Autism
Hunger
Hello. My name is Carrie. I am married to a man named Joe and we have four boys and one daughter and our second son, Jack, has autism. He is sixteen. Today I’d like to talk about something that can make people uncomfortable. Food. Listen, I love food. Our family loves food. You might say food is our love language. I don’t necessarily love to cook aforementioned food, but listen, everything has its limitations. My son Jack loves to eat. He organizes his day around breakfast, lunch, dinner, snacks, and…
Read MoreMy Dream for a Better Tomorrow
I dream of a world where Autistic is put in the special skills and strengths section of a CV and not the medical section. The knowledge should already exist that we have additional needs, we shouldn’t have to specify it on a form as a disability or disorder. Here is why the word Autistic should be respected, admired and in some cases envied. I cannot emphasize enough how much autistic people have shaped this world and provided global changing technology, medicine, knowledge, understanding of the unknown, detailed analysis of countless…
Read MoreIn the Search For Sleep
We chase sleep this kid and I. One of us loves it. The other one not so much. Although he never misses an afternoon nap with his seven blankets and train magazines. I call him a 90-year-old man every afternoon. But the nighttime sleep, he doesn’t love it so much. He goes to bed great…always has. But his preferred time to wake up is 3 am. He comes in my room, touches my shoulder to let me know he’s awake and then he wanders downstairs. I can hear him, my…
Read MoreBalance and Progress
We just went for a family walk plus two. Cooper knew there was a train magazine waiting for him at the mailbox so even though it was not ideal walking, (90 degrees!) we got a good walk into the park before getting the mail. Before we stepped off the porch, Cooper grabbed my arm to get my attention, covered his ears with both hands, and pointed to the sky. Fireworks. He was scared. I think about his world sometimes. Fire and noise in the sky. Scared to step off the…
Read MoreBalancing Two Different Worlds
Tomorrow is the 4th of July. A fun, typically outdoor, social, loud, hot holiday. It’s also a holiday that can be very challenging for families like mine. And put a lot of stress on us. See, our older son struggles with a lot of the parts that make up the fourth. He is scared of fireworks, although he loves to watch them on his iPad. The second he hears one, no matter how far away, he takes off running and hides in our pantry. Parties overwhelm him. Most noises are too…
Read MoreI Choose Gratefulness
It’s interesting to know how much my attitude plays into this whole mothering thing. When my oldest was diagnosed with autism six years ago, my focus was him and him only. He was the one who was struggling. I needed to help him. I learned after hitting my breaking point, that my mental health mattered too. I was exhausted. I was worn down. I felt the weight of hope firmly on my back. And my attitude was being affected. I was looking at things through a sad lens. A heartbroken one.…
Read MoreEmpowered Brain: Making a Difference for People on the Spectrum
Often in this journey, I come across super cool stuff that can help kids and adults on the spectrum learn vital skills and the best part is sharing it with all of you. Empowered Brain by Brain Power is one of them. So often, children with autism, like my son Cooper, can have a hard time making eye contact when interacting and that can mean they miss out on a lot of information. Ned Sahin, founder and CEO, of Brain Power recognized that and created the tool ‘Empowered Brain,’ that…
Read MoreI’ve Been a Primary Caregiver for 30 Years. Here is What I Want you to Know:
Hi, my name is Kelly and I am the mother to an amazing young man named Steven. He was diagnosed with autism at age 2 and later apraxia. He recently turned 30 and is a dynamic, smart, interesting, funny young man. We share our story on Instagram at Growing Up Steven. Being a primary caregiver for the last 30 years has rewarded me with a few things: A panic disorder, depression, anxiety, excessive worry, marriage struggles, and at times, not the mom my kids deserved. I want you to learn…
Read MoreHow I Forgive
Did you see that story about that school in New Jersey who left a student with Down Syndrome out of the yearbook? Her name is Glenda. She is twenty-one years old, and the youngest of five kids. Her sister wrote a long, detailed post about it on Facebook. It was a good post. “Glenda is very active in the school and community, so from her perspective, it was really hard for her to understand why she wasn’t included.” My name is Carrie. I have a son with autism. His name…
Read MoreCaptain’s Log: Day 6, Social Distancing
I want to be crystal clear about something. Never once have I wondered what it would be like to spend 24 hours a day with my husband and beautiful children. Never have I considered homeschooling my children. Never have I considered moving out to a remote area, having a dozen more children, living off the land and singing songs like the Von Trapp family for fun. I like work. I love daycare and school. I love people and socializing. And I love Target. So, it’s safe to say this has…
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