Posts Tagged ‘autism mom’
Learn to Bend
My daughter is about to be 12. In 19 short days she will be in her last preteen year. She is beautiful, smart, lives in her own world that we proudly insert ourselves in everyday and she also has autism. Severe, non-verbal, complicated autism. And this world we live in is not designed for her. We have to make constant alterations to the environment around us to make it tolerable for my girl and her needs. But unfortunately the environment and the people in it, don’t always want to bend.…
Read MoreLove Needs No Words
Here is my blue-eyed, blonde hair, sweet boy looking at me. He shows his love through his eyes. He may be unable to tell me he loves me verbally, but he shows me in his unique way. Thinking back three years ago, life was a lot different. It was the start of our autism journey. It was the start that our life would change forever. He was not making any form of eye contact. He would not interact with peers. He would always want to be left alone. It was…
Read MoreOur Stories Are Not All the Same
This will be my most unliked post, and I get it. I’m never trying to “start something” or offend anyone, but I do want to be honest in how I feel on this journey. My name is Danielle. I share our families journey at Story of Noahism. I made a tiktok a couple weeks ago and on that app comments get a lot of attention. More so than IG. And one of my top comments meaning hundreds, almost 1k to be exact, of ppl have liked it, goes something like…
Read MoreWhen I Read About Feda Almaliti
Even before my son Johnny was diagnosed my life has been all about autism. Trying to somehow figure it out so I could help my son. At first it was asking questions, then it became looking for help, and now it’s fighting for him. Sometimes I forget that everyone doesn’t know about autism. I forget because we live in a world where everything is catered to us. All my social media knows I talk a lot about autism. My ads are all supplements that are supposed to help my child,…
Read MoreThis Is Autism
It’s different. It’s difficult. It’s beautiful It’s gut wrenching. It’s time. It’s heart. It’s patience. It’s anxiety. It’s depression. It’s love. It’s overwhelming. It’s grace. It’s tears. It’s joy. It’s appreciation. It’s lonely. It’s surprising. It’s constant. We set out on this journey six years ago (officially)…should have been sooner but doctors drag their feet. Obtaining a diagnosis requires you to spit fire until someone gets sick of you banging their door down. The therapy is prescribed but the centers won’t take you until the child is three because otherwise…
Read MoreI Didn’t Have the Capacity For a Confrontation
Right after we moved into our current home, I registered to attend several open houses for homeschool co-ops and tutorials in this area. I will never, for as long as I live, forget one specific open house. As one of the teachers shared her plans for the fall semester, she referenced the potential number of students in her classroom based on the current number of interested families. “We have seven students…” she began. That number didn’t include Milo. I’d attended the open house with a friend who also had a son with special needs. That number didn’t include her child, either. Another teacher…
Read MoreThe Brave Ones
What is bravery? I’ve been thinking about that question lately. The definition is the quality or state of having or showing mental or moral strength to face danger, fear, or difficulty. It goes onto give examples of a brave firefighter. A brave nurse. A brave athlete. And no doubt, yes, they are brave. They face burning buildings and medical tragedies and catch the winning pass. They do things I could never do. They are brave. But I think about bravery in another way too. Imagine going out into a world…
Read MoreTo the Woman Who Stayed
To the woman who stayed… A week or so ago I found myself in a pretty tough situation out in the community. We were at an orchard with our family and friends. My son Cooper decided he was done. He was done with the apples and the tractors and the noise and sounds. And walking. Which is fine. He had done amazing. Except we were a mile away from the exit. His decision came out of nowhere. And we were stuck. My sweet misunderstood boy is 9 years old. Almost…
Read MoreI Never Stopped Talking To Him
Yesterday I interviewed my dear friend Leasa of Cody Speaks. If you don’t follow her you should. Her son Cody is 20. He loves videos and the mail. His autism was discovered when he was 17 months old. And he started talking at 9 years old. When she said that on the live, comments immediately came in asking what she did. What is the magic thing that got him to start talking? I understand because when I found Leasa and Cody, I asked the same question. My son was 7…
Read MoreHey You
Psst, hey. Look at me, I’m over here. Come close. I want to tell you something. You won’t win today. To be honest, I haven’t really noticed you in a while. I almost forgot about you. It seemed like the medicine was working and my son Jack was calmer and a little less agitated. Then, just last month, you returned with a vengeance—all ragged cuticles and sleepless nights. Anxiety. You would think I’d be used to you by now—that I could anticipate your next move, and figure out a solution,…
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