Saying the Words Out Loud

“I pray she’s okay…that she doesn’t face the same challenges as Leo,” I expressed to my Mom, a couple of months ago, as we were driving. Pausing for a moment, silence palpable as I bit my lip, hesitant to continue on…Afraid to allow my thought a voice… “And if she is okay,” I said, my words already cemented in guilt… “If she’s okay…maybe she can take care of her brother when they are older.” “I know,” my Mom responded quietly. “I know.” My sister, Victoria, has special needs. Growing up,…

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The First Day of Autism

The first day I realized my baby boy was autistic is one of those days that will forever be etched in my memory. Like the day my husband and I found out in the ultrasound room that our baby was a boy, or the night we walked together on our favorite trail while I was in labor with him. My husband sang to my stomach to let Johnny know he was loved, and that we were waiting for him on the other side of the dark. I remember it like…

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After the Diagnosis

It has taken me almost a year to write this.  On February 16, 2017 my life changed.  Keegan got his diagnosis of severe (level 3) autism.  I had known in my heart for over six months that it was autism, but prayed that it wouldn’t be, and that the early intervention would start working. I had prayed that his symptoms would go away, but when they didn’t…I had hoped for a diagnosis of mild.  Looking at his symptoms I knew it would be more than mild, but I kept telling…

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The People You Meet Along the Way

When I first received the news that my son had autism over three years ago, my mind instantly started making a list of the potential challenges that awaited us in the future. Will he ever talk? Will he ever be potty-trained? Will he need to be in a special classroom with other disabled children? Negative or difficult scenarios would keep me up at night, and I’d toss and turn thinking about how I was going to help him face each one. Fast-forward three years later, and ironically, many of those…

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When Grief Affects Every Aspect of your Life

I was swallowed into the autism pit and it almost destroyed every relationship in my life. I became so caught up in my grief that I began to become bitter towards my friends and their children’s growth. Seeing their accomplishments devastated me. I would become resentful listening to them ‘complain’ about running their kids around or how many activities they were in., etc. I would snap at them saying, ‘at least you aren’t spending your Saturday’s in therapy.’ I stopped answering the phone and they eventually stopped calling. It drove…

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Autism From a Grandparent’s Perspective

My youngest granddaughter is visiting this weekend. I have six of these treasures ranging from ages 10 to 18. I adore them. I drive 3 ½ hours one way to go to a 30-minute concert, only to turn right around and drive back to be at work the next day. I probably have ten thousand pictures on my computer of zoo trips and vacations and holidays and amusement parks and ordinary days. I LOVE being their “Grangie”. However, a visit from my youngest, Grandgirl #4, (GG 4) requires strategic planning.…

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I Thought I Knew About Autism

I was heartbroken when my son was diagnosed with autism. You want to know why? Because of what I thought I knew about it. I had an idea in my head of what autism was. And boy was I wrong. There were a lot of things I didn’t know. The main thing was, I thought that people with autism couldn’t show affection. Or didn’t want to. I thought it was hard for everyone on the spectrum to make connections with others. The minute that the doctor told me that Carter…

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My Son, His Sister’s Protector

As my children grow, I have watched their sibling relationship start to evolve and take shape. Some days I sit back and observe them, in awe, amazed at what a perfect match they are. Other days I am playing referee and constantly breaking up arguments. I know arguments are a part of any relationship in life and siblings are no different. My children are complete opposites, and honestly I wouldn’t have it any other way. My son Daniel, who is 22 months old, is your typical almost two-year-old boy. He…

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The Resilience of a Sibling

I’ve always wanted to be a mom. For as long as I could remember, I’ve dreamt of having kids of my own and having a big family. When my husband and I got pregnant not too long after getting married, we were ecstatic. We found out we were having a boy! My husband, being the sports enthusiast that he is, was thrilled as well. We dreamed of everything we would do with him, all the things typical boys would love. Dawson was born and he was perfect. When he was…

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Stop Worrying and Enjoy Your Child

Yesterday, there was a beautiful noise at our house. One that seemed out of place. One that we rarely hear. One that for years was hard to produce. It was the deep, loud, silly, belly laugh of Cooper playing in a pool with his brother and his brother’s friends. He was in there for three hours total. He was one of the kids. I have never seen a happier child. Or heard a better laugh. We are talking pure joy. As I watched him play, I was overcome with emotion.…

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