Mama, We Are All In This Together

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Mama, you are not alone. I have lost sleep too, and I don’t have all the answers.

I also don’t have a crystal ball with what this back to school season will look like.

My special needs kiddo also can’t wear a mask, and he can’t communicate when he’s feeling sick. He still puts things in his mouth, and he still spends more time than most on the floor.

My son misses routine, and teachers, and friends. He also needs to see your mouth and your eyes when learning how to articulate sounds, and read emotion. 

I am tired of all the waiting, the unknown, and the heavy decisions we are going to have to make.

I’m tired of losing sleep, and I’m tired of feeling overwhelmed.

I’m tired of seeing school plans that don’t address the special needs population AT ALL.

I’m tired of worrying about missed therapy minutes and the thought of another year of unknown.

I know you’re scared mama, me too.

We are also angry, anxious, overwhelmed, and full of fear.

As special needs parents we are used to making tough decisions, and somehow it never seems to get easier. But in this current situation NOTHING feels like the “right choice” and that’s weighing heavy on my heart.

We are currently faced with impossible decisions, what will keep them safe?

What will keep them safe while also preventing further regression?

How long will social isolation last since they are part of such a vulnerable population that isn’t being addressed?

Please know that I have faith in you, I can see that you are and will always do the best for your family, and that we are all in this together. 

“We are not all in the same boat, but we are all in the same storm.”

Keep your head held high mama.

Written by, Amanda DeLuca

Amanda is a mom of two, her oldest son is on the autism spectrum and was non-verbal until the age of four. She is a master iep coach, owns a dance studio, and writes for her page Jackson’s Journey, Jackson’s Voice.

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Finding Cooper’s Voice is a safe, humorous, caring and honest place where you can celebrate the unique challenges of parenting a special needs child. Because you’re never alone in the struggles you face. And once you find your people, your allies, your village….all the challenges and struggles will seem just a little bit easier. Welcome to our journey. You can also follow us on Facebook, subscribe for exclusive videos, and subscribe to our newsletter.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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