Posts Tagged ‘autism blog’
They Will Always Have Each Other
On particularly emotional parenting days I’ll watch them sleep. Brothers. Two years apart. One on a typical path with friends, sports, and 1st grade. The other on his own path. Doing everything at his own pace. They share a bed. Neither one acknowledging the other one until bedtime. 8:30 will roll around. Sawyer will still be in the backyard hitting baseballs or riding his bike over a jump with his friends. Like clockwork, Cooper will look around, grab his blanket with one hand, put his other hand on his check…
Read MoreThe Beauty in a Sibling
Because of our son Jack’s autism and sensory issues, one of the most difficult tasks for him is spending time at doctor’s appointments. When we bring him, he has severe anxiety; accompanied by lots of tears, screaming, tantrums and sometimes self-injurious behavior. It is heart breaking. Now, this may sound crazy…but because of this, in addition to all of his own appointments, I make sure to bring Jack to all of his siblings visits as well. You’re probably thinking WHY?! Right? Well, I do this in hopes to desensitize Jack…
Read MoreTo the Mama who Wonders Why
I’m giving you this baby. He won’t be like the other ones. Maybe you’ll know from day one. Maybe it will take time. But eventually, you come to realize that something is different. It’s going to be hard at first. Not the love part. That part will be easy. But the fight to figure out what and why. That part will leave you depleted in a way that feels almost impossible to explain. You will be pushed to your limits. You are going to question everything you’ve ever done and…
Read MoreA Crystal Ball
Most parents would enjoy looking through a crystal ball to see what their child’s future looks like. What will your child’s life look like in 10 years? 15? Their wedding? The day your first grandchild is born? And finally how your children are doing when you are no longer around. You don’t want to wish the days away, but getting a peak would be so fun! Maybe 10 years from now they will be turning 18. Will they be heading off to college? trade school? getting a full time job?…
Read MoreBattling Anxiety and Depression When Birthday’s Come
I think it is very safe to say that most parents of children with autism are battling anxiety or depression…or a bit of both, depending on the day. How couldn’t we? From the time our children were tiny and specialists noticed they were ‘different’, we have been fighting every day of our lives. Fighting for them to receive the therapies they need. Fighting to have them included in this world. Fighting to teach them all they need to know so that hopefully…one day…they ‘might’ catch up. And this is where…
Read MoreMy Son, Always Be Kind
Sawyer could hardly contain his excitement as we entered the gym for his friend’s birthday party. Hockey, basketball, cake and a bounce house. It doesn’t get much better than that in the eyes of a six-year-old. He dropped his present on the table as I checked him in. I caught him just before he ran off. I bent down on my knee to check his shoe laces and give him a quick hug. As I stood up I said the same thing I say every single time I leave my…
Read MoreAt Your Lowest Point, Have Faith
I should be at church right now. There are a whole lotta reasons why I’m not. Sawyer is at hockey practice with Jamie. I have no one to watch Cooper. I need to pack for our trip and clean our house and grocery shop and make the itinerary for the grandparents. Anyhow, I’m sitting here, drinking coffee, watching two of my boys play, and thinking about faith. It’s no secret that my son is thriving. We’ve figured out how to help him in all the ways that he needs help.…
Read MoreI Will Never Be the Same
Yesterday, I couldn’t get out of bed. I barely willed myself to do the dishes. I can’t explain why. Nothing had really “happened.” There wasn’t some explosive meltdown or feelings of inadequacy. I just got scared. So scared. I remember when I was a child and I would wake up from a bad dream and find myself in between my parents, completely safe and free or fear. Now I find myself in my son’s bed, my body curled next to his, never wanting to let go, knowing every morning I…
Read MoreTips for Engaging with my Child during the Holidays
Prior to my son’s diagnosis I knew nothing about autism. Zero. So, I understand completely that most people have no idea how to approach or connect with an autistic child. If autism wasn’t thrown in front of me like a speeding bus, I would be completely oblivious. But it was, and I now have a bus load of experiences that have left me yearning for a world where people take more time to get to know the children in their lives who have disabilities. Most people are friendly. They say…
Read MoreStart the Tough Conversations
What is the most difficult, yet important conversation you’ve had around your child’s needs? Maybe it was around medications. Or the decision to have more children. For Jamie and I, it was around forever. It took us years to be able to sit down and rationally speak about it. In the beginning, I’d bring it up. We’d fight. Months later, he’d bring it up after a few drinks, and I’d cry. We could never get on the same page at the same time. I think it had to do with…
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