Posts Tagged ‘apraxia’
Please Take the Time To Listen To My Child.
I read something on the Apraxia Facebook page that brought me to tears. I have voiced SO MANY of my worries about Cooper’s future ranging from school to bullying to interacting with others. And the worry doesn’t stop there. I want and need Cooper to be popular and loved. I want and need him to have friends and be successful in relationships. What mom wouldn’t want these things? I read a post on the Apraxia Facebook page that brought me to tears. I was just sick after reading it. It went something like…
Read MoreFinding Cooper
I’ve been staring at my computer for a while now trying to figure out what to write about our meeting with the child psychologist. A few words come to mind. Acceptance is one of them. It’s time now. Time for me to accept this. Right now, today, Cooper has special needs. It may get better and it may not. Honestly, the meeting probably had the best outcome that it could have. So, in that sense it was great. I’ll give you the facts first. Then I’ll give you the feelings. They…
Read MoreIt Is What It Is.
Cooper had an amazing speech appointment today. To put it honestly, he was perfect. And that is something I don’t get to say all the time. He played, giggled, flirted, vocalized and interacted. He did it all and he had a smile on his face the whole time. I was riding high. I was even relaxed and enjoying myself. And then his therapist said something that was supposed to make me feel better. At least I think that’s what she was doing. She said, “my boss wants me to diagnose Cooper…
Read MoreSuper Cooper is Growing Up
Something has changed with Cooper. Even as I type this I am hesitant. I haven’t even said it out loud to anyone but Jamie. I’m scared if I say it too loudly it will disappear. So let’s pretend I am whispering. Last Friday we stopped giving Cooper his daily dose of Miralax. This was a huge step for him and we thought for sure it wouldn’t work. But it’s been over a week now and he is doing great. Thank God. We also started Cooper on a new dose of Fish Oil last week as well.…
Read MoreThe Evaluation is Done.
Quick post today. Cooper had his evaluation with the psychologist yesterday. Thank God that is over. We meet next Wednesday to get her feedback. According to her and his daycare provider the visit went well. Cooper made perfect eye contact the whole time, greeted parents and greeted the psychologist. Oh, and followed directions. But, what I didn’t hear is how he interacted with the other kids. And I was too scared to ask through email. So, Wednesday it is. Will this wait every end??? I wanted to share a little…
Read MoreThe 'One Degree of Cooper' Game
Have you ever heard of the Six Degrees of Kevin Bacon game? Basically it’s this game where every person in Hollywood is somewhat connected with Kevin Bacon. My life is like this…except I would call it the ‘One Degree of Cooper’. Every single thought that goes through my head goes back to Cooper and my non-stop worry. I’m not joking. I see Cooper in every kid. Every person actually. And I have noticed that it’s starting to get out of control. I worry during the day. I worry at night.…
Read MoreCooper's just Cooper
Tuesday was a really tough day and it took me by surprise how hard it hit me. Just when I think things are getting better WAM. Like a freight train. I am so mad and so sad all the time that it just wears me down to nothing. And I’m tired of being mad and sad and tired of being tired. But most of all I’m tired of expecting things to be different. Maybe I need a big dose of acceptance? Maybe that’s the missing piece. I spent most of…
Read MoreInstead of Answers We Have More Questions
Yesterday was really tough. And for more than one reason. I actually thought about sugar-coating it because I feel like lately I have been posting such bad/sad stuff. But if we can’t be honest in our blog what hope do we have! A guy that I went to college with committed suicide last week and the funeral was yesterday. Tuesday night the whole gang from college got together. It was one of those moments where you haven’t seen each other for 10 years and all of a sudden you are best…
Read MoreWhat If My Son Never Talks?
I tell myself on a daily basis that Cooper might not talk. I have too…for me. (This is one of my freak out posts.) I am pretty sure it is a defense mechanism. I have even started saying it to my parents. It’s like I almost need to shock them or something. But not to be mean or hurtful. I need them to get it. I need them to understand that this is really, really serious. On a scale of 1 to Oh My God this is Oh My God plus one.…
Read MoreA Big Week Ahead
We had another excellent weekend. I could start getting used to this! I’ve heard from lots of other moms that their kids really started to grow up at age 3 and I can say that I am seeing lots of changes in Cooper. We had our big family Christmas on Saturday at a water park and let’s say we learned that Cooper is half-fish. He spent so much time in the water I didn’t know if the pruning would ever go away. I get very, very nervous for events like this…
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