He can Show Me

I just got home from two days away from my babies. When my husband pulled up in the arrivals section of the airport, I practically ran to the vehicle. There is nothing better than coming home. Sawyer, one of my middles, opened the door and jumped in my arms. My other middle, Harbie, screamed….’mommy!! I’ve. Been. Waiting. For. You!’ And my daughter, Wynnie, she was all smiles. With Cooper, he’s more standoffish. A wave. A coy smile. When I climbed back to him, he immediately grabbed my hand and pulled…

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His Spectrum is His Color

“When the professionals first told me about autism, they described it to me as a spectrum. When I pictured that spectrum, the one they described to me, I imagined a long line drawn with a thick black sharpie across a white wall, down an endless hallway. I hated the black and white and the dark, sad, clinical parts of autism. I hated straight lines too. So I started thinking of my son and his autism as a spectrum of color, like I did in the beginning, before the fear and…

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I Will Listen

I think a lot about what a privilege it is to be able to communicate and be understood. Probably more than the average person. Not always of course. When my son was 1 and 2 and even 3-years-old, and not babbling, I remember crying in worry on the phone to my mom and her saying…’everybody talks Katie.’ I can still here her saying it. The words providing so much comfort at first. Even my dad sneaking in…’I just know he is going to talk sweetheart.’ Well, here we are. 11-years-old…

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Beauty in the Things We Don’t Understand

It doesn’t have to make sense to me. Or you. Because it makes sense to him. My son Cooper loves things. Treasures we call them. DVD cases stacked up tall. The actual DVDs in a bin in the cupboard. Books. Piles of paper. Every color. Train magazines from long before he was born. And a very special pile. A smaller one. Of pages ripped out of certain publications. Each one containing something of value to him. Train Calendars. Postcards. Photos in frames to his back. Every so often pointing to…

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I Needed to Change

Excerpt from the final chapter (my favorite) of Forever Boy: The words from the professionals ran through my head. ‘Your child will never talk, ride a bike or make a friend.’ ‘Your child has the most severe case of autism I have ever seen.’ ‘If a child doesn’t speak by age four then game over.’ When we reached the end of the road, which happened way earlier than I thought it ever would have, I said no more. The world, society, me…we were all trying to make Cooper into something…

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Our Autism Life

Let me tell you about a boy I know…His name is Cooper. He’s the one on the right. Today, we celebrated him. And we also celebrated his brothers. And our family. And how autism is woven throughout all of us. Impacting each of us in different ways. We had a party too. We had ice cream and sprinkles and chocolate syrup and cupcakes. And we celebrated this boy. The one who was born seeing and hearing and feeling and thinking in his own unique way. Some people tried to tell…

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Just Start a Conversation About Autism

You don’t need a blog with lots of followers or to speak to hundreds of people to make a difference. You don’t need to have written a book or to pound the pavement with your message. Just start a conversation. It’s April 1. Our eleventh Autism Awareness Month. And with awareness comes acceptance. Understanding. Inclusion. This morning I am headed to Coop’s school to read a book to the fifth graders, his peers, about autism. To make something different seem less confusing and unknown. Just start a conversation about autism.…

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My Son, Thank You for Teaching Me

My son, On this eve of April, Autism Awareness and Acceptance month, I want to tell you how proud I am of you. I want to thank you for teaching me, our family, and even the world about autism. I want to thank you for being patient with me as I settled into this unique life. I want to thank you for being brave, determined and for being yourself. You are more yourself than any other person I have ever met. I want to thank you for trying. For letting…

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Be Brave Enough to Travel the Unknown Path

I could tell you a hundred things this kid has taught me in his eleven years. More than most adults I know honestly. I had no idea when I was pregnant with my first born that he would end up being the teacher that I needed. Or that a child would turn me into the person I was meant to be. Funny to think about how I actually fought it at first. See, that’s the fear of the unknown. It’s a natural human reaction I suppose. I was scared. It’s…

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A few Simple Ways to Support Autistic Individuals and Their Families

April is Autism Awareness/Acceptance month. Here are a few simple ways to support autistic individuals and their families: 6. Reach out – Whether it to be a friend or family member or neighbor who lives down the street. Reach out. Say hi. Get to know them. And even if right now you say you don’t know anyone who has a child on the spectrum, you do. Family member, friend, neighbor, co-worker, school peer. We are out here. Get to know us. Ask questions. 5. Invite – I don’t know why…

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