Posts Tagged ‘autism’
Rollercoaster of Love
When a friend asks me what parenting special needs is like I always try to be honest but I also hold a lot back. I want to share with them so that they can understand but also know that there are things they will never be able to wrap their minds around. Parenting a child with autism is a rollercoaster. A rollercoaster of emotions, of love, of off the wall stuff we don’t share and sometimes a loop de loop. It’s up, it’s down. It throws you in circles and…
Read MoreJust See Him and Say Hello
I’ve learned so many things on this journey of parenting a child with autism. I’ve learned that many people get scared of the word autism. I’ve learned that some people think my son is deaf because he’s nonverbal. Or that he can’t answer questions. I’ve watched people get nervous by flapping or his unique sounds. Or by his silence. I’ve watched people completely ignore him. Or they ask me questions for him. ‘Is he hungry?’ Which I respond with, ‘Let’s ask him.’ These aren’t bad people. They aren’t mean. Usually…
Read MoreThe Stuff I Prayed For
A few years ago, when we started to notice that our other son Sawyer was feeling the unique stresses of having a brother with autism, I started taking him out for breakfast every Wednesday. No matter what we wouldn’t miss. It was our time to chat and relax and eat doughnuts! We both looked forward to it. I remember distinctly thinking…I’ve never done anything like this with Cooper. And I might never. My son Cooper had never asked me to go anywhere. He was seven years old at the time.…
Read MoreA Letter to my Firstborn
I guess you don’t remember when it was just you and me. A time before having a sibling to share the attention that you so desperately craved. We had two years alone together, you and I. We would read endless books together because it was your favorite thing to do. We would go for walks, to playgrounds, to play places, to restaurants. We were out in the world and we loved exploring it. I would marvel at each new thing that you learned. I would watch with a heart full…
Read MoreDream Night at the Minnesota Zoo
Dream Night at the Minnesota Zoo is my most favorite event ever. Every year I leave feeling humbled, thankful and so happy to see so many families just like ours. There is no walking on eggshells. There is no worrying that people are judging us. There is no panicking when our kid runs or flaps or melts down. Instead, it’s beautiful children and amazing parents, caregivers, grandparents, therapists and others who live in our world. The boys each had a blast. Cooper spent his time running and looking for penguins!…
Read MoreA Victory for our Family
Here is the photo that means so much to Jamie and I. We take nothing for granted because we know how hard our son works to do tasks that seem so simple to the world. It’s not as simple as going to church. It’s pressure. It’s putting on special clothes. Riding to a new place with his personal care attendant. Walking into a building. Staying calm with noisy people. Smiling for photos. We practiced for months. We worked on skills every single day. It’s a pretty big deal. And in…
Read MoreGod Still Hears Her
I have four kids and I love being a mom, all my kids are so unique and loved! But from the moment I got pregnant with my first child, I felt God let me feel his heart for my daughter in a extra special way. I felt like she was a worshipper and her heart was going to be connected to God in a super special way. I have a memory when I was in the beginning of labor with her, I looked up after a contraction to see tears in…
Read MoreTeacher Gives Boy with Autism ‘Most Annoying’ Award
As a mom to a child with autism, I have many fears about the world we live in. I worry about children bullying him. I worry about his safety. I worry about him being targeted for emotional, physical or even emotional abuse. I worry about so many things. I’m his mom. That’s my job. But honestly, never have I worried about something like this story. A father is expressing disbelief this week after his fifth-grader, who is autistic, was given a trophy dubbing him the “most annoying male” for the…
Read MoreBut She Doesn’t Look Like She Has Autism
I hear these words so many times when I relate to someone that Alana is autistic. I’m so glad she can speak; she has no problem with that. She was able to read any book given her by age 6. We never really sounded out letters too much; just what Kindergarten taught her. But one day she magically just started to read and loves it. But there are behavior issues that will wear me down. Anywhere we go, I constantly watch her. I don’t leave her alone. I did take…
Read MoreI am One Lucky Mama
A few days ago I had an ITP meeting for Cooper at his ABA Center. We talked about behaviors, evaluations, speech, and goals. We talked about how great Cooper is doing. His overall behaviors are down but the duration is up. We talked about holds, and kicking, how his favorite thing to work for his colored paper, and how his SDQ and CASII scores have improved. We chatted about emotional problems, hyperactivity, peer problems and so on. These meetings are required for him to maintain services. They are important. They…
Read More