6 Things I’m Letting Go of this Year

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Our past year has been a pretty good one but as a parent of a child with additional needs, it is sometimes all consuming trying to create the perfect world for your child.

We need to…

Make sure all different ways of learning are being explored when our child has trouble following a regular curriculum.

Make sure we are doing all the right therapy that will give them the best chance to progress.

Help them make regular friendships that they are unable to do on their own.

Scaffold each part of their day when they have trouble doing this for themselves.

Create awareness and educate others to make the world a better, more accepting place for our kids.

All of this is exhausting enough on its own without being frustrated with things that can’t be changed or worrying about things that haven’t happened yet.

So, this year, I am going to try to let go.

I’m letting go of…

The guilt that I’m not doing enough. I  am doing the best I can.

Frustration at things I cannot change. I am an advocate for my daughter but some things I cannot get for her no matter how hard I try.

Looking for answers. Getting a diagnosis for Isla may solve part of her puzzle but it isn’t going to change our day to day life or who she is.

Inclusion. This is a joint effort by the right minded people. If they are not on your team you can’t make it happen.

Friendships. You cannot force them. They have to happen on their own. I am letting go of romantic ideals that others will go out their way to embrace Isla‘s differences.

Making decisions about the future. It is good to have choices but not all decisions need to be made straight away. Every year Isla changes so much. Who knows where this development will lead.

As long as we are moving forward and Isla is happy, feels safe, accepted and loved we are doing the right thing.

My goal this year is to live in the moment.

To enjoy our awesome, amazing girl just as she is.

Being Simply Isla.

Written by, Sara Stythe

I am a mum of 3 beautiful girls. I created www.simplyisla.com to share knowledge, resources and information I have learnt along the way on this unexpected journey with our unique youngest daughter. Isla is missing a tiny piece of her 2nd Chromosome (2q23.1 Microdeletion Syndrome, recently known as MAND). This causes autism, epilepsy and development delay (https://www.facebook.com/simplyisla/)

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*This post originally appeared on Firefly Blog and was shared with Finding Cooper’s Voice by the author, Sara Stythe.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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