Guest Post
6 Wonderful Things I Get to Enjoy Because of Autism
In the wake of Autism Awareness month, I wanted to highlight some of my favorite qualities about my son Zachary, who has severe non-verbal autism. Sometimes it is easier to get wrapped up in the hard parts of autism, because, yes autism is hard. However, there is happiness and joy like no other as well. We live in New Jersey, which has the highest rate of autism in the nation. The CDC reports it as 1 in 32 in New Jersey. Chances are you know someone with autism if you…
Read MoreTake my Hand
“Take my hand, we’re gonna go, where, we, can, shine!” Music has always been a way for me to heal. I don’t play, I don’t sing…I listen. There have been times in my life I feel as though I am being punished. Being punished…but for what? I am not quite sure? A dark cloud forms and rains down…. but why? I have racked my brain. I have asked tough questions. I have dug deep, deeper then I know others are even capable of going. I have blamed others. I have…
Read MoreThis is Not What I Expected Either
“He’s 6 years old, he should be able to walk the block without complaining or flopping.” “Trick-or-treating should be fun, not stressful.” “We should be able to walk through Target together and not have to put him in a too-small cart so he doesn’t get away from us” “Field trips should be such a fun day away from school….” These thoughts either go through my mind or they cross my lips far too often. Combine our lack of child rearing experience (prior to E), our expectations, our own childhood experiences,…
Read MoreYou’re Destroying Him…
You’re destroying him. You need to look at it from an outsider prospective!” Two weeks ago, Hudson’s entire therapy team was out for a collective group session. This included his TSS, his behavioral consultant, and their supervisor. We often enjoy these meetings because although it seems like extra people in our home, it is great for brainstorming and collaboration. Our therapy team is fantastic! They go above and beyond to meet our schedule and to meet Hudson exactly where he is at for the day. Even though they are primarily…
Read MoreYou Boys have made my Heart Whole
Caleb and Ben, my sweet little boys, you both mean the world to me. You’ll never even know. You wake up each day with big smiley grins. Those smiles melt my heart, and I live for them. You both have fragile x syndrome; there’s no denying it runs our household. And although it’s been quite far our biggest challenge, it’s shown me the most amazing abilities you both hold within. When some say they’ve worked hard for everything in their life, they have no idea. You two have and will…
Read MoreI’ll Never Give Up On Him
I remember attending a speech therapy play session at the start of our autism journey. My son Freddie was 3 years old. He’d officially been diagnosed just over 6 months previous to this. I was excited and nervous. The autism world was all still fairly new. I didn’t really understand what or how severe autism was going to affect Freddie. I’d never heard of low functioning autism, and googling severe autism left me feeling hopeless. I reminded myself that Freddie was still so young. I was in denial. I thought…
Read MoreI didn’t see it then, but I do now…
I’ve been feeling a lot lately like I need to get my words out, get my feelings out. It tends to happen when my husband is away at work, which is something that doesn’t happen often these days. We have gotten very used to him being here similar to how “normal” families operate. But when he is not here, I find that my weeks are filled with kids, work, and minimal adult conversations. And let’s face it, sometimes he does not want to listen to me babble! There is something…
Read MoreLife is Full of Bittersweet Moments
I was looking through pictures on my phone the other day and came across a picture that caused me to pause. The special picture is of Brian with his cute cousins Lilly and Leah. Brian, Lilly and Leah were born within the same year of each other. They live in the same community, attend the same schools and share the same last name. Life’s big moments I remember thinking how fun this could be as the kids grew older. I envisioned them having mutual friends, attending the same gatherings and…
Read MoreListen with your Heart
Hearts have always been my son’s favorite shape. Because of his autism and limited verbal skills, in all of his five years on earth he hasn’t told me this, I just know. He is drawn to them. He likes to build them by putting other shapes together and points them out whenever he comes across one. This makes perfect sense, with him being the sweetest little guy I know. Sweet, and a little spicy, too. He is often in his own world, one that we are constantly working to understand,…
Read MoreRegression SUCKS
Yes – I said it. Regressions sucks. Seeing my son who works so hard everyday lose skills and gain more anxiety is one of the most difficult aspects of this journey. He works so hard for each and every skill he has and to see one of them disappear is heart wrenching. We are currently in the mist of regression. When Jayden gets into a regression it seems to last months and it takes nearly everything inside of us to bring him out of it. Luckily each time his team…
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