Posts Tagged ‘Autism meltdown’
Tomorrow is a New Day, but the Struggles Remain
Our house is dead silent. It’s the middle of the day and everyone is sleeping. Not just because it’s nap time, but because our entire family has to decompress from what just happened. The hour-long meltdown that just occurred on the drive home. This always happens. We can’t go anywhere anymore, without a meltdown on the way home. Even when I give warnings before it’s time to leave. It doesn’t matter if I warn him 5 minutes before or 5 times for 30 minutes. There will always be a meltdown.…
Read MoreThe Choices We Make
Sawyer, Tonight you called me from dad’s truck after your hockey game. I answered, even though my hands were full. You screamed, ‘I scored a goal!’ into the phone. On my end I’m sure you heard screaming. But not in celebration. See I was in the middle of a brutal meltdown with your older brother. A scary one honey. No ones fault. Not his. Not yours. One like we haven’t seen in 15 months. Not since the last time. It was over the mail. And Amazon. And packages. I was…
Read MorePetition: BAN Videos of Children’s Autism Meltdowns
Imagine you are having your worst day. You lose your job, furnace breaks, your dog runs away and your spouse asks for a divorce. You are clearly struggling. And then someone asks you a question that you clearly don’t care about and you lose it on them. You yell. You get angry. You really go at it. Not your finest moment, right? Now imagine someone films it and puts it on social media. How would that make you feel? Vulnerable. Exposed. Embarrassed. Humiliated. Hello, my name is Kate and I…
Read More3 Strangers Who Saved us During a Meltdown
Whether you are the parent or the audience, there is an awkwardness and discomfort when dealing with a child in public who is pre-meltdown, mid-meltdown, or just hysterical. As parents, we plan an exit strategy. Some of us even do this before we get there. But sometimes (or most of the time) it happens when we least expect it. When we didn’t plan. When there isn’t an easy escape route in site. We find ourselves wondering: Do we really need these groceries? So what if I paid $300 to be here.…
Read MoreThe First Time
There are a lot of first times in our children’s lives. There are good first times and bad first times. This is life. And then there is the first time another person is mean to your son because he is autistic. It finally happened. I’ve been waiting actually. I knew it was coming. Cooper is so loud. He runs. If he gets super stressed he will push people. It’s partly sensory seeking. Partly out of not knowing what to do. He has very, very little self awareness. And zero understanding…
Read MoreI Don't Know What's Wrong
I made the decision when Cooper started at Fraser that either Jamie or I would pick him up 5 days a week. I did this because Cooper is nonverbal. And he is getting highly intensive therapy 5 days a week. And if I don’t pick him up I have no idea what is happening in his world. Imagine never being able to ask your kid how their day was. Or what they did. It really, really stinks. So every single day, either Jamie or I, sit in the Fraser parking…
Read MoreAn Honest Look at Playing with Cooper
I took this video of Cooper last night. We were ‘playing’ trains. I have so many memories of setting up this train track with Cooper and thanking God that he played with something. And telling therapists that he was fine because he played with toys. I was lying to myself. Lying to them. I set the train track up. I put all the trains together. If one thing is off he will destroy the track and throw every single piece. There is no putting things in the trains. No stopping…
Read MoreLooking Back
I’ve been down since Cooper’s birthday. So has Jamie. We’ve done a very good job isolating ourselves and Cooper. And when you live in a bubble it’s incredibly easy to block out delays and differences. But the party brought it all out. No hiding. Don’t even get me started on age 4 as a milestone. I know we will bounce back. We always do. It just needs to run its course. So, anyhow I spent the night looking at videos on my iPad. I absolutely love seeing videos of the…
Read MoreSaying It Out Loud
So for the first time ever I had the words, “I’m sorry…he’s autistic” on the tip of my tongue and couldn’t bring myself to say it. We are getting new carpet in our basement and on Sunday two people from the company came over to show us carpet samples and measure. Jamie went downstairs with the guy and I stayed upstairs with the boys to look at the samples. The woman was showing me the different styles and had them spread out all over the floor. As usual Sawyer was…
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