Posts Tagged ‘autism blog’
When The World Isn’t Quite Right
I’m sitting here in my office (hiding), and thinking about how crazy the world is right now. In fact, I keep trying to explain to my children that this has never happened in mommy’s life and it will hopefully never happen again. They don’t seem to understand the severity of it and Sawyer keeps reminding me that last year we had the Polar Vortex and he missed a whole week of school. Which was also awful FYI. We couldn’t leave the house then either because our eyelids would freeze shut…
Read MoreCaptain’s Log: Day 3, Social Distancing
No one seems to be wearing pants anymore. One is in the hot tub at 8:30 am and is starting to resemble a Frat Boy. One is eating chocolate doughnuts. One is carrying a plunger around and hitting anyone who he comes in contact with. The remotes are missing. Every device is on max volume. Which is almost as annoying as my husband screaming, ‘turn it down, for the love of @#$’, every 30 seconds. The three little ones are always hungry. Always. But seem to hate every food I offer…
Read MoreMy 10 Novel, and Not So Novel, Tips for SUCCESSFUL Self Distancing (survival)
LOCK UP THE PANTRY: Yup, you read that right. If your children are anything like mine, they are always hungry. And on chaotic days with no real rhyme or reason, they tend to be even hungrier. I will find little hoard piles of food throughout my house and wrappers hidden in couch cushions. It makes me crazy. Remove the impulse and lock the food up unless it’s meal time. GET OUTSIDE: Go for a walk. Hunt for rocks or leaves. Set up a trampoline or a water table. Go for a…
Read MoreThe Pause
For the last three and a half years I’ve told you I loved you every night before bed. As a baby I would hold you close in your snuggly swaddle. You eyes would get heavy and your small body would melt into mine. It would feel like an eternity since you hated to sleep. Fear of missing out people would joke. As your beautiful baby blues would eventually close you face would be so peaceful. I would ever so carefully place you in your crib with promises to see you…
Read MoreSometimes Autism Keeps You From Me
I’ve wondered, when did autism purloin you? Did it creep in one night, and snatch the words from your tongue? When did it show up, and make it so hard for you to look at me? I want to hold you. I want to hug you. I want to play with you and sing with you. I want to hear you say you love me… Autism. Sometimes it keeps you from me. You don’t always want to look at me. You don’t always want to be held, or hugged, or…
Read MoreI Hope You Know
My sweet girl, You have no idea how much I love you. But the truth is, I don’t yet know how much you love me either. We are a mommy and daughter communicating in different languages and I am still desperately trying to learn yours. You don’t hug or kiss me yet, but that’s okay. I just want to know…. Do you feel loved when I hug and kiss you? When I smile and tickle you? When I sit and try to play with you? When I sing for you…
Read MoreIs My Son Happy?
‘Everyone has a different idea of what happiness looks like.’ Is my son happy? I think about that a lot. As do many parents of children who struggle to communicate. Who can’t show us. For a lot of years I honestly didn’t know the answer to that question. At age five my son didn’t laugh or smile much. He didn’t enjoy leaving our house. At home, he isolated himself a lot. He didn’t play or interact really. He was full of anxiety, only we didn’t know because anytime we asked…
Read MoreSocial Distancing With Autism
I’m getting a tiny chuckle (with love of course) at the people panicking about social distancing. We have been social distancing for nine years. Not by choice of course. No one told us we had to do it. It more happened out of necessity. Because of autism. When someone in your family doesn’t understand the world we live in and the world doesn’t understand him or her in return…well, you stay home more often than not. Because home is safe. You learn to social isolate real fast. See, my sweet…
Read MoreFrom Non-Verbal to Verbal
I decided to take a much needed nap yesterday while my baby slept. You know that old saying…sleep when the baby sleeps? I was practicing that. For the first time in ages. Because my baby, well, he is giving me a run for my money in the sleep department. I thought my older son was a bad sleeper? Ha. The newest Swenson says, ‘watch this.’ Anyhow, I slept for two glorious hours. And I woke up to the most beautiful sound. One I had never heard before. One I had only…
Read MoreNever Give Up
It’s funny how life seems to happen. And sometimes in the most bizarre ways. For nine years you social isolate, so much in fact, you almost forget how to socialize. You know you can’t go to Walmart, or candy stores or parks or even walk down the street safely. If there are crowds or lines or loud sounds it ain’t happening. So, you adjust. You figure it out. You learn to live and keep going. Then, suddenly, it seems to get easier. Not overnight. Far from it really. Instead after…
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