Posts Tagged ‘autism’
Autism is Joy. So Much Joy.
Autism. It’s not glamorous, easy, or fun. It’s cancelling plans you’d been looking forward to, and not wanting to explain because you don’t want pity or sympathy… Or even worse…someone acting like they understand something that you have to live to grasp. It is size 7 diapers at three and a half, and fearing having to put your squishy cheek little boy in adult diapers. It’s baby gates, high chairs, and it’s closed top cups. It is toys still in boxes because your son would rather spin the wheels on…
Read MoreStay Humble and Kind my Lovely Daughters
Dear Elena, Sage and Kimber, I thank you for your compassion and unconditional love. Your little sister has taught you so much in your short years. Her Autism has challenged you to learn patience, and then laughter. It has taught you a sixth sense of protection and selflessness. You are blessed, you see not many kids or even adults understand this. Her mischievous smile and laugh bring you back to simplicity. At your age I didn’t have these responsibilities that you so readily help me with. She has taught you more in…
Read MoreThe Beauty in a Sibling
Because of our son Jack’s autism and sensory issues, one of the most difficult tasks for him is spending time at doctor’s appointments. When we bring him, he has severe anxiety; accompanied by lots of tears, screaming, tantrums and sometimes self-injurious behavior. It is heart breaking. Now, this may sound crazy…but because of this, in addition to all of his own appointments, I make sure to bring Jack to all of his siblings visits as well. You’re probably thinking WHY?! Right? Well, I do this in hopes to desensitize Jack…
Read MoreA Crystal Ball
Most parents would enjoy looking through a crystal ball to see what their child’s future looks like. What will your child’s life look like in 10 years? 15? Their wedding? The day your first grandchild is born? And finally how your children are doing when you are no longer around. You don’t want to wish the days away, but getting a peak would be so fun! Maybe 10 years from now they will be turning 18. Will they be heading off to college? trade school? getting a full time job?…
Read MoreBattling Anxiety and Depression When Birthday’s Come
I think it is very safe to say that most parents of children with autism are battling anxiety or depression…or a bit of both, depending on the day. How couldn’t we? From the time our children were tiny and specialists noticed they were ‘different’, we have been fighting every day of our lives. Fighting for them to receive the therapies they need. Fighting to have them included in this world. Fighting to teach them all they need to know so that hopefully…one day…they ‘might’ catch up. And this is where…
Read MoreAt Your Lowest Point, Have Faith
I should be at church right now. There are a whole lotta reasons why I’m not. Sawyer is at hockey practice with Jamie. I have no one to watch Cooper. I need to pack for our trip and clean our house and grocery shop and make the itinerary for the grandparents. Anyhow, I’m sitting here, drinking coffee, watching two of my boys play, and thinking about faith. It’s no secret that my son is thriving. We’ve figured out how to help him in all the ways that he needs help.…
Read MoreI Will Never Be the Same
Yesterday, I couldn’t get out of bed. I barely willed myself to do the dishes. I can’t explain why. Nothing had really “happened.” There wasn’t some explosive meltdown or feelings of inadequacy. I just got scared. So scared. I remember when I was a child and I would wake up from a bad dream and find myself in between my parents, completely safe and free or fear. Now I find myself in my son’s bed, my body curled next to his, never wanting to let go, knowing every morning I…
Read MoreThank You to our “Graycare” Team
Fall is always a rough time of year for me emotionally and mentally. I know it, I prepare for it, gear up for it and let the chips fall where they may. This year fall has been exceptionally challenging because my son started kindergarten in a new school. His autism and anxiety demand routine. To say this transition has been hard is an understatement. Not to mention that only 6 weeks into the school year his new school has asked us to find a different placement for him (that’s a…
Read MoreTips for Engaging with my Child during the Holidays
Prior to my son’s diagnosis I knew nothing about autism. Zero. So, I understand completely that most people have no idea how to approach or connect with an autistic child. If autism wasn’t thrown in front of me like a speeding bus, I would be completely oblivious. But it was, and I now have a bus load of experiences that have left me yearning for a world where people take more time to get to know the children in their lives who have disabilities. Most people are friendly. They say…
Read MoreWhen You Think About Grandpas
When you think about a grandson’s relationship with his grandpa…. I imagine baseballs being thrown. I imagine basketballs being shot. I imagine a little shadow following grandpa around asking nonstop questions. I picture trips to the Dairy Queen for an ice cream cone. I think of hand holding. Snuggling on the couch watching cartoons. Or country westerns. Or the auto channel. In my head I hear stories….‘Back when I was your age.’ I imagine special trips and holidays. I’ll tell you the truth. We got something different. Not less. No…
Read More