Posts Tagged ‘autism blog’
The Many Emotions of Covid
Like most of you, since Covid 19 struck, I feel like I have been underground these past few months. I have been consumed and somewhat distraught by the many issues plaguing our society. Too much clutter in my brain has prevented me from digging into my autism mom heart and sharing. Fear not…I think I have found something meaningful (I hope) to write about. If you enjoy my blogs I thank you for your patience. If you don’t…well then you don’t. I cycled through many emotions during the beginning of…
Read MoreQuarantine, Autism and Never Giving Up
Oh, quarantine and autism. You have been a doozy. You would think we would have embraced this socially distant period like all the autism memes suggested at the beginning of this lockdown. “We’ve been social distancing since before it was a thing!” No. These past few months at home have allowed regression to creep back in, distressing my boy at a whole new level. I knew it would, right when we said goodbye to his routine back in March. It was inevitable. Unfortunately, that expectation did not make these months…
Read MoreA Boy of No
Once upon a time, there was a boy who always said no. When he was very small and didn’t have his words, he learned to sign it with his fingers. When that didn’t work and his mother or his father kept asking him to try a bite of a banana, he simply clamped his mouth shut, and shook his head. No. Later he learned to talk—first one word at a time, then two. After a long wait, he began to string them together like bright lights on a wire. But…
Read MoreNever Miss a Moment
Recently I took my son to a local indoor water park for a few hours. He loved it. I had a few very interesting social observations. One of the most obvious was how we, the parents of special needs kids, never miss a moment in our kids lives. We are ever present, hyper vigilant, (over bearing at times) and just stuck to them like their own shadow. I get to experience and watch 98% of every single thing my son does. It dawned on me when I was watching two…
Read MoreHope, Shifting
Hope: to cherish a desire with anticipation, to want something to happen or be true. –Merriam-Webster Dictionary In the beginning, I hoped he would outgrow it. I hoped he would sleep through night at least once, and manage cereal from a spoon, and for the love of all things holy and good, stop shrieking. I hoped he’d learn to read, and understand fractions, and figure out how to eat his food without rolling it around in his fingers. I especially hoped he’d stop the rolling thing when we had spaghetti and…
Read MoreA Father Who Stays
I made a list once of all the great qualities and traits the perfect boyfriend would have. As a middle schooler the most important thing to me was personality. I loved to laugh so he needed to be funny. The list also included blonde hair, green or blue eyes, tall, good looking, nice, romantic, outgoing and other superficial things. As I matured, the shallowness of my list dwindled and I realized the qualities that truly mattered in a partner. Hair and eye color wasn’t a big deal anymore. He didn’t…
Read MoreCaptain’s Log: Day 6, Social Distancing
I want to be crystal clear about something. Never once have I wondered what it would be like to spend 24 hours a day with my husband and beautiful children. Never have I considered homeschooling my children. Never have I considered moving out to a remote area, having a dozen more children, living off the land and singing songs like the Von Trapp family for fun. I like work. I love daycare and school. I love people and socializing. And I love Target. So, it’s safe to say this has…
Read MoreAutism and Anxiety
I have the most amazing son. He is 9-years-old. Almost double digits. He loves dancing and holding hands and Steve Harvey. He loves climbing in my bed at 1 am and carrying around 17 sheets of paper, all different colors of course. He smells like the wind. And he can find mud anywhere. He has autism. He is autistic. It is part of him like his blonde hair and ruddy eyes. He was nonverbal until he was 8-years-old. Today, he has 15 or so words. They come and go. He…
Read MoreCaptain’s Log: Day 5, Social Distancing
There are no rules during Corona. It seems we have entered into a reality where time doesn’t matter. Like a Las Vegas casino or the days in between Christmas and New Years Day. Or that movie Groundhog’s Day where every day is the same. Our calendar is wide open until July. Every planned event now with a red line through it. The weekdays are the same as the weekends. We wake up. Drink coffee. Eat breakfast midday. And again an hour later if you are my children. And then ask…
Read MoreCaptain’s Log: Day 4, Social Distancing
Positives: I finished my laundry for the first time in nine years. All of it. Done. We are cleaning our basement and finding amazing treasures and crap. So, that’s great. Struggles: We are all spending entirely too much time together. I feel like I’m not going to know how to socialize after this. Sawyer: ‘Mom, who was your favorite boyfriend besides Dad? Was he better than Dad?’ Me: ? Sawyer: ‘Mom, the baby is in your drawer! You know the one, beside your bed, that I am not allowed to open…
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