The Perfect Christmas Ornament

The most beautiful ornaments are the ones that were never meant to be an ornament. Looking back we always had big family Christmas celebrations with my husband’s family, celebrating what was and is really important…having a family that loves you for who you are. My husband’s family have always been our biggest supporters, our voice when we were unable to speak, and our spine when we felt like falling. They never saw us as the family with the broken kids but as the family who was theirs and kept doing…

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Happiness Looks Different for Everyone

A profound moment for our family was letting go of the picture in our head if what it was supposed to look like. Timelines. Must do’s. Picture perfect moments. Obligations. Stress. I suppose you could say expectations too. We let all that go. It was a hard goodbye. Because as people, humans, parents, we have this picture of what life is supposed to look like. We expect certain things. Big and small. We want things to go a certain way. Holidays are a big one. And autism changed them all…

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A Letter of Hope and Inclusion

A beautiful and heartfelt letter. Written to my son by a fellow classmate, a “secret elf.” Dear Ethan, You are a great friend. You fill the class with joy. You make our class better and better. I love that you like dinosaurs. You work so hard. Keep being you. From: Your Secret Elf When I read these words, I see kindness. I see inclusion. I see love. And that last line, “keep being you.” That my friends, is acceptance. The true beautiful meaning of acceptance in its purest form. Another…

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Choose Kindness

When do we learn hate? At what age? It’s a question I’ve been thinking about for days now. I share these three boys and our family on Facebook. I do it for a few reasons. I want to normalize autism. I want to remove the stigma and fear from the word. I want to show the possibility. The reality. The hope and the joy. I want to educate the person who knows nothing of disability. So when they meet a child or adult like my son, they give grace. And…

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Mamas who are in the Grief Stage; it is okay

Why would you feel grief over autism? Your child is alive.  They are healthy, even happy most of the time.  It could be so much worse they say.  I have said those words to myself as well as had others say them to me. It does little to bring you comfort in the darkest corner of your mind. All it really does is make you feel guilty and believe me we feel an insurmountable amount of guilt already.  The guilt can be even worse than the grief. I could tell you…

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I Wanted to Tell Her It Would Be Okay

It was a warm sunny day in the middle of June. We were, and still are in the midst of a pandemic. We live in southwest Florida so the June days can become unbearable at times. I was almost 7 months pregnant with a very crazy 1-year old little girl. My husband and I decided to take her to the pool to cool off and have her burn off some of her energy. We live in a little community, filled predominantly with retirees. We are one of a few families…

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Good People

For almost two years now, my son Jack has wanted a job. He wanted to work. I still don’t know why he chose the place he did—a local pasta restaurant in the center of town. He went online to their website and researched the requirements. Carefully, he printed out the application. He sat at the kitchen counter and answered the questions about his age, birthdate, and previous experience. He asked if he was a US citizen. I assured him he was. They hired him. For over a year, he has…

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Thank You For Including My Son

Disclaimer: Due to privacy concerns, names have been changed to protect the identity of minors. There’s a little girl in my son Nicholas’s class. I’ll call her “E.” Nicholas and E just met this year in Kindergarten. They like to play outside together. They like to sit by each other in school. They even like to hold hands. You may think this is a typical friendship story. A cute little love story. You may think you’ve already heard this story before. But this is different. This is a story of…

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Bucket List

Have I told you all that I made a bucket list for our family? For 9 1/2 years we were mostly homebound. And in those 9 years we worked on things like safety, waiting, sitting, standing and communicating. The progress felt painfully slow at times. But his hard work, ours too, is starting to pay off. Last week we visited a zoo! The week before that it was a pool. Today, it was an aquarium. A real aquarium with sharks and sea turtles and string rays. The place was deserted…

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My story as a Grandparent of a Child with Autism

When your kids get older and become adults you start to think about what their life will be like. You start asking yourself questions like “who they will marry?”, “how many kids will they have?”, and “did you do a good enough job raising them?” At least these are the thoughts that I had run through my mind as my children began growing up. I had all these thoughts of what their spouse would be like, and how their wedding would be, and if they would always need me or…

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