She Doesn’t Look Autistic

“She doesn’t look autistic.” “Are you sure?” “Autism is just the new ADHD.” “Oh, I would have never known.” “But she’s so pretty!” These are all responses I have heard when I first tell someone about my daughter’s autism diagnosis. I am always walking a fine line when it comes to telling people. It’s not because I’m embarrassed or don’t want to talk about it. I am a proud mom and autism is not a bad word in our home (disability in general is not). No, I usually don’t want…

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Car Safety and Autism

Sharing our families huge wins is one of my favorite things to do on this page. Because I know how hard we worked for them. And how so many other families are working towards them too. Before we had the baby, Jamie and I agonized about Cooper’s lack of car safety. He would throw, kick, flail, even rock in his car seat so ferociously that the whole car would rock. We did everything we could to work on his tolerance. We did social stories. We rewarded. We split the boys…

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Thank You Autism

Ever since the age of 7, when I got the question “What do you want to be when you grow up?” my response has always been “A teacher!”. I was one of the lucky ones who never had a single doubt about what I wanted to be, I went to college with a plan, in four years I would be in a classroom full of 20 or so little smiling faces that I would get to call my class! It only took me one semester to figure out that being…

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To the Person at Peace with Autism

I have seen your comments on my favorite blogs. I have thought about your stance. I could feel your frustration with mine. I can imagine and see your side of this. But I would be lying if I said I fully understood it. And I don’t think you fully understand mine. But I hope you can try to understand my thoughts as much as I am trying to understand yours. From the moment I gave birth to my beautiful girl, I have never felt so in tune with another human…

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The Scarlet A(wareness) of Autism

I have never been a huge fan of the word aware, even well before my son was diagnosed with autism. The term itself is a copout, really, claiming the basest level of understanding. I am aware I have a shopping addiction. Terrific. Now what? The educator in me would prefer awareness to sit lower than comprehension, even lower than knowledge within that famous hierarchy of learning. I feel the act of claiming awareness in order to make oneself feel sufficiently enlightened, wise, or in-the-know is, well, lame. One of the finest qualities an individual can possess, in…

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Watching Him Learn About the World

As with anything, there are parts that are beautiful. Parts that are hard, funny and sad. There are challenges. And huge, ginormous victories. There are tears. Both of joy and of pain. There are smiles. And lots of confusion. And even feelings of failure on my part. There is more worry than I ever thought possible. And did I mention love. So much love. Autism isn’t just a word to us. Or a diagnosis. It’s not just a box checked on a form. Or something we advocate for in April.…

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Oh, the Places You’ll Go

As any new mom would, when I was first pregnant I spent my time obsessing. I don’t know why I hated every baby name or why I thought my baby would be nameless. I spent my time reading through baby journals and articles. And in that time I read that babies develop hearing while in utero and that was it. So, we bought a book. Daddy would read aloud near my growing belly. This was going to be his book. I remember we searched for the most perfect book. I…

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The Moment Autism Changed Me

To My Dear Husband, I vividly remember our first date. I was 16 years old and you picked me up in a parking lot across the street from my friend’s house so my parents wouldn’t know. Let’s be honest, it was a disaster. We went to the movie theater and I paid for our tickets, you awkwardly put your arm around my shoulder for 5 minutes near the end of the movie and we did not speak to each other for years. You went on to have a beautiful daughter,…

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6 Wonderful Things I Get to Enjoy Because of Autism

In the wake of Autism Awareness month, I wanted to highlight some of my favorite qualities about my son Zachary, who has severe non-verbal autism. Sometimes it is easier to get wrapped up in the hard parts of autism, because, yes autism is hard. However, there is happiness and joy like no other as well. We live in New Jersey, which has the highest rate of autism in the nation. The CDC reports it as 1 in 32 in New Jersey. Chances are you know someone with autism if you…

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Amy Schumer on Husband’s Autism Diagnosis

Getty Images for Tony Awards Pro

Comedy star Amy Schumer is opening up about why she revealed her husband’s autism on her new Netflix special, saying the couple hopes this encourages people concerned about stigma to seek diagnosis. She said, “There are a lot of people with autism who go undiagnosed when I think their life could be better if they got those tools.” First, I think it’s amazing when autism makes the national news. And I don’t mean just CNN. I mean mainstream media. This story is all over the news and social media. I’ve…

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