Posts Tagged ‘autism child’
Two Sleeps
I check on my three boys every single night before I go to bed. I make sure they are breathing and covered up and safe. I’m pretty sure every mom does that. I even sometimes wonder at what age I will stop doing so… Anyhow, last night, I was positive this one was sound asleep as I bent down to kiss his perfect cheeks. As my lips made contact, he opened both eyes, but didn’t make a sound. What he did do was lift up his hand and wave his…
Read MoreFocus on the Color
I want to brag on this little boy for a minute. His dad and I just finished up his yearly assessment with the state. I know every country is different when it comes to autism. Heck, states and even counties are different in the USA. Services and supports vary. Some better than others. We live in a fantastic state for disabilities. Minnesota values people with additional needs and prioritizes their independence, goals, and dreams. We are blessed to get the supports and services that we need to help our son…
Read MoreNew Traditions for a New Era
When I was growing up, we celebrated every single holiday and birthday with my extended family. There was a get-together about once a month with at least 20 or so family members. My dad, who’s one of seven siblings, comes from a big Italian family. There was always something to celebrate within the family, which meant we were always together. There were many traditions during the holidays. Three-course meals that included either lasagna or ravioli on Thanksgiving, Christmas, and Easter. Playing board games and staying up until midnight on New…
Read MoreA Christmas Wish from a Stranger
This holiday season we have been touched with the spirit of Christmas by friends and complete strangers. Christmas is a little different for us. My son, Johnny, who is almost 6 and on the autism spectrum, doesn’t ask for toys or say what he wants. He lacks communication skills and understanding. We can go to the store and he may look and touch and couple things, but never says he wants them or tries to take it with him. I’m sure that sounds amazing to many parents, but for me…
Read MoreWhen All Else Fails, Ask For Help
Helpless. Desperate. Inadequate. These words describe how I feel as the mother of a child with limited verbal abilities who is inexplicably wasting away before my eyes, refusing to eat and unable to tell me why. Evie is my five-year-old daughter on the Autism spectrum, and she’s been thriving in Kindergarten this year, making progress in many areas despite the mess Covid has made of things. How is it possible that a problem like this can pop up so suddenly and coexist among all these milestones we’re meeting? We’ve put…
Read MoreCan You Feel My Vibe?
My son, who was diagnosed with Autism Spectrum Disorder (ASD), was also diagnosed with Sensory Processing Disorder (SPD). As part of his profile, he has a heightened sensitivity to light, sound and the energy of his environment. To navigate loud places, or areas that have unexpected sounds, has been challenging. We found bright lights could be over stimulating, making movie theatres, fairs and arcades unpredictable. He would become so revved up, literally bouncing from one thing to another, and his impulse control was non-existent. He also became disregulated by itchy…
Read MoreThey Have A Story to Tell Too
I have three sons. Most of you know Cooper. He has two younger brothers. A lot of folks ask about them. They want to know why I don’t share them more. Some are asking sincerely. Some equate photos on Facebook to love. Letting me know that I love my other two children less than Cooper. I don’t feel that’s true but what do I know I guess. I’m not expert in parenting, that’s for sure. Sawyer is 7 and Harbor is 2. They are both exhausting and amazing at the…
Read MorePublic Schools Accused of Defrauding Special Education Students During Pandemic Nationwide
Our lives are often broken up by dates that mark significant events that change us. Our wedding dates, the birthdays of our children, the death of a family member we loved and cherished.. And for parents in 2020, there are various dates throughout the second week of March that will stay with them forever. For us, March 11th 2020 is the day our world stopped. My husband began working from home, my small business was forced onto a virtual platform, and so were our therapies for our six year old…
Read MoreHow You Found Your Smile Again-A Letter to Jack, My Autistic Son
It’s been seven months since the world stopped. You were so sad in the beginning. You didn’t want to get out of bed, and you didn’t want to play. But the most shocking thing was this: you didn’t want to watch movies. Do you remember that? It was the first time this has ever happened. The sweetest thing in your world seemed sticky and irritating. It was confusing for you, and for all of us. Miss Janell would probably call it “topsy-turvy.” This kind of thing happened to a lot…
Read MoreStates Look to Put Label on Driver’s License for Autism
My son Johnny was almost five years old when he was diagnosed with Autism Spectrum Disorder. That was almost one year ago. Although we were told by experts they were unsure, I could have pushed to have him diagnosed sooner. To be completely honest, I think I was afraid of the label. I did not want people to hear he was autistic and assume so many preconceived ideas about him. I did not want them to expect the worst from him, or love him less. I worried teachers would dislike…
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