Posts Tagged ‘autism blog’
My Sons have Autism
Those 4 words are just words, yet hold so much meaning to me. In February of 2018, my son who was 19 months old at the time, was diagnosed with Autism Spectrum Disorder, Mixed Receptive-Expressive Language Disorder and Global Development Delay. And 6 months later my older son, 9 years old at the time, was diagnosed with Autism Spectrum Disorder, Generalized Anxiety Disorder and Social Pragmatic Language Disorder. My now 10 year old was diagnosed with ADHD-combined type in 2014. Nobody explained to me then I’d be fighting the battle…
Read MoreI Wear the Mask Well
I am NOT a writer by nature. Well, never anything I have wanted others to read. My writing skills have never reached beyond the rambling of journals that are tucked far away from other’s eyes. I have struggled lately with overwhelming emotions and adjustments to not only how Autism changed our lives but to the schedule and workload that follows it. Most of my “breakdowns” happen in the quiet of night when I am alone, safe from judgement. I know I shouldn’t care but the demand to defend my feelings,…
Read MoreAt the End of the Day I have Nothing Left
At the end of the day I have nothing left to give. You could say it’s because I have three kids. Three boys actually. 8, 6 and 6 months. One husband. Two dogs. A house. A job. A website. Friends, family and obligations. You could say it’s the time of my life. 35 years old is the busy time. My life is full. Full of laughter, love, chaos, dirty laundry, trains and hockey. And I love every minute of it. You could also say it’s because I am up before…
Read MoreSiblings, But Really Two Only Children
I’m an only child. It’s a state of life that I know well, but have always wanted a sibling. Don’t get me wrong, there are many, many benefits of being an only child. And when speaking to those that aren’t, they’ll often “wish” they were one or talk about how frustrating their siblings are. The benefits are the obvious ones: you get all of the focus of your parents, you often get more material things, you don’t have to share, there is very little fighting as there’s no one to…
Read MoreThe Issues that Divide Us
I have 2 teenage girl with autism. My oldest Claudia has very limited language and severe behaviors. She requires assistance with most everything. My youngest Keira is verbal and has social and behavior issues. Our life is not easy. Lately our family spends a lot of time divided. Claudia has a lot of verbal stims (saying same word repeatedly) and some of these can trigger a meltdown in Keira. When this happens (usually with little warning) my husband takes Claudia for a ride or to go swing. I generally spend…
Read MoreMy Son was Born with Autism and it’s Genetic.
When I was eight months old, I had open heart surgery to repair my pulmonary valve that was only 2mm wide open. As a result, sometimes I have shortness of breath. I could possibly have another surgery in the future to replace the valve. Other than that I have no other medical conditions. Thirty years later my son Nicholas was diagnosed with autism and a rare genetic mutation within a week of each other just after he turned 3 years old. This is something he inherited from me, which also…
Read MoreA Harsh Reality
That moment when you realize your child’s diagnosis is far worse than you originally thought. It was almost as if I couldn’t catch my breath. Like someone was choking me. I cried as if someone had died. It sounds harsh, but trust me when I say that’s how it felt. I always knew my son Isaiah was special. From the moment he was born, I knew my boy was going to be somewhat different and not live a completely “normal” life. That was my Mom gut instinct. He was born…
Read MoreIt’s More than Awareness
When I reflect about this month; April – Autism Awareness Month, what is it that I want most? I want ACCEPTANCE, ADVOCACY and ACTION! I want others to not just be aware of autism but to actually accept, make a difference, and make an impact in a life of some living with autism. When we talk about awareness, its a good start but it’s not something we should be satisfied with. It’s not until people understand, accept, and take action that we should say that progress has been made. So,…
Read MoreUnderstanding Social Norms
This afternoon I took Cooper and my baby for a walk. If you have followed me for a while then you know that my son is thriving. It’s obvious in my posts. I like to say we are all settling into autism. Me. My husband. Sawyer. And Cooper. Our whole family. We are all learning. We have calmed down. We rarely get shocked anymore. And Cooper is doing so great. We have started venturing out into our community. Daily. We keep trying. Pushing. But I never, ever take my boys…
Read MoreThe Greatest Teacher
It was a beautiful, sunny April day last year when Autism first became a part of our lives. It was in the last few days of Autism Awareness Month that we were presented with my son Jack’s suspected diagnosis of Autism and we would begin our journey on the spectrum. His diagnosis would be confirmed a month later at an appointment with our developmental pediatrician- a last minute appointment we were lucky to get almost seven months early due to a cancellation and our ability to be there with short…
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