Posts Tagged ‘autism’
We’re Having Fun and We’re Doing It Together
Hear me out… This phrase is our family’s unofficial motto. When you live with severe autism you work so hard every day to make even incremental progress. When you’re at the end of your short rope and sweating from the preparation and execution of the simplest task to enjoy a teensy slice of normal, you can hardly believe it all came together for one shining moment. An autism diagnosis is like having the wind knocked out of you. You know you’re likely to take a deep breath again, but when?…
Read MoreSon, My Promise to You
Hey there, kiddo. It’s me, your mom. Today you turn nine. Nine. In some ways, it seems like just yesterday I was sitting at our family’s summer camp with a positive pregnancy test in my hand. So excited, waiting to call your Dad to tell him the good news. Wondering, when I could tell your Grandma and Grandpa they were going to become first-time Grandparents. And, to be honest, worrying and hoping that that vacation margarita wasn’t going to be a problem. In other ways, it feels like these past…
Read MoreLiving in the Present as an Autism Mom
“Is he going to be like this forever?” My seven-year-old niece was quiet and hesitant with her inquiry. Her mom and dad have talked to her about my son’s autism and I was thrilled when they told me that she had some questions for me. I love spreading autism awareness. I especially love talking about my sweet boy and all of the unique, wonderful and challenging pieces that come together to make him so very special. I could barely contain my excitement that someone so young was taking an interest…
Read MoreWhere is Cooper?
Lately, I have been getting a lot of questions from followers wondering why I haven’t been sharing any videos of Cooper. Well, the answer is quite simple. I’ve been a little nervous. Lately, I’ve been receiving an abnormal amount of bullying. Some of it’s to be expected. I reach millions of people so of course not everyone is going to like me. I get that. But, lately, it’s been targeted at Cooper. About his looks. About his personality. About him in general. Name calling. Threats. Scary stuff. I’m not okay…
Read MoreA Parent’s Worst Nightmare
Lately, there have been an alarming number of stories in the news about special needs children being physically and verbally abused at school. I read them daily. I see them because I have a child with special needs and I follow people and pages that share these stories. Many times, they don’t make the front page paper. They aren’t featured on the news. I don’t know why either. Just another reason why our kids feel like second rate citizens. Everyone needs to be outraged about child abuse. Not just the…
Read MoreI Should have Known
As a parent of a child with autism, or in my case two children, I’m sure most of us have had plenty of hard moments. This was my very first hard moment, and also the hardest one. I’m a mom of twin girls born in June of 2014. Let’s call them L and T. They were born 11 weeks early and we stayed in the NICU for six weeks. Dramatic yes, but we had a good outcome. No damage on any organs, scans looked good and so on. I was…
Read MoreThank you Mom for Everything
I am the blessed mommy of twelve year old twin boys. Noah has severe, non-verbal autism and epilepsy. Owen is absolutely typical. When you have a child with autism, life is anything but ordinary. Today I’d like to take a moment to honor and THANK one of Noah’s champions and favorite people in the entire universe, his Grandma (my mom) Cindy. Cindy has been an integral part of Noah’s life since day one. She gladly accepted the role of caring for our boys when I returned to work after six…
Read MoreIt Will Be Okay
Today I watched my almost three year old run into the street in front of a car. It wasn’t how I planned. It wasn’t what I THOUGHT was going to happen. But it happened. I will literally never forget that moment, for as long as I live. Deep into a meltdown, he ran. I’m grateful to the driver who was (luckily) paying attention and spared my sons life. Backtrack- Dylan was diagnosed at 2 years and 3 months, which was 10 months ago. He’ll be 3 in February. We knew…
Read MoreWhat a Stranger Sees
I saw you walking your dogs. You had arrived at the deserted park the same time we did. Me, Cooper, Sawyer, the baby and Jamie. A family of five. We park, the doors spring open, and immediately Cooper’s squeals of joy fill the quiet, cold air. I smiled at you. You and your two dogs. You are young. Out for a hike. I imagine you don’t have kids yet. You are a dog mom. That used to be me. Now I have three boys. We are so loud. It’s safe…
Read MoreYou Were Always Special
“Hi Mrs. France, we wanted to call and let you know that everything was fine with Jack’s X-rays. There are absolutely no abnormalities.” As your mother, you would think this would have been a phone call that I was elated to receive. Instead, I hung up in tears. It’s not that I want anything to be wrong with you, my sweet boy. I was just hoping that what was going on was something that could be “easily fixed.” I thought that maybe you just couldn’t hear the world around you…
Read More