Never Miss a Moment

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Recently I took my son to a local indoor water park for a few hours. 

He loved it. 

I had a few very interesting social observations.

One of the most obvious was how we, the parents of special needs kids, never miss a moment in our kids lives. We are ever present, hyper vigilant, (over bearing at times) and just stuck to them like their own shadow. 

I get to experience and watch 98% of every single thing my son does.

It dawned on me when I was watching two siblings fighting in the line for the slide–and I found myself looking around for their parents because they were really young.  And well, they worked out their differences, but those parents will never know how sad their little girl was by how mean her brother was talking to her. 

And I’m sure 10 minutes later she was probably the one being mean to her brother – so it really isn’t the point.  They were independently growing up and figuring it out on their own.

It dawned on me again later when I saw another small child screaming from the top of the play structure trying to get her parents attention, but they were yapping away to another set of adults and never heard her.  She wanted to make sure her mom was witnessing the absolutely brave thing she was about to do.  But they missed it.  

I saw it though – and gave her a little “thumbs up” as she got off the slide.  (And she ran over to them afterwards and they were super happy to see her and watched the second time!)

And that’s when it dawned on me again.  

How I never miss a moment in my son’s life.

How I really SEE people and their emotions and how their non-verbal actions speak volumes about how they are feeling. 

And I realized how blessed I am because my son taught me how to be present and how to be there for as many moments as possible. 

Trust me there are many days I am envious of those parents who get to sit on a lounge chair, read a book or chat with other parents during an outing like this –- but during this particular visit I felt like the lucky one.

Written by, Jo-Ann Turning

Jo-Ann Turning, also known as “Mrs. Bacon,”  is one half of the married, blogging couple from Bacon and Juice Boxes: Our Life with Autism

When my son, Eric, was first diagnosed with autism 12 years ago, I couldn’t say the word without crying.  After many years, and many experiences parenting in both the neuro-typical and special needs world, I have become passionate about building bridges of hope for our family and other families like us.  I’ve been honored to be invited to give several lectures at conferences and schools.   I work full time outside the home, and also am President of Special Wants, Inc. a 501c3 organization which came into existence because of the Facebook group: Special Wants: A Bacon and Juice Boxes project.  This project was initially started by our daughter Anna to connect people looking for obscure, hard-to-find and discontinued items for their special needs loved ones. 

Go give them a follow on Facebook too!

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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