Posts Tagged ‘autism acceptance’
We Don’t Blend In
We don’t blend in, this kid and me. Not that we ever did, but I’ll admit when he was smaller it was easier. We got by with the graces people bestow on toddlers and energetic kindergarteners. But 9. Well, 9 is a whole different story. Nine is four feet, four inches tall. Nine is feet almost as big as mine. Nine is big and loud and noticeable. I used to care a lot when people stared at my son. At us. I would start to sweat and my face would…
Read MoreWhat’s Your Name?
We walked into our favorite Thai restaurant to pick up our carry-out order when my 7-year-old son James began greeting all of the customers. “Hi,” he said with a huge smile to each person we passed. For the last several months, James, who was diagnosed with autism at two, has developed a love for meeting new people and learning their names. For a while he would just point at people and say, “Who’s that?” So, with our team of ABA therapists, we have been teaching him to introduce himself. I…
Read MorePlease See The Whole Picture
I share a lot of our struggle. I need it to be seen. It cannot be the part of autism that gets ignored to make others more comfortable. And I feel like so much of severe autism gets minimized. It has to have a voice! I don’t just want people to be aware or accept, I want you to be a voice, an advocate and see the whole picture. You have to see the dark, because it is there whether you want to see it or not. However, with that…
Read MoreNo Child Left Behind
It is November and the first progress reports have been sent home and parent-teacher conferences have happened. My son Caleb is adjusting well to 5 days a week of Pre-K. His speech has improved, we are using sentences with 3-4 words and answering some ‘yes and no’ questions without prompts. I am definitely seeing the growth from last year. His teachers and I both agree that we have to continue working on independence. He sticks to them like glue and gets jealous of the younger kids. At home, he sticks…
Read MoreI Wish I Had a Crystal Ball
When my son was diagnosed with autism over five years ago, I thought it was a race against time. I thought if we did everything all at once, all the therapies and services, we would help him, and he would eventually get back on track. I knew he’d always have autism. I was never one that thought it would go away. But I did think we would help him, bit by bit, and eventually he’d be where he needed to be. Which at the time I thought was alongside his…
Read MoreWhy I am Thankful for my Special Needs Daughter
I am thankful for my special needs daughter. I should probably clarify. I’m thankful for my daughter…not the special needs. I’m not a parent who says that I wouldn’t make life easier for her if I could. I would. But that’s a topic for another post. Today is about a golden birthday and it’s about being thankful. It’s a lesson that I’ve learned over the years about perspective. Today, November 12th, is my daughter Liz’s 12th birthday! Liz has a rare genetic mutation and along with that has come a…
Read MoreParents, I have a Plea from the Bottom of my Heart
To explain, this week there were two incidents that tore me up inside. I met a beautiful little 4 year old who I found out is in my daughter Evangeline’s class at school. When I asked if she knew Evie, she said with wide eyes ‘Yes! Evie just cries all the time!’ She was a sweet thing and meant no harm, but it hurt hearing that as her description of my daughter. Then, I was told by her caregiver that when they were leaving school this week, another classmate pointed…
Read MoreEnter Your Child’s World
One of the things I hear the most often from parents of newly diagnosed children is…I can’t figure out how to get my child to play with me. Or, I can’t find an activity for us to do together. This is coming from moms and dads who are trying so hard. They are desperate to get inside. But they don’t know how. Not yet anyways. Boy does that resonate with me. I was that mom years ago. My son wouldn’t play with me. In fact, he didn’t play at all.…
Read MoreMy Son, I Will Never Give Up
As I sit here watching you sleep, I keep thinking of the life I had envisioned for us. God it is so different than our life now. I saw football games, school plays and parties. Sleepovers with 3 or 4 wild and crazy boys driving me batty. Pulling spiders and bugs out of your jeans pockets and me freaking out and telling you to take them outside. I saw myself being a den mother because you told me you wanted to be in boy scouts like all of your friends.…
Read MoreWhat is it like to be Non-Speaking?
I have no words to describe what your experience must be like. I have no words, because I simply don’t know what it’s like. Only you know, my sweet boy. I have no words to describe what it must feel like to wake from a nightmare at three and a half years old, get out of bed silently, and run toward your parents’ room. What is it like to hope you find the door open, so that you can run right in? Sometimes, we forget to leave it open. Sometimes,…
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