten wardrobe and elementary school kid supplies. I remember laying my oldest daughter’s new school clothes across her bed while we carefully chose the first day outfit perfection. Then the day arrived and I was full of “I love you!” and “Mommy and Daddy are so proud of you” and then, the ever so common bittersweet “How did you grow up so fast?”…
Read MoreThank You to the Man who Chose Himself
Thank you to the man who chose himself over his child: Being a single mom is really hard. Being a single mom to a special needs child is next level. I never realized the strength I had inside of me. You helped me release these very primal instincts when it comes to our son, that I had no idea existed. I share such a rare and special bond with him because he is all I had for so long. It was just he and I everyday. There isn’t a person…
Read MoreOur New Normal
As I sit here tonight, it hit me hard. How many things in life I thought we’d be doing so effortlessly at this phase of Jackson’s development. Without worry. Or planning. Or hesitation. Tonight, we didn’t go to “movie night” at my son’s school because movies make him anxious. Like freak out, meltdown anxious. Just because they’re long. And that’s if we’re at home. No way could he tolerate a loud movie with dozens of people around. They served popcorn and drinks. None of which he’d eat. Or drink. It’s…
Read MoreMy Dear Friend Sally
Hi Sally Yes, that’s your real name. You are a real person. A middle aged woman. Honestly, it’s easier for me to respond to you when I think of you as a human being. A real person with thoughts, feelings and emotions. A grace that I’m not sure you granted me. I also won’t share your last name. This group of special needs parents is pretty fierce. When I share your comment I’m sure many of them will want to hunt you down and comment on your perfect life. I’m…
Read MoreSawyer’s Sixth Birthday Celebration
Birthdays are a huge deal in our world. Especially when you son turns six years old! I tried to put a spell on him to keep him little forever but I guess I failed. He is growing up. Somedays it feels like it’s happening overnight. The day started very, very early. 4:30 AM to be exact. Cooper decided it was time to start the day. So, I used that time to blow up balloons and decorate Sawyer’s door. View this post on Instagram Mother of the year at…
Read MoreBeauty in the Breakdown
As Moms, all of our children have had a public “temper tantrum”. It’s awful. You can see it coming most times and try to brace yourself for impact. Tantrums stink point blank. You’re sweating, your kid is flailing, people are staring and you just want to RUN. A meltdown is a bit different. A meltdown occurs when a body has endured too much stress. It looks like a tantrum but can not be contained like a tantrum. Meltdowns can get ugly, real ugly. Meltdowns not only break down your child…
Read MoreMy Kid is Not a Monster
This piece was shared with me by Danielle of Story of Noahism. I read an awful story this morning and I’m sure some of you in this community have too. The one about a young boy with autism that was dragged through the hallways of his school by a teacher/para. Another one these stories that we seem to be hearing more and more of lately. As a parent to a child on the spectrum, these things are terrifying and heartbreaking. And I made the mistake of reading the comments on…
Read MoreThe Dark Place
I wanted to share something that any Autism parent will understand. It is a place that we all have been. It’s called the dark place. I go there at night when everyone is asleep. It’s when the reality and fears set in of being a parent to a special needs child. The what will happen when I’m gone place. The how will they be able to have a life of their own and build a meaningful and reciprocal relationship place. The who will care for them when I’m not here…
Read More6 Things I’m Letting Go of this Year
Our past year has been a pretty good one but as a parent of a child with additional needs, it is sometimes all consuming trying to create the perfect world for your child. We need to… Make sure all different ways of learning are being explored when our child has trouble following a regular curriculum. Make sure we are doing all the right therapy that will give them the best chance to progress. Help them make regular friendships that they are unable to do on their own. Scaffold each part…
Read MoreSleep in my Room Brother
A month or so before Harbor was born, Cooper and Sawyer both slept in our room. We had just moved to a new house a few months before. Both boys could sense the baby was coming. And they seemed to be trying to soak up as much mama snuggle time as they could. Of course I would like to say they both started out the night in their own rooms and beds. At least that was the intention every day as Jamie and I chugged coffee after a crowded night…
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