Cooper's just Cooper

Tuesday was a really tough day and it took me by surprise how hard it hit me. Just when I think things are getting better WAM. Like a freight train.  I am so mad and so sad all the time that it just wears me down to nothing. And I’m tired of being mad and sad and tired of being tired. But most of all I’m tired of expecting things to be different. Maybe I need a big dose of acceptance? Maybe that’s the missing piece.

I spent most of the day at work after Cooper’s appointment staring at my computer with crazy manic thoughts running through my head. I alternated between, he needs more therapy, it’s never going to get better, why me, we need to move closer to family, I can’t do this anymore, that kid is so lucky he is cute, blah, blah, blah. I progressively worked myself up more throughout the day.Cooper window

When I left work to go home to Jamie and the boys I was actually still a little mad at Cooper. Awful, right?  And then I pull in the driveway and the peanut is standing at the window waiting for me. The second he sees me he points and gets a grin on his face a mile wide. He starts bouncing up and down and my heart burst into a million pieces.

And it hit me. This sweet little boy has no idea. He doesn’t know that so many people in this world are praying for him. He doesn’t know that I have shed millions of tears. He doesn’t know the fighting I have done…with myself…with other people.  That I don’t sleep because of the worry. That I don’t recognize myself anymore.  That I have lost relationships. Lost myself. Lost hope. He doesn’t know what he is missing or the journey ahead of him.

He’s just Cooper. My sweet little boy.  A little boy who is so happy to see him mom and give her kisses and hugs. And I thanked God that he’s mine.

So in the house I went. We spent the evening building forts and playing basketball. We tickled and wrestled and laughed. Read a hundred books and then snuggled in bed.  It was a great night. Just what I needed.

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Kate Swenson

Kate Swenson lives in Minnesota with her husband Jamie, and four children, Cooper, Sawyer, Harbor and Wynnie. Kate launched Finding Cooper's Voice from her couch while her now 11-year-old son Cooper was being diagnosed with autism. Back then it was a place to write. Today it is a living, thriving community of people who want to not only advocate for autism, but also make the world a better place for individuals with disabilities and their families. Her first book, Forever Boy, will be released, April 5, 2022.

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10 Comments

  1. lundquistclan on January 23, 2014 at 2:42 pm

    It is hard and I find myself getting mad at my little guy (5) and then it hits me…He can’t help this stuff. So we do the same thing give some hugs, sign to each other that we love you, and play trains. Trains seem to cure all the hurt in our house lol. Good luck to you from the frozen land also known as Minnesota.



    • Avatar photo findingcoopersvoice on January 23, 2014 at 3:08 pm

      I couldn’t agree more! It’s all about trains in this house too.

      Minnesota is ridiculous right now! It was -23 when my husband dropped the boys at daycare this morning. Who lives like this???!!



      • lundquistclan on January 23, 2014 at 3:13 pm

        I guess the dumb ones called us 🙂



        • Avatar photo findingcoopersvoice on January 23, 2014 at 3:14 pm

          True that!



    • mewhoami on January 23, 2014 at 5:09 pm

      I love Minnesota. It is so beautiful there. But, having spent a few months up there last winter on the edge of Lake Superior, I’ve chosen to only visit during the summer time from here on out. Stay bundled!



      • Avatar photo findingcoopersvoice on January 23, 2014 at 5:13 pm

        I’m on the edge of Lake Superior! The cold is brutal right now. This mama needs a vacation!



        • mewhoami on January 23, 2014 at 5:16 pm

          Really? We were in Duluth, with daily travel from there to Wisconsin. Along the lake the whole way. The cold there is a cold I’ve never experienced in my life. A bitter cold, to the bone cold. It gets cold in Colorado too, but nothing compares to what you guys get there.



  2. mewhoami on January 23, 2014 at 5:07 pm

    This was beautiful. My son was the same way. To this day, he claims that I was nicer back when he was younger than I am now. He obviously doesn’t remember back then, because nice was not a term I could have used to define myself with him. I’m thankful he doesn’t remember. Really, I think he just blocked it all out, but his lack of memory works for he and I both.



    • Avatar photo findingcoopersvoice on January 23, 2014 at 5:12 pm

      Well said! The days are long and hard sometimes. Thank goodness for the great moments that carry us through!



  3. Shannon on January 23, 2014 at 5:45 pm

    Aww! I can totally sympathize. Everything is great and then all of the sudden you get derailed by your own thoughts. But you got it, life shouldn’t be considered a noun it is really a verb. You can hold it or think about it, in only exists to be lived. Cheers to you and Cooper.