Guest Post
The Real of Autism
Hi, my name is Adrian and I am accused of being an over-sharer. I concede. While I’m sure many do not relish my photographic exploits (particularly of myself), sharing terrible photos tickles me. It’s the same reason I share that I weigh 181 pounds. Damn prednisone and IVIG and maybe those bagels with cream cheese for breakfast the past three weeks. It doesn’t hurt my feelings if you b*tch and moan about that kind of mess.Or if you go apesh*t that I use the term “Karen.” FYI, its mainly people…
Read MoreSpecial Needs Mamas, Don’t Stay in the Hard
This morning I was headed to pick up my son from his hybrid, half days of kindergarten. I thought about how tired I was, how much I was tired of shortened school days, and then my favorite song came on and snapped me out of my complaints. Our day had started hours before the sun was ready to come up, when the house was quiet, and we could watch cartoons and eat cereal with leisure. This was our life for so many years, two am wake ups for weeks, or…
Read MoreRaising a Child With Autism; You Are Not Alone
During the years surrounding my son’s autism diagnosis, I could barely say the word “autism” out loud. I thought I would just break down every single time and, frankly, I didn’t have time for that. To be clear, this had nothing to do with shame. Not one day has gone by that I am not immensely proud of this boy. It was about fear, worry, the unknown, and all the other bumps along the road to acceptance. All a parent could ever want is for their child to be…
Read MoreA Taste of Inclusion
Last year my son Stalen went to preschool. I was so nervous and scared. It’s one thing to send your child off without you but it’s another when they are non-verbal, on the autism spectrum and have a lot of unique challenges. Stalen has pica so I was worried that he would eat something he shouldn’t. He also is a runner and elopes so that weighed heavily on my mind. I was worried about him being accepted, I was worried that he wouldn’t make any friends. I was worried that…
Read MoreThe Whispers of the Past
Throughout our journey to finding your voice I have come to learn the beauty in the simplicity of a whisper. There were days where I dreamt of your voice. I’d wake in tears trying to remember every moment, the tone, your facial expressions, but as quickly as the dream came, the memory of it left forever. My days would be filled with working with you on gaining communication skills, whether they would be by verbal speech or by hand gestures. I wanted, no I needed you to be able to…
Read MoreI am Not That Strong
“You are so strong.” If I had a dollar for every time someone has said that to me, I’d have enough money to pay for ABA Therapy…out of pocket. If you aren’t a special needs mom that might not make sense to you, but trust me, it is A LOT of money. I first started hearing it when I got divorced. Then even more once my son was diagnosed with Autism. A single mom to a special need’s child. I get it – It sounds strong. Here is the thing…
Read MorePerspective from an Autism Uncle
I remember my Godson Zachary’s first birthday after his severe, nonverbal autism and apraxia diagnosis. I remember it clearly. I bought him this Ninja Turtles hat, knowing he hated hats but I thought how that was the one he was going to love. Spoiler alert, he didn’t. I think everyone in Zachary’s village has had this kind of moment over the years…which is fine and mostly harmless…but this doesn’t do him any favors. I think about that moment often. I don’t remember ever discussing the hat any further but I…
Read MoreSpecial Needs Siblings are a Gift to the World
Last night, a cashier at Target brought me to tears. He was probably about 17 years old, the same age as Liz’s big brother. When we pulled up to the checkout lane, he asked Liz if she wanted a sticker. She shook her head no, as she always does in answer to that question. He then asked her what she wanted for Christmas. I politely said that she is nonverbal and mentioned a few of the things that she might like for Christmas. He didn’t miss a beat and went…
Read MoreThe Perfect Christmas Ornament
The most beautiful ornaments are the ones that were never meant to be an ornament. Looking back we always had big family Christmas celebrations with my husband’s family, celebrating what was and is really important…having a family that loves you for who you are. My husband’s family have always been our biggest supporters, our voice when we were unable to speak, and our spine when we felt like falling. They never saw us as the family with the broken kids but as the family who was theirs and kept doing…
Read MoreChristmas is Changing
When I dreamt of Christmas with my daughter, I pictured so many things. Simple things really. Christmas movies, Christmas shopping, hot chocolate after ice skating. Sure, we can do those things but gosh they are hard or there is almost always a fall out. The timing of the fallout has changed over the years. I would like to think it is learning to tolerate the outside world or maybe its age. Christmas isn’t typically a joyful time of year around here. Christmas in general is loud and busy. Two things…
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