Posts Tagged ‘autism blog’
Balance and Progress
We just went for a family walk plus two. Cooper knew there was a train magazine waiting for him at the mailbox so even though it was not ideal walking, (90 degrees!) we got a good walk into the park before getting the mail. Before we stepped off the porch, Cooper grabbed my arm to get my attention, covered his ears with both hands, and pointed to the sky. Fireworks. He was scared. I think about his world sometimes. Fire and noise in the sky. Scared to step off the…
Read MoreBalancing Two Different Worlds
Tomorrow is the 4th of July. A fun, typically outdoor, social, loud, hot holiday. It’s also a holiday that can be very challenging for families like mine. And put a lot of stress on us. See, our older son struggles with a lot of the parts that make up the fourth. He is scared of fireworks, although he loves to watch them on his iPad. The second he hears one, no matter how far away, he takes off running and hides in our pantry. Parties overwhelm him. Most noises are too…
Read MoreI Choose Gratefulness
It’s interesting to know how much my attitude plays into this whole mothering thing. When my oldest was diagnosed with autism six years ago, my focus was him and him only. He was the one who was struggling. I needed to help him. I learned after hitting my breaking point, that my mental health mattered too. I was exhausted. I was worn down. I felt the weight of hope firmly on my back. And my attitude was being affected. I was looking at things through a sad lens. A heartbroken one.…
Read MoreMama, We Are All In This Together
Mama, you are not alone. I have lost sleep too, and I don’t have all the answers. I also don’t have a crystal ball with what this back to school season will look like. My special needs kiddo also can’t wear a mask, and he can’t communicate when he’s feeling sick. He still puts things in his mouth, and he still spends more time than most on the floor. My son misses routine, and teachers, and friends. He also needs to see your mouth and your eyes when learning how…
Read MoreSome Days, I Just Want to be a Mom
When my daughter Sloane was first diagnosed with autism, I jumped both feet in the water trying to get her every resource that was available to her and arm myself with as much knowledge as I could to help her have the best the care, therapy and life that I could provide her. I also wanted to get perspectives from other parents with children with autism and learn from their journeys. And through the years, I continue to seek out advice and read stories from other parents of children with…
Read MoreA Better Place
I read what you said, how special-needs kids should be kept at home instead of going back to school this fall. “Let’s just keep these kids at home and when this passes they can come back to school. Do you really think they’ll be any different after a year of staying home with their parents?” After that you used a very ugly r-word but I am not going to repeat that quote because honestly, what’s the point? It only makes me feel angry, and raw, and defeated. I don’t usually…
Read MoreOur Life Before Autism
Every night you fall asleep wrapped up in your favorite teddy bear. Tonight, was no different. You snuggled into the bear that is larger than you, wrapped yourself in blankets, and awaited your bedtime stories. We read 3 bedtime stories every night. You usually push for more, but tonight you were fast asleep before I even finished the second book. You do not fall asleep during the stories a lot, but when you do it is always my favorite. I stay a few extra minutes to soak in every ounce…
Read MoreA Letter to My Younger Self
“Dear Amy, I know you’re feeling pretty bad right now. The other kids make fun of you a lot, and you don’t know why. You’re trying really hard to be friends with them–doing all of the things you think they want you to do, and it’s just not working. But there is one thing you should know: It’s not your fault. Other people might say that, and you won’t be able to listen to them; but I am hoping that you will if it’s coming from me. It’s not your fault. Say it over…
Read MoreLet There Be a Sister
One green, green day, the Lord looked upon the world. He admired his sons and his daughters. He smiled at all of the wonderful animals, and he gazed tenderly at each new baby. The round blue earth, with all of its people and puppies and flowers and trees, seemed complete. But the Lord was not so sure. He thought about it for a while, and then he said to himself, I am not done yet. I need someone who is a little different. Let there be a boy, he said,…
Read More‘No’, the most complicated word in the English language
NO. One of the smallest words in the English language with the most power. Such a small word. Sometimes it’s the first word you learn. As an adult, it’s easy, short, authoritarian. Many times you don’t even have to explain it. When I became a mom, I knew this word would become important. I knew it would be challenged by young minds. I knew as my kids became teenagers, it would become even more important. I never really gave it much thought, never really paid attention to the power and disappointment…
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